Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Push For Biopsy Either Way?

zebaldwin

Recommended Posts

zebaldwin Explorer
zebaldwin
Posted

I talked to my doctor today and he will be doing the celiac panel on Friday (thank god).

My symptoms are not exactly gastrointestinal (slightly, but more related to headaches, brain fog, etc)

My question is, should I/can I try to get a biopsy done even if the blood work is negative? Either way I want to try gluten free.

Just wanted to get some feedback. thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Lakefront Brewery
Daura Damm

Celiac.com Sponsor (A8-M):
GliadinX

SaraKat Contributor
SaraKat
Posted

I didn't have any GI issues, but my blood was very positive. If it was negative I probably would not have had the biopsy.

mushroom Proficient
mushroom
Posted

It appears that those individuals who have neurological symptoms from gluten rather than gastrointestinal are less likely to test positive on either bloodwork or biopsy. If I were you and my blood tests were negative, I would skip the biopsy and go gluten free.

zebaldwin Explorer
zebaldwin
Posted
  • Author

Ya, I was thinking about seeing what the blood said and then going gluten free either way.

Im 21 and in school, and my dad is very adamant about me doing everything I can to figure this out...to the point where it can become too much.

He wants me to get the biopsy either way...just need to convince him it might not be necessary or helpful...

Thanks for the help! I really hope the blood comes back positive. I will post here next week (hopefully) with results

ravenwoodglass Mentor
ravenwoodglass
Posted

Do go gluten free no matter what the tests say, it may help a great deal. When folks have more neuro impact than gut often the tests will be a false negative. I don't know if you also suffer from depression or other mood issues but if you do you may want to check out this thread and the links to NIH abstracts.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      129,704
    • Most Online (within 30 mins)
      7,748
    baha
    Newest Member
    baha
    Joined
  • Celiac.com Sponsor (A20):
    Tierra Farm

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Little Northern Bakehouse


  • Upcoming Events

  • Posts

    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      So after  a long time in which I got my zinc and folic acid levels back on track I will now start with taking Thiamine to see if that does anything. According to my blood levels I'm not low on Thiamine but, if I understand correctly, blood works are not the best way to find out if there is a Thiamine shortage. How much Thiamine should I take to start with? 100 mg? 
    • Scott Adams
      Curious if I should quit my job

      By Scott Adams · Posted

      I'm in the "never reveal your plans to the enemy" camp on this one--it's none of their business if you're looking for another job, so I would leave that out of any conversation. Also, retaliation can be common with some employers, especially if you bring up the ADA and claim a disability because of celiac disease. I was a corporate paralegal for 5 years and handled employment claims against some major USA companies, and I've seen it all--even by huge companies that contract with the government and should know better. I say keep your cards close to your vest, wear an N95 mask if you handle wheat flour, and quietly look for another job if you feel you can't continue there.  Oh...
    • trents
      Curious if I should quit my job

      By trents · Posted

      @ohmichael doesn't have an official diagnosis of celiac disease yet. That would need to happen if he were to pursue a disability claim.
    • Scott Adams
      Biopsy confirmed no celiac, low gliadin igg but high gliadin iga?

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. According to this article your two positive DGP-IgA tests mean:  
    • nanny marley
      Help needed

      By nanny marley · Posted

      This is so very interesting I love all this information, knowledge is so very important for us to help ourselves heal, I have been so wrapped up with my dogs nutrition after vets told me she needed a operation, which turns out I can help with this for her  myself also , I may have been missing the tap on the shoulder to say integration into your own health is needed here too , although I have been aware I must admit myself has been on the back burner at times , I also have a granddaughter with nut allergy I researched for that , this is now screaming at me to turn inward to myself also , and deal with my invisible struggles I also am carrying, thankyou for all the information keep it coming...
×
×
  • Create New...