Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Psychological Effects


mandigirl1

Recommended Posts

mandigirl1 Enthusiast

first of all, thank you to everyone that responded to my message about eating the same food over and over.....its great to have a website like this so one celiac can help another celiac. Thanks for the great advice and general support.

I have another topic to mention and this concerns celiac and depression. Ever since diagnosed with celiac, I was never the same. My whole life changed. I went through the anger, the poor me phase, to binge eating. I have been obssessing about food and my weight since the day I started the gluten-free diet. :angry:

I started to get depressed right after being diagnosed. I felt at times so overwhelmed with anxiety. My doctor put me on Prozac and Wellbutrin. It saved my life! It allowed me to get through the day. I am a 4th grade teacher and as you can imagine have lots of stress. In the beginning (of being diagnosed) I used to cry in the morning on my way to work and ask myself, how am I going to get through the day???? The pills worked wonders. It helped me to deal with my lifestyle change and I was really happy! :P

I take Wellbutrin to counterreact the sexual side effects of the Prozac (loss of libido in particular). Its a great mix!!!! Ive been on it about 6 years......maxed out on doses.....dont get that"high" happy feeling anymore, or silly giddiness and hyperactive behavior. Now its just part of my daily routine/diet. It just helps me to "be" and relax more. Along with Celiac and depression came anxiety, binge eating, excessive exercising in the gym to "erase" consuming a ton of calories, and obsessing about food every single day:

Not a day goes by, where I do not ask myself: What am I going to eat today?

I lost alot of my desire to enjoy food. Now I basically eat because I HAVE to. Usually my mom or boyfriend....yes boyfriend!!!!! will prepare meals/cook for me or get me to eat healthy. If it were up to me I would just eat peanut M&Ms all day. I would just eat a non-filling/unhealthy/"quick fix food (popcorn, rice cakes with peanut butter was a serious addiction, rice pudding, almonds, sugar pops cereal, just to name a few). and a TON of it too!!!!!!! :o

I still get into "moods", and experience brain "fog" without eating gluten, and the feeling of being tired all the time. Yes I am a teacher (in a good NYC public school) and its normal to be tired. However, even not at work, on vacations or now, during summer without the responsibilities, I am TIRED ALL THE TIME. And usually have unrestful sleep at night. :(

Do other celiacs feel this way?

Is anyone else on anti-depressants?

Any advice or suggestions?

I really appreciate it!!!!!!!! (I just joined this site) :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Hey, I live in NYC, also! I'm only 14, but I feel like I have a handle on this diet and I'd love to help you, as well. If you give me a slightly more specific location (neighborhood) I can help you a little more. There are some AMAZING gluten-free bakeries and restaurants downtown (most exclusively or nearly exclusively gluten-free) and there's a restaurant on the Upper West Side just started its gluten-free menu, including maybe ten pasta dishes, homemade bread, brownies, etc. I live on the Upper East Side, so I know most of the health food stores in the area (and the owners, lol :lol: ). There are numerous Whole Foods spread out and some have a gluten-free bakery inside. If you want help with any product replacements (i.e. a good gluten-free pizza or bagel, etc.) ask away here or e-mail me...

Oh, about those restaurants, lol...they're with the GFRAP ( Open Original Shared Link ) and are now catering to the celiacs as a result of the hard work of those people--the list constantly updates, so it's good to have. And here's a post I made on gluten-free in NYC:

Open Original Shared Link

and some more on it...

Open Original Shared Link

I'm not advocating that you eat out, every meal :lol: ...quite the opposite. But if you find that you're eating m&ms and rice cakes, but you just have no idea what to eat, there are options in NY and we should take advantage of them when necessary. Like I said, e-mail if you need anything--support, product recommendations, help specifically w/ gluten-free in nyc...

Diosa Apprentice

It's hard *not* to be food obsessed when first diagnosed. I know I am to a certain degree (diagnosed a few weeks ago). I know that feeling of your world crashing around you, the whole how #$%@@#$ unfair it is, and the what do I do now and how do I eat. You are not alone. :)

I cope by making a meal plan for the week, and just making that. It's simple foods really, stuff that I found in my old WW and low carb cookbooks, and some stuff found online. I'm trying not to obsess so much with food, but try to enjoy what I make. I basically eat meats and veggies, but am trying to get some semblence of fruit back in my diet (even though I hate the stuff) just for the variety.

If you ever want to talk, PM me or any of the greeat people on here. They all understand. Also, check around here, because there are lots of gluten-free recipes posted on here. :) Down in the recipe section tarnelberry posted some amazing ones!! *hugs* (if you want them)

watkinson Apprentice

Hi mandigirl1,

I would thouroughly, completely, absolutely encourage you to try taking daily omega 3 fatty acids. You can eat salmon or tuna several times a week and add flax meal to gluten-free breads, cereals, or yogurt (if you can eat dairy) Or you can take it in pill form. Whole foods sells a good gluten-free kind.

Why do this? There is tremendous data available on why our bodies deperalty need it. You can google it or check out different books. (the omega 3 connection is brilliant) Studies show that our bodies are meant to have a balance between the good fats and bad fats. about a 6 to 6 ratio. But that our society is raging with so many bad fats and almost no good fats that we now have a ratio of about 22 to 1. <_<:(

Studies also show that getting these fats back on line can improve all the workings of our bodies including the brain. Making problems like bi-polar disease, ADHD, and depression improve so drastically that some people are cured.

My daughter is bi-polar. She started taking high levels of omega 3 about a month ago through her docotr. She (and the rest of the family) have already seen improvement! :) She says she can tell she feels better. :)

Let us know if it works, it may take a few months,

Wendy

celiachap Apprentice
Hi mandigirl1,

I would thouroughly, completely, absolutely encourage you to try taking daily omega 3 fatty acids......

Very informative posting, Wendy.

Since I rarely eat fish, I take Nordic Naturals Omega 3 - their "Ultimate Omega" capsules. I only take one a day, rather than the recommeded two, becuase they are very potent. They are available in Vitaminshoppe's stores and website.

Open Original Shared Link

Studies of how Omega 3 can benefit children with various difficulties:

Open Original Shared Link

I also eat a lot of Mary's Gone Crackers (original) which contain organic flax seeds that are rich in Omega 3 fatty acids.

skbird Contributor

Oh, I love Mary's Gone Crackers originals!!! Those are DELICIOUS! I got a non-gluten-free friend hooked on them this past weekend...

Omega 3s is a great idea. Helps me a lot. I take fish oil, flax oil, and flax meal on a daily basis. I also eat salmon at least weekly and usually wild caught Pacific salmon. I have noticed a lot of improvements in my mood and how I"m feeling.

Stephanie

beelzebubble Contributor

it always makes me sad when i see these kinds of posts. i DO have issues with food obsession. you can't help it when you have to scrutinize everything you eat. but, i have no problem with food choices or variety. food can be fun-even gluten free food :). you just have to open your mind about what you eat. AND...most importantly...you have to learn to cook. i can tell you that being diagnosed with celiac changed my life in a really positive way, if only because i now make cooking a priority. my advice is eat easy and yummy things for breakfast and lunch (i eat lots of salads, fruits, veggies, nut thins and cheese) and wander into the land of ethnic foods for dinner. it's really hard to feel deprived when you are eating dishes that blow other peoples' out of the water.

here are some things i've eaten over the last few days:

cold avocado gazpacho

black bean and corn salad over fried cotija cheese

jambalaya with rice and a side salad

yogurt marinated lamb with a greek salad

shrimp, orange roughy, and langostine ceviche with tortilla chips

garlic shrimp with coconut curried rice and sauteed peppers

barbecued chicken legs marinated in a mix of wheat free soy sauce (tamari, actually), sweet chili sauce, sesame oil and rice vinegar

with a side salad

you get the idea. be adventurous. food can be fun, even when you can't eat gluten. i just plan my meals and make almost all the components from scratch, even my salad dressings. i would be happy to share my recipes with you, if you like.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

Hi,

I go to www.savingdinner.com - an inexpensive subscription site - recommended by www.flylady.net . Saving Dinner sends weekly menus and grocery lists, and you have a choice of menu (reg, veggie, low-carb, frugal, etc.). They are easily convertible to gluten-free, and most are tasty.

The nice thing about it is you don't have to think or plan much for the week. It comes every Wednesday to your email and off you go on Thurs to shop. Cooking directions are simple.

From your email it sounds like you've been gluten-free for 6 years? I can't give you great advice, I've only been gluten-free for 1 1/2 yrs. It IS hard at first. Family support was a lifesaver for me too.

I'm not on medication. I admit I'm generally scared of all western medication, as I've had some really bad reactions to it.

It sounds strange, but the flylady link above may help your depression. Check it out :)

Merika

2old4 Rookie

Mandigirl1-

Hi, I am a 34 year old, wife, mother of a 3 year old, manage a busy retail store and I also take an anti-depressant. I've only been gluten-free for 6 weeks and I think my body is still recovering. But I have also noticed that I feel much better when I am eating whole meals instead of my "quick fix" of Lays & Reeses. I tend to be really tired alot if I don't eat properly. I also have started taking gluten-free vitamins (Pioneer) and am noticing a difference in my energy levels. Treat yourself well-

Patty

watkinson Apprentice

Hi mandigirl,

Another thing you may want to investigate is, are the meds your on gluten-free. Ask your pharmasist. If they don't know ask who is the manufacturer and give that company a call. If they ar not gluten-free that may be the reason for the depression.

Wendy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,900
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.