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Yay, Doc Didn' Think I Was A Nut Job!

norahsmommy

By norahsmommy
in Doctors

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norahsmommy Enthusiast
norahsmommy
Posted

We have had trouble with our youngest daughters tummy and intestines since we started solids basically. I did an elimination diet 3 times when she was 9-10 months old and we discovered when we eliminated gluten products she got better. She has been gluten free since then and things have been better but not perfect. We discovered other foods also cause her problems. Soy, dairy, anything with dha in it and possibly corn. She is 16 months old now and we just had her 15 month well check. She had been to the doc a month before because she was so very constipated she was going 10 days without a poop. She got put on stool softeners and I was told to increase her fluids by a doc. Even with the stool softeners she was only going once every 5 days and that was WITH a suppository to make her go. Anyway at her well check I was talking about her diet and problems we were having and have had with her pedi. I haven't seen this doc since she was 9 months old, always the other docs in the practice. The first thing he said was "you know, celiac disease is alot more common than people realize. She is gluten free now so you can't do the antibody test yet, but call me when you want to get her tested and we will keep track of how she does on the gluten diet and I will order the test for you so you can get results as fast as possible when she is done preparing." I just about kissed him! The other doc just kept telling me to increase her fluids and give her larger doses of the stool softener and to give her a suppository every 2 days. Right. I did discover that her poop problems lately (that sent us to the doc a month ago) were due to corn chex. Either it was contaminated with gluten or she has a problem with corn. I am not sure.

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MacieMay Explorer
MacieMay
Posted

Congratulations! It's a good feeling when you know you have someone on your side. I've been there! Here's hoping all your questions get answered!! Good luck! :)

kareng Grand Master
kareng
Posted

:P

I just about kissed him!

Good thing you didn't. He might have eaten a whole wheat bread sandwich and glutened you! :P

Great to find a doc that seems to know what he's doing.

Cypressmyst Explorer
Cypressmyst
Posted

:lol: Norahsmommy the title made me laugh. Sometimes it's the little things in this battle. :P

Glad you have an understanding Doc. Now you just have to be sure they are up on all the latest research. :) There is no need to gluten your child when you know gluten is the problem. She has responded positively to a gluten-free diet and that is proof positive, far more accurate than any other test we have currently.

Check out Dr. Vikki's recent post on the subject for the latest research to that effect:

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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