Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Done Today


wow89

Recommended Posts

wow89 Rookie

I got a celiac panel done today, food allergies, along with thryoid and glucose. Pleased with new dr. she leaned more toward thyroid, but thought I was on the right track wiht the celiac... since I glutened this weekend my heart keeps "popping" I guess that's a palpitation ;) and feeling fuzzy/out of focus and weak.

If it's not gluten then I don't know what the heck is wrong... feeling frustrated. IF it is gluten it means I've had this for about 20 years, cause that's when it ALL (tummy troubles) started.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Wow89, have you been gluten free for a while? If you have then i'm sorry to say that you have a very good chance of the blood tests coming back negative. I hope you get the answers you need.

wow89 Rookie

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

ravenwoodglass Mentor

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

Please don't assume that if the test is negative that it isn't celaic. My doctors doing so cost me many, many painful years. When you are done with testing no matter what the results do give the diet a good strict trial.

wow89 Rookie

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

wow89 Rookie

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

kareng Grand Master

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

I had that when I was severly anemic. I think because the blood can't carry enough oxygen so your heart tries to pump more. Have you been checked for iron, ferritin, B12, D?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

Symptoms can really vary a lot. I also had a worsening in symptoms around the time of my periods, well until celiac put me in early menapause. The delayed D is fairly common for us. Also what you think are tummy viruses may actually be celiac symptoms. I am glad to hear you are going to give the diet a good strict try. I hope you have quick results, and you may with the D, but some of the other stuff may take longer to resolve. Do get your iron, ferritin and vitamin levels checked also.

wow89 Rookie

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

ravenwoodglass Mentor

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

You should make sure you are taking the sublingual form of B12 supplements as you may not absorb the pills you swallow until you are fully healed.

annabella Newbie

I had a blood test on Wednesday, but am also told that it could be negative as I've been gluten-free for a few weeks now. Did you get your results yet?

wow89 Rookie

Anabella - no test results yet? How about you? Waiting waiting waiting... It's just gotta be the gluten too much makes sense now!

I've been gluten free for a few days and am feeling lots better. My vitamin had wheat in it, changed to a sublingual B12 and and feeling better in all those aspects too. I used to also get sick after cleaning house, always thought it was because my hubby was germy - now I read cleaners have gluten.. could it be?

If it is positive I could have had this for 10-15 years!!! or more, I remember being constipated as a child a lot... is that a memory lots of kids have??? ;)

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

ravenwoodglass Mentor

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

Yes taking B12 will skew the results and so will taking folate as it can give a reading that is higher than it really is for the B12. I don't think the eggs will. Just tell your doctor what supplements you are taking before the doctor tests your levels.

Not all vit E is wheat derived some is soy derived and there are other sources.

The best way to find out about the foundation's source is to call the company and ask. Not all of us would be concerned about the source in foundation. As long as it doesn't contact any mucous membranes in your eyes, nose or mouth and you wash your hands well it might be okay. If in doubt use something else until you feel better and then see if starting up with it again causes any issues.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

    4. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    5. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Her results only showed greater then 100 which over 10 is considered positive.  But American standards still recommend the endoscopy to confirm.  And the Dr explained to us both the European and American standards and asked us what we wanted to do.  We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it
    • Scott Adams
      My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.