Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official I Had My Endo And Colonoscopy Today!

okieinalaska

Recommended Posts

okieinalaska Apprentice
okieinalaska
Posted

The prep was no fun but I made it through and had both a colonoscopy and endoscopy today. All the docs and nurses were super nice (I go to the military hospital) and some were very funny. I remember being hooked up and the nurse saying they were putting in the stuff to make me sleep and then I woke up back in my "room". I felt so good, nothing hurt. For some reason I was sure they had forgot to do my endoscopy I felt so good, LOL.

The doc was able to tell me right then that I had Celiacs. But he also took 8 samples and they are being sent to the lab. I got a cool printout with color photos of everything so I get to see what it looks like. On my paperwork it says:

"There was diffuse duodenal smoothness, loss of villi, fissuring and scalloping of the mucosa that was endoscopically consistent with celaic spure-duodenum."

"Severly atrophic mucosa was found in the 2nd portion of the duodenum."

"Mildy erythematous mucosa was found in the antrum and body of the stomach."

I also had a polyp in my stomach they removed and two in my colon. They are sending those to the lab.

I came home and took a nap for 5 hours.

It's such a relief to finally know and now I can start feeling better! By the way, tomorrow is my 42nd birthday! Happy Birthday to me. :lol: I get the gift of feeling a whole lot better!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf-soph Apprentice
gf-soph
Posted

Congratulations! It's so nice to have a clear answer, and great that you are feeling fine afterwards.

divamomma Enthusiast
divamomma
Posted

I am glad you found some answers! Now the fun begins LOL! Good luck :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Happy Birthday. Now you know for sure and hopefully you will have lots of healthy and happy gluten-free birthdays in the future.

shopgirl Contributor
shopgirl
Posted

Aw, pictures to hang on the refrigerator! :) I wish I'd gotten pictures.

Happy birthday and congratulations. Imagine how much better you'll feel for your next birthday.

LDJofDenver Apprentice
LDJofDenver
Posted

And, you're one of the lucky ones. There's no doubt (no negative or borderline blood work, etc.).

You know definitively what you've got and you know what you've got to do. Honestly, there's something to be said for knowing. For me, it was a relief after years (OK, decades) of NOT knowing what the heck was wrong with me.

Here's to your healing! Hip Hip

okieinalaska Apprentice
okieinalaska
Posted
  • Author

I 100% agree LDJofDenver. I am very greatful to be sure. That was one reason I wanted to keep eating gluten even though it took me 7 weeks from blood work till my endoscopy. I knew that if I knew there was damage to my intestines and saw it/heard it for myself, that would help me to be totally gluten free.

On that note, I was making the bc gluten-free brownies and accidently sprayed the pan with the baking PAM, the one that has FLOUR in it! Yikes! I threw the pam away and had to find another pyrex pan to put the brownies in!

The brownies are pretty good btw. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Looking for answers Contributor
Looking for answers
Posted

I love your positive outlook. It will serve you well on your path to wellness.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.