Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ore Ida

Emilushka

Recommended Posts

hnybny91 Rookie
hnybny91
Posted

I don't know if this has been said specifically but now that I am reading lables I noticed that there is annato in a lot of cheeses. Am I really that stupid to not know all this time that a lot of cheese has to be colored? I woke up at 2 am this morning with the big D and now I wonder if it was the annato in the cheddar jack cheese I put in my grilled cheese last night (gluten free bread of corse.)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Emilushka Contributor
Emilushka
Posted
  • Author

I don't know if this has been said specifically but now that I am reading lables I noticed that there is annato in a lot of cheeses. Am I really that stupid to not know all this time that a lot of cheese has to be colored? I woke up at 2 am this morning with the big D and now I wonder if it was the annato in the cheddar jack cheese I put in my grilled cheese last night (gluten free bread of corse.)

Do you also have an annatto sensitivity? It's definitely separate from a gluten problem.

hnybny91 Rookie
hnybny91
Posted

Do you also have an annatto sensitivity? It's definitely separate from a gluten problem.

Not sure. I had the opposite problem with gluten (the big C instead of the big D) but I also never used to throw up before and now when i get gluten I either throw up or get very nauseas. I think I am going to have to break down and pay for the bolld allergy testing. I am tired of trying to figure out if I am somehow still getting glutened or if it is another sensitivity.

kareng Grand Master
kareng
Posted

Not sure. I had the opposite problem with gluten (the big C instead of the big D) but I also never used to throw up before and now when i get gluten I either throw up or get very nauseas. I think I am going to have to break down and pay for the bolld allergy testing. I am tired of trying to figure out if I am somehow still getting glutened or if it is another sensitivity.

Could it just be the cheese? Milk products can be very hard to digest especially if you still have intestinal damage. The part that Celiac destroys is the part that digests milk.

hnybny91 Rookie
hnybny91
Posted

Could it just be the cheese? Milk products can be very hard to digest especially if you still have intestinal damage. The part that Celiac destroys is the part that digests milk.

It could be the cheese. I am in denial that I may have issues with either lactose or casein because I LOVE LOVE LOVE cheese :( I know I eventually have to find out if I ever want to get completely better. I am just glad I don't feel like I am dying anymore so if dairy is the thing that is lingering I am not ready yet...LOL

Emilushka Contributor
Emilushka
Posted
  • Author

It could be the cheese. I am in denial that I may have issues with either lactose or casein because I LOVE LOVE LOVE cheese :( I know I eventually have to find out if I ever want to get completely better. I am just glad I don't feel like I am dying anymore so if dairy is the thing that is lingering I am not ready yet...LOL

I hear you. I LOVE LOVE LOVE CHEESE TOO. But I can't eat it. FOR NOW. We are telling ourselves over here in this house that I'll be hopefully able to eat it within a year of going gluten-free. No guarantees, but there's a hope.

If you're still having issues, try a dairy-free diet. It made a world of difference for me and might for you - if it doesn't, EAT CHEESE WHILE YOU CAN.

kareng Grand Master
kareng
Posted

It could be the cheese. I am in denial that I may have issues with either lactose or casein because I LOVE LOVE LOVE cheese :( I know I eventually have to find out if I ever want to get completely better. I am just glad I don't feel like I am dying anymore so if dairy is the thing that is lingering I am not ready yet...LOL

I know how you feel. When I first went gluten-free, I tried to limit my cheese but I couldn't cut it completely. I didn't eat cheese on my eggs then a grilled cheese then enchiladas for dinner. Just one of those in a day.

Annatto is in yellow cheeses but white cheddar, moz, pram, etc shouldn't have any. It's also probably on butter. It sounds like a good idea - a natural plant based coloring. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Emilushka Contributor
Emilushka
Posted
  • Author

I know how you feel. When I first went gluten-free, I tried to limit my cheese but I couldn't cut it completely. I didn't eat cheese on my eggs then a grilled cheese then enchiladas for dinner. Just one of those in a day.

Annatto is in yellow cheeses but white cheddar, moz, pram, etc shouldn't have any. It's also probably on butter. It sounds like a good idea - a natural plant based coloring. :(

I've actually read elsewhere that they sometimes put it into white cheese to warm the color a bit, so be careful and check every cheese if there's an annatto but not a dairy issue.

Emilushka Contributor
Emilushka
Posted
  • Author

Uh oh. It might not actually be an annatto problem because I've been eating plenty of Earth Balance without difficulties, and Earth Balance has annatto.

MY BODY IS INSANE. What in the WHAT.

kareng Grand Master
kareng
Posted

Uh oh. It might not actually be an annatto problem because I've been eating plenty of Earth Balance without difficulties, and Earth Balance has annatto.

MY BODY IS INSANE. What in the WHAT.

Pick your favorite:

Its IBS!

Its depression!

Its all in your head!

Aliens have experimented on you and put you back on earth!

Emilushka Contributor
Emilushka
Posted
  • Author

Pick your favorite:

Its IBS!

Its depression!

Its all in your head!

Aliens have experimented on you and put you back on earth!

My favorite: ALIENS. By far. Probably the truth. It's the only logical explanation.

T.H. Community Regular
T.H.
Posted

My favorite: ALIENS. By far. Probably the truth. It's the only logical explanation.

I think aliens explain it all. Yup.

*whispers* and they have started a secret doctor mind control experiment to keep us from getting diagnosed, too.:lol: I swear, sometimes I think that is the only explanation of how seldom we get answers on this stuff!

kareng Grand Master
kareng
Posted

I think aliens explain it all. Yup.

*whispers* and they have started a secret doctor mind control experiment to keep us from getting diagnosed, too.:lol: I swear, sometimes I think that is the only explanation of how seldom we get answers on this stuff!

Maybe some of the doctors are aliens in disguise! :ph34r:

Emilushka Contributor
Emilushka
Posted
  • Author

Maybe some of the doctors are aliens in disguise! :ph34r:

Maybe I'm one of them! :blink:

kareng Grand Master
kareng
Posted

Maybe I'm one of them! :blink:

I think you will use your powers for good, not evil!

  • 2 weeks later...
starrytrekchic Apprentice
starrytrekchic
Posted

Did you get the plain tater tots? I checked when I was at walmart yesterday, and there were some with wheat, but they weren't the plain tater tots. And now I can't find them on Ore Ida's website, so I might have imagined it. I thought they looked just like a darker version of the regular tater tots, but they may have been these, which have wheat: Open Original Shared Link

Emilushka Contributor
Emilushka
Posted
  • Author

Did you get the plain tater tots? I checked when I was at walmart yesterday, and there were some with wheat, but they weren't the plain tater tots. And now I can't find them on Ore Ida's website, so I might have imagined it. I thought they looked just like a darker version of the regular tater tots, but they may have been these, which have wheat: Open Original Shared Link

They were definitely gluten-free tater tots. And the french fries that were gluten-free got me too.

I've been able to eat lots of potatoes since, too.

Tigercat17 Enthusiast
Tigercat17
Posted

Uh oh. It might not actually be an annatto problem because I've been eating plenty of Earth Balance without difficulties, and Earth Balance has annatto.

MY BODY IS INSANE. What in the WHAT.

Do you think maybe your intestines just might not be healed all the way yet & that's why your having problems with them? I know I reacted to so many foods when my intestines weren't healed completely - even the Ore Ida French fries. I was reacting to everything. It was so frustrating, but I had celiac disease for such a long time before I was diagnosed. It took my body at least a good year before I could have a few processed foods.

I just wouldn't eat them for a while & then try again in a few months. I know how trying to figure it out drives us all crazy. Just take a break from them and try again later.

Also, I'm really sensitive & I can eat the french fries once a week. I do have problems with some Glutino products & I can't eat them everyday -that's how senstive I am. I haven't tried the tator tots in a long time, but they are sounding good. :) I might have to try them again myself. :)

Emilushka Contributor
Emilushka
Posted
  • Author

Do you think maybe your intestines just might not be healed all the way yet & that's why your having problems with them? I know I reacted to so many foods when my intestines weren't healed completely - even the Ore Ida French fries. I was reacting to everything. It was so frustrating, but I had celiac disease for such a long time before I was diagnosed. It took my body at least a good year before I could have a few processed foods.

I just wouldn't eat them for a while & then try again in a few months. I know how trying to figure it out drives us all crazy. Just take a break from them and try again later.

Also, I'm really sensitive & I can eat the french fries once a week. I do have problems with some Glutino products & I can't eat them everyday -that's how senstive I am. I haven't tried the tator tots in a long time, but they are sounding good. :) I might have to try them again myself. :)

That could certainly be part of it. I know that what has me the most confused about all this is that I was eating the Earth Balance and thought I was fine, but now that I've stopped eating it I do feel better. And I can eat lots of OTHER french fries (and hamburgers!) at fast food places, and those are heavily processed to say the least. And they don't give me problems.

I think I'm satisfied at this point with just cutting out the annato and the dairy and waiting to see what happens once my guts have healed. I'm hopeful, but not too hopeful. I don't want to think too positively or I'm going to be horribly disappointed again soon.

Tigercat17 Enthusiast
Tigercat17
Posted

That could certainly be part of it. I know that what has me the most confused about all this is that I was eating the Earth Balance and thought I was fine, but now that I've stopped eating it I do feel better. And I can eat lots of OTHER french fries (and hamburgers!) at fast food places, and those are heavily processed to say the least. And they don't give me problems.

I think I'm satisfied at this point with just cutting out the annato and the dairy and waiting to see what happens once my guts have healed. I'm hopeful, but not too hopeful. I don't want to think too positively or I'm going to be horribly disappointed again soon.

I really hope this is just a temporary intolerant for you. :) I've had similar experiences when I thought a food didn't bother me like dairy products and then as soon as I stopped eating them, I felt better. Sometimes the reactions are so small it's hard to notice them. I can have a little dairy now, but I still haven't gone back to regular milk, yet. I'm really hooked on the Silk Almond milk-it's so good! And just remembering how regular milk made me feel is just not something I want to experience any time soon. :blink:

Good luck to you! :)

catsmeow Contributor
catsmeow
Posted

No problem with Ore Ida for me either. I have a wheat allergy and am super duper sensitive and break out in hives easily. But, Ore Ida has been a safe food for me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing...
    2. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    3. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    4. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    5. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,874
    • Most Online (within 30 mins)
      7,748
    Jen J.
    Newest Member
    Jen J.
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.