Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Process For 4 Year Old?

StephHappens

Recommended Posts

StephHappens Rookie
StephHappens
Posted

I was just diagnosed (positive blood work and positive endoscopy) right before the new year. My gastroenterologist said my mom and daughter should be tested. My daughter is just about to turn 4. What is the process to get a 4 year old tested? My husband doesn't want her to have to get blood drawn. Should we do it now or wait to see if she has symptoms?

What was the process for those of you with younger children?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

There is no other way. She will need to have the blood test for celiac. This is a good time to do it because she is on a gluten filled diet. I believe it is recommended to have them done once a year. It is better to catch it early.

Most children are not too afraid of getting blood drawn. I am more afraid than my son.

salexander421 Enthusiast
salexander421
Posted

Did you have any genetic testing done? If you did you could have your daughter tested to see if she carries the same gene as you. I believe some do it with a cheek swab. If she carries the same gene/genes as you then I would go ahead and suggest the celiac panel. If she does not carry the same genes as you then she most likely does not have celiac. There are people that have celiac with out carrying the classic celiac genes but I think it's only like 5% of people with celiac, so very small chance. Hope that helps!

divamomma Enthusiast
divamomma
Posted

My daughter (also 4) had bloodwork and a scope/biopsy. She has no problems with either.

Roda Rising Star
Roda
Posted

Both my kids do fine getting their blood drawn. My youngest son(6) has been screened twice Two years apart and was neg on blood testing after I was dx but just 2 months ago was positive. My oldest has been screened three times and all neg but the numbers are slowly inching up. He will probably be gluten free soon since his allergist feels that he is either celiac that is not showing up on blood work or at least gluten intolerant. I'm probably going to get a referral to a GI soon so for now he is still eating a regular diet.

StephHappens Rookie
StephHappens
Posted
  • Author

Ok. Thanks. I think my husband is more scared of having blood drawn or seeing blood drawn. He almost passes out every time. I might have to take her. She isn't showing any signs, but I didn't either at her age. I think mine became active right after she was born. She has an appt on Friday. Fingers crossed all goes well.

mushroom Proficient
mushroom
Posted

Ok. Thanks. I think my husband is more scared of having blood drawn or seeing blood drawn. He almost passes out every time. I might have to take her. She isn't showing any signs, but I didn't either at her age. I think mine became active right after she was born. She has an appt on Friday. Fingers crossed all goes well.

No need to worry. Nurses/phlebotomists know how to deal with young children, and it really is a relatively painless procedure. If you wanted to prepare her, you could practice tying something around her arm above the elbow so she will get used to the feel of it and explain to her that they do this to make it easier. There are a lot of people who cannot stand the sight of blood/faint upon seeing it. It is not at all uncommon and your husband should not feel embarrassed about it, just accept it. (And he doesn't have to look when they draw his blood :D )

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


irish daveyboy Community Regular
irish daveyboy
Posted

Journal of Pediatric Gastroenterology & Nutrition 12th Jan 2011.

Objective:

Small intestinal histology is the criterion standard for the diagnosis of celiac disease (celiac disease).

However, results of serological tests such as anti-endomysium antibodies and anti-tissue transglutaminase antibodies (tTGA) are becoming increasingly reliable.

This raises the question of whether a small intestinal biopsy is always necessary.

The aim of the present study was, therefore, to investigate whether a small intestinal biopsy can be avoided in a selected group of patients.

Conclusion:

Pediatric patients with a tTGA level

salexander421 Enthusiast
salexander421
Posted

Journal of Pediatric Gastroenterology & Nutrition 12th Jan 2011.

Objective:

Small intestinal histology is the criterion standard for the diagnosis of celiac disease (celiac disease).

However, results of serological tests such as anti-endomysium antibodies and anti-tissue transglutaminase antibodies (tTGA) are becoming increasingly reliable.

This raises the question of whether a small intestinal biopsy is always necessary.

The aim of the present study was, therefore, to investigate whether a small intestinal biopsy can be avoided in a selected group of patients.

Conclusion:

Pediatric patients with a tTGA level

Lunabell Apprentice
Lunabell
Posted

I am considering getting the genetic testing done for my 6 year old. It would take a team to hold her down for a blood draw and at this point in her life, she has zero symptoms. Getting the genetic test is a compromise. It is painless for her and will let us know how much we should worry about testing her.

I did have my 10 year old tested. She is disabled and cannot talk, nor does she show pain until it is dire. She has always had some digestive issues, so we decided we needed to know for sure. She was negative, but we will keep an eye on her.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748
    731049
    Newest Member
    731049
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.