Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching


Kryptonite

Recommended Posts

Kryptonite Apprentice

hope everyone is doing well,

has anyone ever been itchy after being gluten free for 3 years,it seems to come and go.no rash or bumps or anything.legs,knee,arms,head, and face.could it be dry skin.also could celiacs develop other gi issues even though we are gluten free. such as ibs.

thanks for your time :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Are you saying that the rash developed after three years gluten free, or you have had it for three years?

I had lots of rashes and itching from other food intolerances for as long as two years until I traced them all down. The two main culprits were soy and potatoes.

Kryptonite Apprentice

Are you saying that the rash developed after three years gluten free, or you have had it for three years?

I had lots of rashes and itching from other food intolerances for as long as two years until I traced them all down. The two main culprits were soy and potatoes.

hi mushroom,thanks for your post,no rash at all it started april 2010,along with some gi issues that seem to be the same as ibs.gastro said it is gastritis.

thanks any thoughts

rain Contributor

hi mushroom,thanks for your post,no rash at all it started april 2010,along with some gi issues that seem to be the same as ibs.gastro said it is gastritis.

thanks any thoughts

I don't have any advice but feel like I should reply since I'm actively dealing with a rash that has become severe over the last year.

If it is dry skin (which I know a lot about and perhaps you do to) there are straightforward ways to determine this: try a humidifier (assuming you're in cold climate now), try different moisturizers, moisturize before completely drying off from the shower - this helps the lotion absorb better, moisturize before sleeping and eat more good oils, flax seed oil is particularly good. And the other obvious things, drink less caffeine, soda, fried foods and drink more water, eat fresher foods. You should see a definite improvement in a fairly short time.

On the other hand if it's a new food intolerance then I'm not so sure.

good luck.

Kryptonite Apprentice

I don't have any advice but feel like I should reply since I'm actively dealing with a rash that has become severe over the last year.

If it is dry skin (which I know a lot about and perhaps you do to) there are straightforward ways to determine this: try a humidifier (assuming you're in cold climate now), try different moisturizers, moisturize before completely drying off from the shower - this helps the lotion absorb better, moisturize before sleeping and eat more good oils, flax seed oil is particularly good. And the other obvious things, drink less caffeine, soda, fried foods and drink more water, eat fresher foods. You should see a definite improvement in a fairly short time.

On the other hand if it's a new food intolerance then I'm not so sure.

good luck.

thanks rain for your reply,i hope you feel better soon,i cant quite figure it out,just had complete blood work done and all is fine.also had ultrasound on gallbladder that was fine and liver looked ok to that was done in nov 2010.just trying to find the cause of the itching and upper abdominal discomfort.

any thoughts are welcome,thanks

mushroom Proficient

After you went gluten free, did you have a relatively uneventful course for three years before developing the itching and abdominal discomfort or were there some continuing problems?

Kryptonite Apprentice

After you went gluten free, did you have a relatively uneventful course for three years before developing the itching and abdominal discomfort or were there some continuing problems?

hope this is not a double post sorry if it is,in short fine for 3 years then this stuff started,blood work fine and ultrasound on gallbladder fine and liver looked fine to.tests done in late nov and early dec 2010.

i am stumped.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

That is a bit of a stumper :unsure: I would still be inclined to suspect an additional intolerance and based on experiences on board (and my personal experience) it could possibly be soy. I don't know how much soy you consume but it does replace gluten in a lot of gluten free products and we tend to consume more of it when we give up gluten. Give soy elimination a trial and cut out most processed foods for a while and see if it makes any difference. For years I had so many itchies, with and without rashes, it was hard to whittle them all down. Nightshades are another possible source of itching.

shopgirl Contributor

Unfortunately, it come be something completely random. I itch if I eat strawberries. No rash, no hives, no other issues. Just all over itching. I'm okay with any other fruit. Could you start subbing out things that you eat regularly one at a time?

Kryptonite Apprentice

That is a bit of a stumper :unsure: I would still be inclined to suspect an additional intolerance and based on experiences on board (and my personal experience) it could possibly be soy. I don't know how much soy you consume but it does replace gluten in a lot of gluten free products and we tend to consume more of it when we give up gluten. Give soy elimination a trial and cut out most processed foods for a while and see if it makes any difference. For years I had so many itchies, with and without rashes, it was hard to whittle them all down. Nightshades are another possible source of itching.

hi mushroom, thanks for your reply, i will do some your suggestions,i will keep you posted,if anything else comes up that you can think of let me know. thanks for your time :D

Kryptonite Apprentice

Unfortunately, it come be something completely random. I itch if I eat strawberries. No rash, no hives, no other issues. Just all over itching. I'm okay with any other fruit. Could you start subbing out things that you eat regularly one at a time?

hi shopgirl,its gets harder and harder as time goes on with celiac,i eat to a T and still get these weird things going on.i guess it is all part of the game.i will watch my food that i take in a see if that helps.

thanks,i will keep pushing along.

mushroom Proficient

It also helps, while your body is in such a reactionary state, not to eat too much of any one thing. I know this is easier said than done when one's diet is so restricted to start with, but I made myself intolerant to citrus by eating too much of it. I hope I get that one back soon - love my mojitos and maragaritas :D It's been 18 months now. Might challenge this summer.

jerseyangel Proficient

I'm thinking maybe another intolerance too. I remember after I went gluten-free, I began to itch. No redness or rash but lots of itchiness. It wasn't too long after going on the diet, though.

At that time, I began to react to a lot of things--other foods, although those caused mostly GI symptoms. The other things were chemical--scents and things in cleaning and topical products. I had to switch to unscented--laundry detergent, fabric softener, personal care products. That helped quite a bit.

Also, cool showers--not too hot, I found helpful. If I did sweat, it felt like little pinpricks all over.

Good luck sorting it all out--it's a real process sometimes.

Kryptonite Apprentice

It also helps, while your body is in such a reactionary state, not to eat too much of any one thing. I know this is easier said than done when one's diet is so restricted to start with, but I made myself intolerant to citrus by eating too much of it. I hope I get that one back soon - love my mojitos and maragaritas :D It's been 18 months now. Might challenge this summer.

hi mushroom,

thanks for your input,i will do that not eating alot of one thing,that could be hard as we know. hope you can have your drinks soon again. :D

thanks i will keep you posted.

Kryptonite Apprentice

I'm thinking maybe another intolerance too. I remember after I went gluten-free, I began to itch. No redness or rash but lots of itchiness. It wasn't too long after going on the diet, though.

At that time, I began to react to a lot of things--other foods, although those caused mostly GI symptoms. The other things were chemical--scents and things in cleaning and topical products. I had to switch to unscented--laundry detergent, fabric softener, personal care products. That helped quite a bit.

Also, cool showers--not too hot, I found helpful. If I did sweat, it felt like little pinpricks all over.

Good luck sorting it all out--it's a real process sometimes.

hi shopgirl,

thanks for the info,i will check these items out,shower time is hard now to take a cool shower,its cold temps here and will be for awhile,its not a really hot shower,but its nice and warm.

yeah its a process alright lol.

thanks,i will let you know how things go.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.