Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Purpously Eating Gluten.


Conal

Recommended Posts

Conal Newbie

Have been off gluten for approx 6months now, the effects of this were apparent from day 1, no headaches, no more blurrred vision, no more anxeity, no more extreme tiredness, It felt to me like what cocanie probably feels like, i had never felt that awake/alive before.

Since i never had a proper test done, my doctor recently told me to eat gluten for a week, then get a blood test to get a definative result.

Have been eating gluten for the past few days now, and the same old effects are very apparent, So im %99 sure that my body reacts to gluten, my gut is on fire right now.

Is it worth continuing to eat gluten in order to the test done sice im already 100% sure gluten not good for me? Also will eating gluten for a week damage my gut very much?

Thanks, Conal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

A week is likely not long enough for anything to show up in your blood work. Usually we have to be back on it for at least a couple months and even then we can have a false negative. The week is letting you know that your system doesn't want gluten but to get a positive test you have to go much longer to redamage yourself enough to possibly show it. The choice whether you want to do that is up to you. You don't however need your doctors permission to eat gluten free.

GFinDC Veteran

Have been off gluten for approx 6months now, the effects of this were apparent from day 1, no headaches, no more blurrred vision, no more anxeity, no more extreme tiredness, It felt to me like what cocanie probably feels like, i had never felt that awake/alive before.

Since i never had a proper test done, my doctor recently told me to eat gluten for a week, then get a blood test to get a definative result.

Have been eating gluten for the past few days now, and the same old effects are very apparent, So im %99 sure that my body reacts to gluten, my gut is on fire right now.

Is it worth continuing to eat gluten in order to the test done since im already 100% sure gluten not good for me? Also will eating gluten for a week damage my gut very much?

Thanks, Conal

There is on way to know for sure how much damage you will get except to keep eating gluten and find out. Probably a week won't be a big problem. Not fun but not a killer.

IF it makes you sick tho does it really matter what the doctor or anyone else calls it? To some people it does, but for me that isn't important. If you want to participate in clinical trails they will usually ask if you are a biopsy proven celiac. The usual recommendation I have seen is for a biopsy you should eat gluten for 2 to 3 months to have a good chance of an accurate result.

salexander421 Enthusiast

Me and my 2 daughters are undergoing a gluten challenge right now. Their GI said to do it for 3 months. If it weren't for my kids or other family members I probably would not care whether I have a diagnosis or not. But I feel that it's necessary for my children and possible grandchildren to know if this is in their family. Plus, my dad has some of the same issues as me and would take it a lot more seriously if he knew I had it so I'm also doing it for him.

If you don't feel that you need a diagnosis for yourself or anyone else than I say just do the diet. But, if you feel yo do want a diagnosis then a week most likely will not be long enough.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,916
    • Most Online (within 30 mins)
      7,748

    Cassr
    Newest Member
    Cassr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Pamela Kay
      Glad this helped. There are lots of alternative breads out there, so someone has likely made some sort of paleo bread with no grain. And if you bake, experiment with some of the alternative flours to see what you can come up with. If you commit to the gluten-free diet 100%, you may want to do a bit of research on some of the tricker aspects of getting gluten out of your diet, such as cross contamination in the home kitchen (pots and pans, cutting boards, toaster, airborne flour). Don't feel you have to do everything at once, or let this overwhelm you. I've always said that going gluten free is a process, not a moment. The reason I mention this is that, if you think you are gluten-free, but still having symptoms, you may realize that even minute amounts of gluten cause a reaction for a while. Let me know if you have any questions.  Pam
    • Scott Adams
      The doctor was correct--if you are gluten-free the blood panel for celiac disease will not work, you would need to go on gluten challenge in order to be tested. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      It could, but it could also mean that gluten still not being fully eliminated. It's important to get a celiac disease blood panel to help figure this out. For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions that can cause damaged villi:    
    • jeffpine
      Some Mod asked me about blood tests. Dr said no need, nowhere to go as I am gluten-free alreay. He threw around terms like: TTG  2P DQH. not sure if it relates to gluten-free but he removed a polyp in 2022 and will recheck in 27. so my conclusion is that I am mostly gluten-free but not strict. Much obliged, Jeff
    • Cilla Panagiotidis
      When the small intestine does not heal, does that indicate refractive celiac
×
×
  • Create New...