Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It All In My Head?


julie041092

Recommended Posts

julie041092 Newbie

Hi guys,

So I'm in college right now, and even though Ive met time after time with the food supervisors here, there has not been much improvement on my options in the dining hall. I've basically been sick constantly since Ive been here, and all Ive been eating is greens with lemon juice and olive oil, plain grilled chicken breast, and fruit. Ive been more careful than ever,but my symptoms arent going away! My roomate thought that maybe it's all a psychological thing, which I think it could be. Since I've been glutinized so many times before, I think I have this mentality that EVERYTHING will have gluten in it, and its a lost cause. If I try to be more optimistic and not worry so much about it, maybe my system will get back to normal... its just not fun having constant diarrhea when sharing a bathroom with everyone in my residence hall. =[ Is it possible that its just all in my head, and Im just convincing myself that everything has gluten in it? (Btw.. I have been gluten-free for only about 5 months so is this a common thing for newbies?) I appreciate ANY responses!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you allowed to have a fridge and microwave in your room? If you are that might be the best way to go. I doubt this is in your head and you are likely getting CC'd at the dining hall or some other way. Have you checked all supplements and meds you take? Are you avoiding dairy? We often need to until we have healed. I hope this resolves soon for you as it can't be easy to keep your grades up while you are still so ill.

Cypressmyst Explorer

Its not in your head. People just don't take this stuff seriously. It is absolutely maddening! If you can not extract yourself from the situation then keep working on the food, see if you can get a meeting with the Chancellor to see if he/she would be willing to get the ball rolling for you. You are a pioneer and what you do now will pave the way for all the rest of the people with gluten issues who will surely come after you.

:hugs:

It is awful to be sooooo good and get CC'd anyway! Little else makes me so angry. Ruffles naturals potato chips got me a few days back and my gut still hasn't fully recovered. -_-

Anyway, we are here for support anytime you need it!

Skylark Collaborator

Ugh. That doesn't sound any fun. It's not likely in your head, but gluten may not be the whole story. A condition called fructose malabsorption can cause D. It's sort of like lactose intolerance but caused by fructose. If you're eating a lot of fruit, that might set it off.

This might help you figure out if that's going on.

Open Original Shared Link

Della88 Newbie

Here is the problem with cafeteria's.

You do not know what is cooked with or in what.

Meaning if you are overly sensitive then lets say they cook chicken in the same pan they cooked chicken fingers in or on the same grill and they touched and you eat the chicken.. Boom your going to react to the gluten.

It sounds like your system is really sensitive. And I know this sucks but put your food down, go see the Dean or head of the school and explain your case.

There could be small traces of gluten in dressings, sauces, additives and on grills, pans, fryers.

For Example. MacDonalds always claimed their fries were gluten and in fact they actually are, with that said though.. What they forgot to indulge is that they also cook their fries in the same greece or oil as they cook their chicken fingers.... and the bread on the chicken fingers has gluten in it.

So the gluten goes into the oil on the fries and you get sick..

Its that easy.

Stick to lettuce, greens, fruit. Try to find a few things in the gluten free section you can also nibble on like, gluten free cereal, granola snacks, crackers, these type of things you can keep in your room and if you can invest in a mini fridge you can get gluten free salad dressing, some lettuce, vegies and fruits to help tie you over.

Sorry thats the best help I can give.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    731049
    Newest Member
    731049
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.