Hashimoto's Thyroiditis?

[Simona19]

Hi!

I have my results from my Neurologist. Everything came out ok, except few things.

He tested me for:

cryoglobulin - NEGATIVE,

RPR - NONREACTIVE,

Lupus ANTICOAG EVAL - NON DETECTED,

PTT SCREEN - 36 REF. RANGE <OR 40 - NEGATIVE,

HEXAGONAL PHASE- DID NOT REPORT ,

DRVT SCREEN- DID NOT REPORT,

DNA AB (DS/NATIVE) <1 REF. RANGE <=4 NEGATIVE,

CARDIOLIPIN AB (IGG, IGM):ANTI CARDIOLIPIN IGG <10 - NEGATIVE,

ANTI CARDIOLIPIN IGM <10 - NEGATIVE,

THYROGLOBULIN AB <20 REF. RANGE <20 - NEGATIVE,

HEPATITIS PANEL W/RPX - NONREACTIVE,

LYME DISEASE AB, SCREEN 0.36, REFERENCE RANGE O.OO TO O.90 - NEGATIVE

SS-A & SS-B (SJOGREN'S) <1.0 REFERANCE RANGE <1.0 - NEGATIVE

MYELIN ASSOC GLICOPROTEIN TEST (IGM) <1:1600 NEGATIVE, REF. RANGE <1:1600

POSITIVE:

SED RATE 34 , REF. RANGE 0-20 - HIGH

THYROID PEROXIDASE AB 75, REF. RANGE <35 - HIGH

B12, FOLATE 386 , REF. RANGE 200-940 - LOW?

FOLATE SERUM >24.O, REF. RANGE >5.4 HIGH

I would like to ask you, if anybody knows about the thyroid peroxidase. I checked online, and it is related to Hashimoto's thyroiditis. It is autoimune disease. I would like to ask you, if you need to take any medicine for it. If yes, than what kind because I can't have nothing with gluten, or milk- lactose(casein allergy)in it.

My B12 seems to be on the lover end. Folate serum is high. Anybody knows what this means?

Thank you.

[ravenwoodglass]

I don't know much about the thyroid so someone else will have to answer that. As to the folate and B12, with a high folate that can make your B12 reading even higher than it really is. Are you taking a supplement with folate? If so you might want to let that go for a while. You should be taking a sublingual B12 if you are not already. That should help with energy and nerve related issues.

[Simona19]

I don't know much about the thyroid so someone else will have to answer that. As to the folate and B12, with a high folate that can make your B12 reading even higher than it really is. Are you taking a supplement with folate? If so you might want to let that go for a while. You should be taking a sublingual B12 if you are not already. That should help with energy and nerve related issues.

Hi!

I'm taking only one tablet from the multi vitamin from Nature Made where is B12 6mcg which is 100% of daily value. I think that B12 is included in every multi vitamin. Shouldn't my body eliminate extra, if don't need it? Maybe I'm wrong. In the results from Lab was written: Some people can experience neurological changes,if there B12 levels are between 200-400. Mine is 386. Isn't that low? I don't need suplements?

What is sublingual B12. It is the liquid form? I'm not sure.

Thank you for your reply. Your answers are always helpful to me.

[cassP]

your TPO antibodies are elevated- which could suggest Hashimoto's. im not an expert on it yet. i have been diagnosed. i HAVE read that they can be elevated in people temporarily or have it not go into full Hashimoto's... but i might be skeptical about that.

FOR SURE- you should have a full Thyroid Panel done- all of it: T4 free, Total T4, T3, Free T3, T3 uptake, & TSH. did u already do this??? did i not look at your results enough? also be aware- that you could have a TSH of 4 (which is "within range")-but it probably suggests you're already hypothyroid. especially IF you DO have Hashimoto's- then your TSH should be around 1 or 2.

your B12 is TOO low. you need to take sublinguals or injections- then test it again- i would THINK it would be a good idea to try to get it into between 650 and whatever the upper limit number is.

oh, so medicine for TPO-> 1st u should get the thyroid panel done- and then see an endocrinologist- you may have to be put on Thyroid meds. like any other meds you'll need to call the company to check gluten-free status.

i take Synthroid & Cytomel (T4 & T3) as prescribed by my Endo. both are gluten free, but have corn, and lactose.

i also (on my own) started eating a FEW brazil nuts everyday- (for the selenium)- this is supposed to calm & lower those TPO antibodies. but be careful- brazil nuts have so much selenium, you could actually overdose.

[Simona19]

your TPO antibodies are elevated- which could suggest Hashimoto's. im not an expert on it yet. i have been diagnosed. i HAVE read that they can be elevated in people temporarily or have it not go into full Hashimoto's... but i might be skeptical about that.

FOR SURE- you should have a full Thyroid Panel done- all of it: T4 free, Total T4,

T3, Free T3, T3 uptake, & TSH. did u already do this??? did i not look at your results enough? also be aware- that you could have a TSH of 4 (which is "within range")-but it probably suggests you're already hypothyroid. especially IF you DO have Hashimoto's- then your TSH should be around 1 or 2.

your B12 is TOO low. you need to take sublinguals or injections- then test it again- i would THINK it would be a good idea to try to get it into between 650 and whatever the upper limit number is.

This test was done in December. In August 2010 my T4 was 1.1 ref. range 0.8 - 1.8 and T3 wasn't tested. ????

Just now I was going trough my results, and I discovered something. In September my doctor tested me for T4 - 1.4, ref. range 0.8-1.8,

T3 - 418, ref. range 230-420,

thyroid ab, thyroglobulin <20, ref. range <20 and

thyr- peroxidase A <10, ref. range <35

In December 2010 my thyroid peroxidase was 75. This means that my thyroid isn't working? I have the symptoms of the Hashimoto's thyroid. I told that to my doctor many times, but everything was normal.

Every blood work was normal. Now it isn't. I don't know, if I should be happy that finaly is something wrong with me, or sad because something is bad. I'm just posting my results over and over because I don't have any diagnose yet. I will see my regular doctor on Tuesday. I hope that he will finaly give me "good" news.

[cassP]

Hi!

I have the results from my blood work. These things wore elevated. I don't know what they mean.

I posted this at the different forum, but nobody reply back about the thyroid issue. I'm trying here.

SED RATE 34 , REF. RANGE 0-20 - HIGH

THYROID PEROXIDASE AB 75, REF. RANGE <35 - HIGH

B12, FOLATE 386 , REF. RANGE 200-940 - LOW?

FOLATE SERUM >24.O, REF. RANGE >5.4 HIGH

I would like to ask you, if anybody knows about the thyroid peroxidase. I checked online, and it is related to Hashimoto's thyroiditis. How dangerous is this? Do I need to take any medicine for it? If yes, than what kind because I can't have nothing with gluten, or milk- lactose(casein allergy)in it. What is safe? I need help with this.

hey, i just replied on your other thread. im a little confused- so your doctor tested for TPO antibodies, but not a full Thyroid panel?

im not an expert on how serious your number at 75 is. it's obviously out of range and indicates Hashimoto's. it is possible that some in the past have corrected this with Selenium and a Gluten free diet- BUT you REALLY need to be under the care of an Endocrinologist. you need to be properly evaluated- and they need to decide what meds to start u on-. they need to do a full thyroid panel- and they need to see a copy of this record of your TPO antibodies-> just in case your thyroid numbers are all "in range"- it will help your doctor to see that your antibodies are out of range and you may still need meds. you could have a TSH at 4 (within range)- and yet really it should be at a 1 or a 2.

i hope this makes sense, please get back to your doctor- to completely evaluate this. it can be a little more serious than trying to supplement yourself. im pretty sure most of the meds are gluten free (my synthroid & cytomel brand names are gluten-free, but contain corn & lactose). i THINK Levoxyl is gluten-free and lactose free.

just get back to your doc, and tested and get on the right meds- try to get them to start you off on low doses!!!! the adjustment period can be a bit much.

plus you're only at a 75-> maybe it can be reversed, i really dont know. i was at 512. i am on meds, but also experimenting with eating a few brazil nuts everyday. i just read a study that said doing this for a year can GREATLY bring down those TPO antibodies.

ok, good luck!!!

[cassP]

This test was done in December. In August 2010 my T4 was 1.1 ref. range 0.8 - 1.8 and T3 wasn't tested. ????

Just now I was going trough my results, and I discovered something. In September my doctor tested me for T4 - 1.4, ref. range 0.8-1.8,

T3 - 418, ref. range 230-420,

thyroid ab, thyroglobulin <20, ref. range <20 and

thyr- peroxidase A <10, ref. range <35

In December 2010 my thyroid peroxidase was 75. This means that my thyroid isn't working? I have the symptoms of the Hashimoto's thyroid. I told that to my doctor many times, but everything was normal.

Every blood work was normal. Now it isn't. I don't know, if I should be happy that finaly is something wrong with me, or sad because something is bad. I'm just posting my results over and over because I don't have any diagnose yet. I will see my regular doctor on Tuesday. I hope that he will finaly give me "good" news.

wow, ok... i am NO doc... but my best guess is that since your t3 & t4 "look" really good, and your TPO just recently went from low/in range up to 75-> it would be my guess that maybe your Hashimoto's JUST started- which would be great! it could mean very little medication and not YEARS of nondiagnosis & anxiety that i went thru. so wait, where's your TSH ??? that's their big number they go off of and a classic indicator.

**ALSO- when did your symptoms start? sometimes we feel the symptoms before the numbers look off

[Simona19]

wow, ok... i am NO doc... but my best guess is that since your t3 & t4 "look" really good, and your TPO just recently went from low/in range up to 75-> it would be my guess that maybe your Hashimoto's JUST started- which would be great! it could mean very little medication and not YEARS of nondiagnosis & anxiety that i went thru. so wait, where's your TSH ??? that's their big number they go off of and a classic indicator.

**ALSO- when did your symptoms start? sometimes we feel the symptoms before the numbers look off

I checked my papers and only TSH I saw was done on June 22, 2010, but any thyroid hormones. TSH was 0.65 ref. range 0.34-4.82

At least 4-5 years I had symptoms of Hashimoto's thyroiditis, but everything was always "perfect". As I see, nobody did propper job. The doctors always ordered only one, or two things and told me I'm ok. Why?

I always was, or had:

[cassP]

I checked my papers and only TSH I saw was done on June 22, 2010, but any thyroid hormones. TSH was 0.65 ref. range 0.34-4.82

At least 4-5 years I had symptoms of Hashimoto's thyroiditis, but everything was always "perfect". As I see, nobody did propper job. The doctors always ordered only one, or two things and told me I'm ok. Why?

I always was, or had:

[glutenmik]

Hi, I am new to this post and new to being gluten free, but....not new to hashimoto's. I have had it since 2000. I never liked or felt good on synthroid. In fact I had more anxiety on it than when I wasn't taking it. I switched to Armour a few years ago and about a year ago they ran out of armour. I went back on synthroid and had such aches in my body that I couldn't take it anymore. I went back to my doctor and he sent me to the medicine shop to have them make armour for me. I also just saw on glutenfreedrugs.com that synthroid is no longer claiming a gluten free status on their pills. As for all you are going through right now...you should keep changing doctors till you find one that will help you. That is what I had to do for years. A lot of doctors won't give Armour either. It really changed me. I hate hashimotos and I am really hoping that going gluten free will really help me. I don't know for sure if I have celiac or not. I got back a positive gene test, but had a negative blood test. I do know however that hashimoto's is linked to celiac. I hope you get all of the help you need. Be sure to keep pushing because you will find someone who will listen to you and not look at the numbers.

Mikki

[Simona19]

omg!! im so frustrated for u!!! my best friend is going thru the same thing- she's had all those symptoms & more (except the S.O.B.-> which has actually been my worst symptom). and like you- all her numbers are perfect- yours & hers TSH are perfect. so why do you guys have all the symptoms??? so frustrating- EXCEPT- you DO have the elevated TPO which has to mean something!!!

i would bring your results back to your doc- and make sure you cover your TPO at 75 & bring a list of all your symptoms ( i did this with my Endocrinologist- and she actually made a copy for her records). also ask if maybe your pituitary or your hypothalamus (Forget which) is not working up to speed and therefore isnt pumping out the TSH. idk??

good luck!!!!

I'm sorry for asking many question, but so far you are the only one who can answer them for me. It also look like you now what I'm talking about.

I want to tell you a small story.

About month ago my mother found one post in The Star Ledger. It was about Hyponatremia- low sodium in your body. The reason why she showed me that was that I was (still today) eating a huge amounts of salt. Ones I even put salt on very salty potato chips. The doctor wrote there that you can have trouble with adrenal gland (It was negative for me), pituary gland, liver disease - ok, kidney disease - ok, only small kidney stone and congestive heart failure - always negative on every test for heart problems.

I did check the pituary gland online. Pituary gland will control also the diuretic hormone which is my problem. I feel like I might have the problem with the pituary gland.

I will go to bathroom many times and a lot, but I wouldn't drink any water which is strange. I don't have diabetes - they checked many, many times, but nothing. I will be dizzy, fainting all the time, sleapy, weak. Soone I will eat my potato chips (I will eat them until my mouth is burned from so much salt), I'm better, my mind will clear, I'm energized,and I can work.

Right now I look for anything to resolve my issues because my doctors didn't find the reason why I have all this symptoms. With the help ot this forum I'm trying to find the reason for it. Ach!! Thank you all for your help.

[cassP]

oh, i dont know anything about the salt stuff & the pituitary... i DO know that people who'se thyroid isnt working right may crave ridiculous amounts of salt- as i do... in fact ive actually been ABUSING salt since ive been on meds... not sure why.

what else- i actually went to my Endo today- and she is fantastic. i asked her about yours & my bff's situation- i asked her: "what would you do with a patient who had ALL the Hypo symptoms, but their thyroid numbers were perfect?" she then said that she would test for the TPO antibodies- and if they were elevated, she would try them out on meds.... she said only if they had both- because the symptoms can mimic other conditions, but if the patient also had the antibodies- she would try the meds and monitor them.

hope you get somewhere!!!!

[mommida]

Hashimoto's can be hard to diagnose, and usually diagnosed at the point you need to be on meds for the rest of your life. As your immune system raging war on your thyroid, your thyroid kicks out everything it can to survive. During this time your thyroid can actually be overactive from the test results,, but you are still dead dog tired, dry skin, hair falling out and your face and neck are puffing like a balloon. I went through symptoms for ten years before being diagnosed. I've been on daily meds for over 15 years now.

Your vitamin B12 is low. There is no none side affects from "over dosing", the body is believed to flush any extra amounts. Sublingual supplements (disolve under the tongue or cheek) are thought to be as effective as the injections. You should get the methylcellulose process instead of cyanocobalamin better absorbtion and less cyanide for your body.