Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac/gluten Intolerance And Blood Tests

divamomma

Recommended Posts

divamomma Enthusiast
divamomma
Posted

Would a positive blood test occur with gluten intolerance or ONLY with celiac disease?

Do people with gluten intolerance usually have all negative tests but respond to a gluten-free diet?

Would you say with a positive blood test and positive response to a gluten-free diet that it is celiac disease?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

those are all very tuff questions- especially considering that many doctors dont even know how to answer them.

it might be easier to dissect your tests if i saw which antibody tests were taken and what the numbers were.

it IS confusing because i think an official Celiac dx is just ONE aspect of Gluten Intolerance- i think Gluten can cause a VAST amount of inflammatory and autoimmune diseases.

sorry if i didnt truly answer your question...

mushroom Proficient
mushroom
Posted

As cassP says, you will get different answers to this question depending on who you talk to. Many doctors are still of the opinion that if you don't test positive for celiac disease you can continue to eat gluten without worry. Many (more enlightened in my book) doctors, recognize that there is such a thing as non-celiac gluten intolerance; i.e., that celiac tests are measuring one particular form of gluten intolerance, and that there are other forms that we have not yet devised tests to measure.) And yes, these people whom the tests identify as negative most often respond positively to the gluten free diet.

A positive celiac blood test and biopsy occur only with celiac disease because that is what they have been devised to measure. There are currently no specific tests to measure non-celiac gluten intolerance, although researchers have identified specific genes (non-celiac genes) that are associated with gluten intolerance. MRI's can pick up UBO's (Unidentifed Bright Objects) in the brain which produce symptoms that can mimic MS, but have been traced as reactions to gluten. There are no tests to associate most neurological reactions (like ataxia, migraines, etc) with gluten, but we know that if you stop eating gluten these things often go away.

If you are truly gluten intolerant your symptoms will usually go away in the absence of gluten, unless you have developed (due to leaky gut syndrome) additional food intolerances that your body is reacting to. This may require additional detective work to identify the offending food(s).

If you have tested positive for celiac, and your symptoms go away with a gluten free diet, then you are officially identified as a celiac. (Now, some doctors require a positive biopsy to confirm this diagnosis :o ; a positive response to the diet is not enough for them :rolleyes: )

Skylark Collaborator
Skylark
Posted

Would a positive blood test occur with gluten intolerance or ONLY with celiac disease?

Do people with gluten intolerance usually have all negative tests but respond to a gluten-free diet?

Would you say with a positive blood test and positive response to a gluten-free diet that it is celiac disease?

Based on this new study, I would say anyone with a positive blood test and a response to the diet has celiac disease.

Open Original Shared Link

Gluten intolerance looking more and more like an inflammatory reaction to gluten. That reaction is thought to be the trigger that eventually develops into celiac in some people. In others, it looks like just the inflammatory reaction alone is enough to cause intolerance and make them feel sick from gluten.

mushroom Proficient
mushroom
Posted

Based on this new study, I would say anyone with a positive blood test and a response to the diet has celiac disease.

Open Original Shared Link

Gluten intolerance looking more and more like an inflammatory reaction to gluten. That reaction is thought to be the trigger that eventually develops into celiac in some people. In others, it looks like just the inflammatory reaction alone is enough to cause intolerance and make them feel sick from gluten.

Very interesting link, Skylark. Thank you!

divamomma Enthusiast
divamomma
Posted
  • Author

Thanks, that's what I thought.

jammom123 Newbie
jammom123
Posted

I'm new to the forum and am loving the exchange of information, thank you all of you! A couple of questions regarding testing of family members. I was diagnosed with DH and subsequently Celiac in September 2010. My dad had several autoimmune diseases, my brother was diagnosed with Celiac in December 2010.

1. Should all of my siblings and all three of my children have the initial blood test?

2. Can a blood test show negative but you can still have Celiac?

3. Are chronic migraines/headaches a possible indicator of Celiac?

Your thoughts would be appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Yes to all three questions!

Sunshine411 Newbie
Sunshine411
Posted

I have been tested for celiac disease & have been on a gluten-free diet for over a month now. We have to wait a week still to get my results back. I have some questions if that's okay.

1. Why do most of your family need to get tested for celiac?

2. How come when I drink powerade my stomach gets upset?

3. Why does it take so long to get diagnosed with celiac disease?

4. The doctor said that if something the blood test was high enough then I don't have to get a biopsy done. If that's true then how do you get diagnosed?

Thanks for reading & I would love some reply's

shopgirl Contributor
shopgirl
Posted

1. It's a genetic disease.

2. It's full of sweeteners and other things that aren't good for you. It's possible you could also have a problem with fructose but it's likely that it just disagrees with you.

3. The American medical system isn't known for its expedience. Everything takes a long time.

4. You were diagnosed. By the blood test. If your numbers are off the chart, the biopsy to confirm is unnecessary. Since you've been gluten-free for so long, the biopsy results would be suspect anyway. You need to be actively consuming gluten for accurate tests

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,075
    • Most Online (within 30 mins)
      7,748
    Amy1620
    Newest Member
    Amy1620
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.