Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cheating In The Wee Hours


Guest Zmom

Recommended Posts

Guest Zmom

Although we do not keep anything with gluten in the fridge, sometimes my son getsup at 430 and sneaks oj (alllergic to citrus) and I caught him with his head in the freezer a couple of months ago with the cover to the icecream off.

I started to get the mega jugs of oj as a deterant but some weeks its like a game with him. I can't keep ketchup or hot dogs in the fridge. Can't go to the bathroom when he is eating-a couple of days ago there was half a bottle of ketchup on his eggs-the other half was on his face. Sometimes its obvious and he denies it until I check his breath... It doesnot happen everyday but it gives him loose stools and if it has any sugar he is out of control the whole day.

Can't say i am always the best example. I told my son to tell me NO milk Mommy if he sees me put milk in my coffee. Its hard and I understand wanting to rebel against the diet as I have been on it since march, but I am worried that he might end up with some of my health problems when he is older.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pixiegirl Enthusiast

Well isn't the easy answer not to buy those things... I'm guesing you like your OJ but hey, its your childs health.

My daughter at 6 months old was found to be allergic to dairy, wheat, peanuts, nuts, and soy. I was determined to nurse her and I did, for 2 whole years and I couldn't eat any of those things either, as they would get in my breast milk and bother her. Once she was old enough to get into the frig we made sure we didn't buy those things, they are kids so they can't really understand the concept of their heatlh down the line.

I know it doesn't seem fair but such is life. My daughter is now almost 14 and although she has outgrown some of the food issues, we don't keep the foods on hand that would cause her problems, of course now she wouldn't eat them anyways... but still. What we do for our kids!

Best...

Susan

KaitiUSA Enthusiast

I would have to say that you should not buy it anymore.

If you have to have your orange juice maybe you could get a mini fridge and keep it in a room that he can't get into but it should not be in the house if he can get to it. It's just not worth having your child sick.

If he is craving orange juice though maybe there is something in it that he is missing in his diet. Is he on a multi vitamin?

Guest Zmom

OJ is a low allergy food (1) on my sons rast allergy list and is supposed to be rotated. Its tough. We have three completely different medically related diets in the family. Two completly different sets of allergies and We do not have room for another fridge.

Guest nini

it's gotta be tough having three different medically necessary diets in the house, but it can be worked around. Have you met with a nutritionist to maybe help you plan meals and snacks so that they are healthy and safe for all the special dietary requirements and maybe just having to only slightly alter them for the individual needs?

What specifically are the dietary restrictions? Most if not all can be easily worked around a diet of organic, whole, unprocessed foods. Food in it's form most closest to the way nature intended it is always the healthiest. And for many common allergens there are very easy substitutes.

Also, with a four year old he is testing limits. I went through an episode with my daughter where she would snatch gluten laden cookies from friends at school when she knew she wasn't supposed to have them. (she was four at the time)... it's also more difficult for them to understand that they aren't supposed to have something especially if it is readily available either at home or school.

One of the biggest things for my daughter has been finding things that she CAN have safely, and stock up on them and let her have those things whenever she wants them, within reason of course. If someone offers her something she shouldn't have and she really wants it, I have to be able to offer her a even more enticing goodie that she can have.

Ultimately, you are going to have to start teaching him to be responsible about his diet, and it's easier to start small when they are little and make it fun and easy for him to grasp. Get creative. You can do it. :D

connole1056 Rookie

I think it is normal for a child to do sneaky things like your child is doing. It probably does not have to do with the diet, more likely that he is testing you and his limits. I do not think it is unusual for some people to cheat. I am not saying it is a wise choice, but I do know some people who have made it nonetheless. It must be hard to see the reaction though, no matter what the reason he is sneaking food. There are locks you can put on you fridge. That is drastic though (obviously).Have you disciplined him after you caught him? Maybe taken away a favorite toy for a short time?

I do not believe in keeping food out of the house because then the child does not learn there will be challenges outside the home. I think it is important for people to learn there will times they have to make tough decisions about their diets. I see it as a learning experience. My daughter learned from age four when she was diagnosed that there would be times she would have to go without. I make every effort to have gluten-free substitutes for her when we are out, but there are times this isn't possible. Since she has had foods at home she cannot eat she is used to making do, rather than cheating/sneaking food. I think if we had only gluten-free food at home she would expect it to be like that everywhere, and that is not always the case. It certainly is not easy, but with a little discipline he will learn. I think this is why my daughter is disciplined in the other areas of her life as well. Her discipline regarding the diet has carried over to almost every other thing she does. I am very proud of her for that.

Guest Zmom

My son is great with telling people/school friends what he can't eat and turning down foods. He had never taken any gluten even when offered.Teachers have told me this.

I think this is just a testing limits thing. He probably eats healthier than 99% of other kids. We have a nutritionist,allergist, gastroenterologist, nurse practioner + and a Dr. and nurse in the family.

This post has caused more stress than help. I appreciate everyones response . Can I end this thread?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Lucy

I understand how you feel. My diabetic son is caught sneaking foods. We keep all food types in the house. I don't think you need to keep that food out. That is life. My (now 3 year old, birthday yesterday) son just got ahold of a bag of peanut M&Ms yesterday. His blood sugar was soaring thru the roof.

Just take it in stride. Do the best you can, and YOU CAN come here just to vent.

It sounds to me like you have it tough, with all the allergys. Good luck.

KaitiUSA Enthusiast

The only way to get rid of a thread is for Scott to remove it.

pixiegirl Enthusiast

I'm sorry Zmom that this thread is causing you stress... I certainly didn't mean to do that and I enjoy reading everyone's ideas on these various issues, I don't always agree with them but they are interesting to me.

I do understand the people who say we keep the stuff in the house because our kids have to learn to do without or read labels or whatever. But with my daughter, her peanut allergy is so severe that until she got older we just couldn't take the chance. She can't even eat in the lunch room at school, just the peanut oil in the air from sandwiches causes a reaction with her. If, when she was very young, she would have eaten any peanuts she could have easily died even with an epi pen. We just were not willing to take that chance with a young child, now that she is a teenager she is very good at reading labels and what not... but at 4 or 5 year old... no way!

So every situation is different, all of our dietary issues and households are different and each of us has to make the decisions that work for our families. I hope because some people may have different ideas then yours you don't get offended, again we all have to make our own decisions.

Best to all,

Susan

Guest nini

I was just trying to be helpful :( , I hope my post didn't contribute to the stress :huh:

chasesparents Rookie

I don't know what kind of OJ you drink, but I would buy the individual bottles and count them, so that you can monitor if any are missing and so he would think twice before taking one.

cdford Contributor

Been there, done that. Ours was eleven and knew how to be really sneaky. We finally had to have the whole household go gluten-free. It was the only way to get it under control. That does not help when she is at a friend's house or even at the grandparents, but it sure makes life at home easier. We also have multiple diets here and try to stay within what we all can handle. It just makes life easier for the whole family.

Guest Zmom

Sorry i was so defensive I know everyone on this site understands the stress of special diets. I can't imagine how hard it is for people dealing with celiacs AND lifethreatning allergies.

Guest nini

Sweetie, it's easy to be defensive. Most of us are used to years of having to defend our somewhat "odd" behavior and "obsession" with food. I know in my case I get the most defensive when I really don't want to hear what people are telling me. For years it was obvious that I had a problem with wheat, but I refused to listen to those closest to me telling me I needed to cut wheat out of my diet. Even after having a kinesiologist tell me that I tested positive for a wheat sensitivity I still refused to listen. I didn't want to give up my Krispy Kreme donuts or Sausage Biscuits and gravy! (stubborn I know)

none of us here can truly know what your situation is. Only what you share here, so our attempts at help are at best educated guesses.

pixiegirl Enthusiast

Celiac and life threatening allergies... well it was stressful in the beginning but in my book you do what you have to do and now we have it down pretty well. I do worry when we go to new places or on vacation but we are really careful and the drill is just part of our lives.

Best to all,

susan

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748

    Cbear
    Newest Member
    Cbear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.