Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here Need Help


mylilcappi

Recommended Posts

mylilcappi Newbie

hi,

i have just been dx barring an biopsy.

i am wondering about so many things, but right now i am wondering about vitamin e. i want to take fish oil, and i have been using Carlson's fish oil liquid. But it has vitamin e in it. Aren't we supposed to stay away from vitamin e? tocepherols?

Thanks very much,

mamie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Actually E is one of the vitamins Celiacs are often deficient in.

The only reason to avoid E would be if you are intolerant of Soy.

There is non-soy derived vitamin E but many Vitamin E's are Soy cause it is cheap I think.

I think what you may be referring to is if E is derived from wheat germ.

In the US, it would have to be labeled as containing wheat if that were the case.

mylilcappi Newbie

Actually E is one of the vitamins Celiacs are often deficient in.

The only reason to avoid E would be if you are intolerant of Soy.

There is non-soy derived vitamin E but many Vitamin E's are Soy cause it is cheap I think.

I think what you may be referring to is if E is derived from wheat germ.

In the US, it would have to be labeled as containing wheat if that were the case.

thank you.

So you are basically saying that in the U. S. if Vitamin E were on the label, then it would have to be labeled as coming for "wheat". like for instance, i just drank some oj that has a little vitamin e in it. But it just states vitamin e. So it should have said derived from wheat?

i'm still learning, and so confused about many things..

Mamie

shopgirl Contributor

No, in the U.S., if it is derived from wheat, then it must clearly be labeled. If it isn't labeled as deriving from wheat, then it doesn't contain wheat. If it just says topcopherols or Vitamin E, it's fine.

In the U.S., wheat must be labeled on the package.

mylilcappi Newbie

Thank you.

Mamie

ravenwoodglass Mentor

thank you.

So you are basically saying that in the U. S. if Vitamin E were on the label, then it would have to be labeled as coming for "wheat". like for instance, i just drank some oj that has a little vitamin e in it. But it just states vitamin e. So it should have said derived from wheat?

i'm still learning, and so confused about many things..

Mamie

In the case of orange juice I do think it would have to say derived from wheat. In vitamins and supplements however the labeling laws are different. In the case of supplements it is best to call the maker and ask.

FarmCat Newbie

I'd like to clear up a misconception I commonly see on these boards. The US laws that require food manufacturers to clearly label allergens DO NOT APPLY to vitamins or to medications. If your vitamins or meds say 'starch', it could be wheat starch. I Googled this and found the following sources:

Open Original Shared Link

Since the Food Allergy Labeling Consumer Protection Act (FALCPA) does not apply to medications, drug companies are not required to put allergy warnings on their labels. The lack of an allergy warning doesn't guarantee a lack of allergens in a medication.

Open Original Shared Link

The Food Allergen Labeling Consumer Protection Act (FALCPA) was passed by the Food and Drug Administration (FDA) in 2006 to require manufacturers to identify the use of the top eight allergens. These allergens are eggs, dairy, soy, tree nuts, peanuts, fish, shellfish, and wheat. Unfortunately, vitamins fall under the category of


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,075
    • Most Online (within 30 mins)
      7,748

    Amy1620
    Newest Member
    Amy1620
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.