Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Looking For Some Help


MNMAC

Recommended Posts

MNMAC Apprentice

Hi all, I am newly diagnossed with celiac disease and have been on the gluten free diet for a couple weeks and have been very careful, but this past weekend I had more stomach pain, lack of energy and lots of D. I am wondering if it is normal for this to happen to someone starting the diet. The last 4 days anything I eat or drink goes right thru me and I feel awful afterward. I have lost about 35 pounds in the last three months and really need to put some weight on. Any info on foods that may stay in me from you guys would also be appreciated. In the last two weeks my diet included ensure, 7up, baked potatoes, rice, steak or chicken, and chex cerial but now I really don't eat much because of fear of feeling sick. Thankyou for any help you can give me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Hi MNMAC, and welcome to the forum.

I'm not an expert, but I'll tell you what has helped me when I've had excessive "D". I drink clear broths (like gluten-free chicken broth), eat bananas and blueberies, rice. Blueberries have the same ingredient as kaopectate.

I've never had a problem with sweet potatos or avacado. It may be helpful for you to consider an elimination diet or a rotation diet. (Plenty of info on the web with a search.) Even though I don't really care for meat, I've added it to my diet, but I rotate fish, pork, beef, poultry and lamb. And I think it really helps to eat foods you never or rarely ate before (rabbit, kale,...)

Sometimes your autoimmune system is attacking proteins that are similar to the gluten protein. That could come from legumes or corn or nightshade vegetables, or more commonly, dairy. (Or something else!)

It may help to go to an allergist for skin prick testing. I was surprised with my results, and it helped so much with just feeling better.

I hope you find out what's bugging you, and wish you good health.

mushroom Proficient

You do need some cooked green/root vegetables and some fruit (probably without the skin) in your diet, both for nutrition and fiber. As the OP said, frozen blueberries (for this time of year) would be good. Sweet potatoes done in the microwave are quick and easy and have lots of fiber and nutrition/Vitamin C.

Don't be discouraged about the setback - it happens to almost everyone. Just stay the course and things will come right. There are always ups and down, it's not a straight line up to healing. And you are bound to make a mistake or two and/or get some cross-contamination along the way. So long as the general course is upwards, you are good. You can try some Pepto Bismol for the D, or some Imodium. I think if I were you I would probably stay away from the Chex for a while; try things like dried apricots, dates, perhaps some nuts.

Let us know how you are doing as you go along. :)

Igg postive Rookie

I have been newly diagnosed with celiac disease. I am wondering where the diet will lead me. I normally have more of a C problem. This may stem from my long standing hypothyroidism. I have been trying to find ways to add fiber since this really helps me with my C. My mother had a D problem. The doctor told her as was mentioned in a previous post to eat mashed bananas, rice, applesauce. They usually perscribe this for children also. Sorry to hear about the weight loss. Another thing that helps my mother is taking probiotics. Also Digestive Enzymes may be of help. Let us know how you are doing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.