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Hello, I Have Celiac Disease. Can I Play?

bridgeofsighs

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bridgeofsighs Apprentice
bridgeofsighs
Posted

Hi everyone! I'm a 26 year old male from the Columbus, Ohio area.

I've been lurking around on this forum for a few months now, but never felt like i should get too involved with posting until i was certain that i had a problem with gluten. I knew that when i stumbled on this website and started reading about Celiac's disease, that i had a good lead on possible answers to why i was suffering from a slew of psychosomatic symptoms (depression, anxiety, ADHD, excessive mood changes, brain fog, fatigue/lack of energy, mild to severe abdominal discomfort and irregular bowel movements) that were negatively affecting my quality of life. Upon learning of Celiac and/or gluten intolerance, i decided it couldn't hurt to cut it out of my diet (along with dairy) for a few days just to see what the result would be. Well, to my surprise, after just a couple of days, i started to notice a drastic improvement. After a week or two, i got a taste of what it felt like to feel normal again. Amazing! From that point i was pretty certain that i had a problem with gluten, but needed to know for sure if it was Celiac or just a gluten intolerance. So i set up an appointment with my doctor in hopes to get tested for Celiac disease. He ordered me up some blood tests, virtually no questions asked. Anyways, to cut to the chase after all that rambling, the blood test results came back positive for Celiac Disease. Not exactly a comforting thing to hear, but at least i have the answer and hopefully now i can get on the right track to a healthier and happier tomorrow.

I look forward to becoming a regular participant of this forum and continuing to learn all i can about this disease.

All the best,

Derek

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kareng Grand Master
kareng
Posted

Welcome, Freshmeat Derek!

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the family. I am glad you got such good results so quickly. Sometimes there can be some ups and downs at first but we are here to help in any way we can.

Soapmommy Newbie
Soapmommy
Posted

Hello, my 13yo son has adhd and down syndrome. I became concerned with gluten issues because of concerns on how they were negatively effecting him. The food was easy for me but finding gluten free soaps lotions, and other bath products was a hunt for the needle in a hay stack, so I started making my own products for him, which turn in to me starting my own natural bath n body company. His skin is so much better but I am confident with the levels of previously untrace gluten from skin care products. Now that he is getting older i have to do more negotiation on the food but I have more wiggle room because I know for a fact that he get no gluten for unwanted sources.

Hi everyone! I'm a 26 year old male from the Columbus, Ohio area.

I've been lurking around on this forum for a few months now, but never felt like i should get too involved with posting until i was certain that i had a problem with gluten. I knew that when i stumbled on this website and started reading about Celiac's disease, that i had a good lead on possible answers to why i was suffering from a slew of psychosomatic symptoms (depression, anxiety, ADHD, excessive mood changes, brain fog, fatigue/lack of energy, mild to severe abdominal discomfort and irregular bowel movements) that were negatively affecting my quality of life. Upon learning of Celiac and/or gluten intolerance, i decided it couldn't hurt to cut it out of my diet (along with dairy) for a few days just to see what the result would be. Well, to my surprise, after just a couple of days, i started to notice a drastic improvement. After a week or two, i got a taste of what it felt like to feel normal again. Amazing! From that point i was pretty certain that i had a problem with gluten, but needed to know for sure if it was Celiac or just a gluten intolerance. So i set up an appointment with my doctor in hopes to get tested for Celiac disease. He ordered me up some blood tests, virtually no questions asked. Anyways, to cut to the chase after all that rambling, the blood test results came back positive for Celiac Disease. Not exactly a comforting thing to hear, but at least i have the answer and hopefully now i can get on the right track to a healthier and happier tomorrow.

I look forward to becoming a regular participant of this forum and continuing to learn all i can about this disease.

All the best,

Derek

Skylark Collaborator
Skylark
Posted

Welcome to the exclusive online rice and potatoes club, Derek!

bridgeofsighs Apprentice
bridgeofsighs
Posted
  • Author
:D I lol'd, thank you for the warm welcome, ladies!

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    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
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