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Happyw5

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Happyw5 Explorer
Happyw5
Posted

I am still waiting on some resluts, however, my allergist called with these so far...

Gluten IGA---NORMAL

Grade 1 allergy to wheat and egg

Positive allergy to NUTS--(he is now going to find out which ones)I already know peanut

High antibodies to thyroid hormone (that is why I am itchy)--We will discuss options for this after all other results are in..

Should I go gluten free or just wheat free?

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missy'smom Collaborator
missy'smom
Posted

It looks like your blood test for gluten was incomplete, if it was a blood test. It should be a panel with several tests and it should be done before you go gluten-free.

Your allergy results are similar to my son's. We did have a celiac panel done and it was neg. To give us further clarity we opted for Enterolab testing. In the near future we are considering gene testing as well.

Finding out more about the thyroid may help you decide about the gluten. If you end up with autoimmune thyroid problems that would point to celiac disease and gluten being an issue not just wheat.

Homestly, with my son's wheat allergy test pos. we considered wheat VS gluten, but there are few things that are wheat-free but not gluten-free, the difference meaning including barley or not. I felt like it was just as easy to go gluten-free. The only things I've come across that were wheat-free but not gluten-free were 2 kinds of cookies and miso and barley itself and 1 salad dressing. I just feel like you don't get to include that many extra things in your diet by being wheat-free, not gluten-free.

Happyw5 Explorer
Happyw5
Posted
  • Author

My Dr said that they were still waiting on other tests, so hopefully those include the rest of celiac testing. I was eating gluten on and off for a while and then the week before the test I ate as much wheat as I could.(I tend to fall asleep right after I eat it, so mostly at night, since I have five little kids)

My mom and my sister both have hypothyroidism and my brother has epilepsy, and my other sister has unexplained infertility, and now my dad has type 1 diabetes. I think my family all has a problem, but noone wants to try the diet with me.

My only thought on gluten vs wheat, would be oats...Do you think that would be ok?

missy'smom Collaborator
missy'smom
Posted

Mainstream oats are proven to be significantly cross-contaminated with wheat so are not recommended for Celiacs or people with wheat allergies. Mainstream products that contain oats usually don't use certified gluten-free oats in them because of the cost. Certified gluten-free oats are available and special precautions have been in place in the growing, harvesting, shipping and processing, storage etc. to ensure no cross-contaimination with wheat.

As for your Dad with T1, please see my post on this thread for the link between T1 and celiac disease and the recommendation for testing.

cassP Contributor
cassP
Posted

My Dr said that they were still waiting on other tests, so hopefully those include the rest of celiac testing. I was eating gluten on and off for a while and then the week before the test I ate as much wheat as I could.(I tend to fall asleep right after I eat it, so mostly at night, since I have five little kids)

My mom and my sister both have hypothyroidism and my brother has epilepsy, and my other sister has unexplained infertility, and now my dad has type 1 diabetes. I think my family all has a problem, but noone wants to try the diet with me.

My only thought on gluten vs wheat, would be oats...Do you think that would be ok?

u could do Bob's Red Mill CERTIFIED gluten free rolled oats, or oat flour, Udi's has a gluten free Oat granola, and right now im eating gluten free flavored oatmeal (forgot the brand) with no ill effects.

wow- looking at your family- all these genes are SO related!!!! i really wish our medical system was up to date on Gluten Intolerance- it's so frustrating how sick some of our families are and how they're not being screened- why would they listen to us and then try to fight their doctor for a test???

UGH

from everything ive been reading- People with Autoimmune Disease are more likely to have antibodies to gluten than the normal population. in my family- ive got Celiac & Hashimoto's Hypothyroid, mom's got Hashimoto's, Dad- Psoraisis (and im assuming Celiac).

cousins with Thyroid issues, an Aunt with "Crohns or IBS" (im saying Celiac). AND- u meantion Epilepsy-> my cousin i just found out has been having PARTIAL seizures her whole life- from ASPARTAME!! even if she chews gum with aspartame- half her head & face seizes up... she's dx with wheat & dairy allergy, but no celiac testing yet.

good luck figuring out what you're doing- and getting the family tested

ravenwoodglass Mentor
ravenwoodglass
Posted

My only thought on gluten vs wheat, would be oats...Do you think that would be ok?

Do as another poster mentioned stick with gluten free oats when you try it. However some of us react to even gluten free oats so wait until you are well healed and then eat some daily for a week and watch for a reaction.

Happyw5 Explorer
Happyw5
Posted
  • Author

The whole aspertame thing scares me alot... I have vertigo and Some nights it feels like my bed is shaking, but it's me. I almost feel like it's a seizure, and with my brothers epilepsy it scares me... I wonder if that happens when I have a diet pepsi before bed. I will have to start paying attention.

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