Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It All In My Head?


julie041092

Recommended Posts

julie041092 Newbie

Hi guys,

So I'm in college right now, and even though Ive met time after time with the food supervisors here, there has not been much improvement on my options in the dining hall. I've basically been sick constantly since Ive been here, and all Ive been eating is greens with lemon juice and olive oil, plain grilled chicken breast, and fruit. Ive been more careful than ever,but my symptoms arent going away! My roomate thought that maybe it's all a psychological thing, which I think it could be. Since I've been glutinized so many times before, I think I have this mentality that EVERYTHING will have gluten in it, and its a lost cause. If I try to be more optimistic and not worry so much about it, maybe my system will get back to normal... its just not fun having constant diarrhea when sharing a bathroom with everyone in my residence hall. =[ Is it possible that its just all in my head, and Im just convincing myself that everything has gluten in it? (Btw.. I have been gluten-free for only about 5 months so is this a common thing for newbies?) I appreciate ANY responses!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you allowed to have a fridge and microwave in your room? If you are that might be the best way to go. I doubt this is in your head and you are likely getting CC'd at the dining hall or some other way. Have you checked all supplements and meds you take? Are you avoiding dairy? We often need to until we have healed. I hope this resolves soon for you as it can't be easy to keep your grades up while you are still so ill.

Cypressmyst Explorer

Its not in your head. People just don't take this stuff seriously. It is absolutely maddening! If you can not extract yourself from the situation then keep working on the food, see if you can get a meeting with the Chancellor to see if he/she would be willing to get the ball rolling for you. You are a pioneer and what you do now will pave the way for all the rest of the people with gluten issues who will surely come after you.

:hugs:

It is awful to be sooooo good and get CC'd anyway! Little else makes me so angry. Ruffles naturals potato chips got me a few days back and my gut still hasn't fully recovered. -_-

Anyway, we are here for support anytime you need it!

Skylark Collaborator

Ugh. That doesn't sound any fun. It's not likely in your head, but gluten may not be the whole story. A condition called fructose malabsorption can cause D. It's sort of like lactose intolerance but caused by fructose. If you're eating a lot of fruit, that might set it off.

This might help you figure out if that's going on.

Open Original Shared Link

Della88 Newbie

Here is the problem with cafeteria's.

You do not know what is cooked with or in what.

Meaning if you are overly sensitive then lets say they cook chicken in the same pan they cooked chicken fingers in or on the same grill and they touched and you eat the chicken.. Boom your going to react to the gluten.

It sounds like your system is really sensitive. And I know this sucks but put your food down, go see the Dean or head of the school and explain your case.

There could be small traces of gluten in dressings, sauces, additives and on grills, pans, fryers.

For Example. MacDonalds always claimed their fries were gluten and in fact they actually are, with that said though.. What they forgot to indulge is that they also cook their fries in the same greece or oil as they cook their chicken fingers.... and the bread on the chicken fingers has gluten in it.

So the gluten goes into the oil on the fries and you get sick..

Its that easy.

Stick to lettuce, greens, fruit. Try to find a few things in the gluten free section you can also nibble on like, gluten free cereal, granola snacks, crackers, these type of things you can keep in your room and if you can invest in a mini fridge you can get gluten free salad dressing, some lettuce, vegies and fruits to help tie you over.

Sorry thats the best help I can give.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.