Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In L.a.?


L.A. Girl

Recommended Posts

L.A. Girl Newbie

I am a 35 year old L.A. native in desperate need of finding the right doctor in Los Angeles. I have severe allergies and asthma and after being on antibiotics 6 times in 2009 and almost 7 months of prednisone into last year, I said enough was enough. It was time to reclaim my health!

Last year I started researching what could really be making me sick and came across gluten intolerance and celiac. Thank God for some of the books out there and this website! :)

Needless to say, like many people have found as it seems, there was a lack of information especially in the medical world. I asked all of my doctors- my allergist finally said maybe it was causing my health issues, but would not test me. He seemed not to know enough about it.

I went to a general med doctor who was recommended as "specializing" in celiac and he went ahead and did the testing even though I had been gluten-free for about a month. I of course didn't test positive to celiac, but absolutely know I am gluten-intolerant and always have been. I have been gluten-free for about 8-9 months now and notice such a difference. I only had to be on antibiotics and steroids once or twice this last fall/winter and I am happy to say that my asthma is under control. It is shocking to me how much better I feel- I'm still kind of angry I didn't figure this all out before.

Anyway, the reason, I so desperately need to find the "right" doctor is that I have developed tendonitis in the last year and discovered I am Vitamin D deficient and have an elevated iron level. I have gone to two different doctors for the tendonitis-the current one, an orthopedic surgeon is ridiculously unhelpful.

We have a history of rheumatoid arthritis and osteoporosis as well as diabetes, cancer and I'm sure some other things in our family. I am so sad that my family didn't know about celiac disease even though they took pretty good care of themselves. Who knows, maybe they wouldn't have suffered so much. I have had my rheumatoid baseline done but by that same doctor that did my celiac testing. I was on prednisone at the time, and it probably wasn't a fair reading.

So I am basically looking for a doctor that will be able to do blood work and read it properly, be aware of joint diseases and possibly test for them, will actually listen to my concerns and hopefully be able to help me continue to reclaim and be preventive with my health. I am luckily very healthy otherwise that I know of, but would like to avoid all many severe health problems as I can in the future.

Thanks for listening or reading rather and....Anyone have any advice?

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebee28 Newbie

I am a 35 year old L.A. native in desperate need of finding the right doctor in Los Angeles. I have severe allergies and asthma and after being on antibiotics 6 times in 2009 and almost 7 months of prednisone into last year, I said enough was enough. It was time to reclaim my health!

Last year I started researching what could really be making me sick and came across gluten intolerance and celiac. Thank God for some of the books out there and this website! :)

Needless to say, like many people have found as it seems, there was a lack of information especially in the medical world. I asked all of my doctors- my allergist finally said maybe it was causing my health issues, but would not test me. He seemed not to know enough about it.

I went to a general med doctor who was recommended as "specializing" in celiac and he went ahead and did the testing even though I had been gluten-free for about a month. I of course didn't test positive to celiac, but absolutely know I am gluten-intolerant and always have been. I have been gluten-free for about 8-9 months now and notice such a difference. I only had to be on antibiotics and steroids once or twice this last fall/winter and I am happy to say that my asthma is under control. It is shocking to me how much better I feel- I'm still kind of angry I didn't figure this all out before.

Anyway, the reason, I so desperately need to find the "right" doctor is that I have developed tendonitis in the last year and discovered I am Vitamin D deficient and have an elevated iron level. I have gone to two different doctors for the tendonitis-the current one, an orthopedic surgeon is ridiculously unhelpful.

We have a history of rheumatoid arthritis and osteoporosis as well as diabetes, cancer and I'm sure some other things in our family. I am so sad that my family didn't know about celiac disease even though they took pretty good care of themselves. Who knows, maybe they wouldn't have suffered so much. I have had my rheumatoid baseline done but by that same doctor that did my celiac testing. I was on prednisone at the time, and it probably wasn't a fair reading.

So I am basically looking for a doctor that will be able to do blood work and read it properly, be aware of joint diseases and possibly test for them, will actually listen to my concerns and hopefully be able to help me continue to reclaim and be preventive with my health. I am luckily very healthy otherwise that I know of, but would like to avoid all many severe health problems as I can in the future.

Thanks for listening or reading rather and....Anyone have any advice?

I've had problems my entire life, and doctors did not have an answer. After being horribly sick, I happened to meet Dr. Tamara Smith and did a consult with her. She listened and asked questions that were relevant, and even expected certain symptoms and asked about them before I even told her. She ran blood tests, I tested positive to celiacs, the beginning of hashimotos thyroid, low adrenals, low hormones, malnourished, candida, chronic fatigue, and allergic to 27 different foods. She knew exactly what tests to be run. I tested normal for hormone and thyroid by other doctors, even though it runs in the family and I clearly am off. I found out that every other doctor ran the wrong tests or didnt know how to read them. She is in Santa Monica if you google her name her contact will come up. She listens and types notes and reccomendations during the office visit and prints them out for you, she spent an hour or more with me at our first meeting. Nothing goes undiscussed! Be prepared to talk about everything that goes into and out of your body lol. She rocks. Im in my early 20's, female, thin, I thought I ate healthy for my body. Every other doctor looked at me and said it was in my head or that they didnt know what was wrong. I wish I found her sooner, I am so much better and getting better every day.

beebee28 Newbie

I am a 35 year old L.A. native in desperate need of finding the right doctor in Los Angeles. I have severe allergies and asthma and after being on antibiotics 6 times in 2009 and almost 7 months of prednisone into last year, I said enough was enough. It was time to reclaim my health!

Last year I started researching what could really be making me sick and came across gluten intolerance and celiac. Thank God for some of the books out there and this website! :)

Needless to say, like many people have found as it seems, there was a lack of information especially in the medical world. I asked all of my doctors- my allergist finally said maybe it was causing my health issues, but would not test me. He seemed not to know enough about it.

I went to a general med doctor who was recommended as "specializing" in celiac and he went ahead and did the testing even though I had been gluten-free for about a month. I of course didn't test positive to celiac, but absolutely know I am gluten-intolerant and always have been. I have been gluten-free for about 8-9 months now and notice such a difference. I only had to be on antibiotics and steroids once or twice this last fall/winter and I am happy to say that my asthma is under control. It is shocking to me how much better I feel- I'm still kind of angry I didn't figure this all out before.

Anyway, the reason, I so desperately need to find the "right" doctor is that I have developed tendonitis in the last year and discovered I am Vitamin D deficient and have an elevated iron level. I have gone to two different doctors for the tendonitis-the current one, an orthopedic surgeon is ridiculously unhelpful.

We have a history of rheumatoid arthritis and osteoporosis as well as diabetes, cancer and I'm sure some other things in our family. I am so sad that my family didn't know about celiac disease even though they took pretty good care of themselves. Who knows, maybe they wouldn't have suffered so much. I have had my rheumatoid baseline done but by that same doctor that did my celiac testing. I was on prednisone at the time, and it probably wasn't a fair reading.

So I am basically looking for a doctor that will be able to do blood work and read it properly, be aware of joint diseases and possibly test for them, will actually listen to my concerns and hopefully be able to help me continue to reclaim and be preventive with my health. I am luckily very healthy otherwise that I know of, but would like to avoid all many severe health problems as I can in the future.

Thanks for listening or reading rather and....Anyone have any advice?

Also, if you are going to get tested to celiacs you must eat gluten a day before the test so your body will make the antibodies to show up in the blood work! Hope that helps :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,804
    • Most Online (within 30 mins)
      7,748

    ems08
    Newest Member
    ems08
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.