Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

5 Weeks gluten-free/cf: Observations


HopefulMama23

Recommended Posts

HopefulMama23 Explorer

Hey experts!

I'm 5 weeks gluten and dairy free as of yesterday. Here are some of my observations:

My D has pretty much stopped. It was daily pre-diet change. My stool is still very soft, which does concern me a little.

I have not had ANY abdominal cramping since I changed my diet. Not once.

I have gained 3 pounds. It's hard to celebrate this one, but I take it as a sign that I'm absorbing some nutrients again.

My hair stopped falling out and I can see some growing back in (although this is AGONIZINGLY slow process).

I am constantly exhausted. This one concerns me- for about a week after I stopped eating gluten my energy shot up, but since then I am soo tired. I sleep about 9-10 hours a night and I'm still tired by the early afternoon everyday. I tell myself this is becuase I am healing, but I wish I had more energy.

I can concentrate better and I feel like my IQ is about 20 points higher. I'm embarrassed about some of the dumb mistakes I made at work when I was at my sickest.

The change itself has gotten a lot easier- I am learning what to cook and what to buy at the grocery store and I don't feel nearly as overwhelmed. I'm also touched by how many people are aware of this condition and have a friend/relative/spouse/kid who can't have gluten. There are a lot of great resources and people out there (including all of you!).

I'm happier and more optimistic- at my sickest I was very, very depressed, even had suicidal thoughts. I feel MUCH more hopeful that my health and outlook are improving.

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It sounds like your doing great and healing well. Hopefully the energy levels will improve soon. If you not already taking them get some good gluten free vitamins, Stress levels of B and C as well as D3 and a sublingual B12 may help with the energy issues.

HopefulMama23 Explorer

It sounds like your doing great and healing well. Hopefully the energy levels will improve soon. If you not already taking them get some good gluten free vitamins, Stress levels of B and C as well as D3 and a sublingual B12 may help with the energy issues.

Thank you! I am feeling a lot better. Do people find probiotics or digestive enzymes helpful in healing?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Fiber Supplement

    3. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,343
    • Most Online (within 30 mins)
      7,748

    JosieS
    Newest Member
    JosieS
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.