Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"pretty Much Normal"


canutillo

Recommended Posts

canutillo Rookie

My son's pediatricians office just called with the results of his celiac panel. In the nurse's words, "His results were all pretty much normal." Huh? I asked for the actual numbers and such and was told she could not give them over the phone. I then said I'll come by tomorrow to pick up a copy. She put me on hold, came back and told me there was no need- everything looked fine.

No need for a follow up or to talk to the doctor.

That really annoys me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

You are entitled to receive a oopy of the lab report. Insist on it.

Takala Enthusiast

I would go to the office tomorrow and tell them you are not leaving until you have, in hand, a written copy of the test results. For. The. Record.

I would also tell the nurse's boss if they ever pulled that stunt again, I'd be contacting the state attorney general's office and the insurance company.

You paid for the test via your deductible and/or copay and insurance. You own the results. They must give them to you, upon request.

My current doc's office is nice, they will send me copies if I ask, and they do that.

If you think I'm being a bit pushy, you haven't read what the previous ones did to me, withholding results. I also had another doctor tell me (after waiting 6 weeks for 1st appt, to which I had brought only partial records from a few years back) he could not begin to look at me until he had my complete medical records - when I went to the front desk to start the process, I get told that THAT will take another MONTH for them to send a request to the different office. Then my insurance charges for this, in spite of the fact that they are not supposed to. Good grief. I ended up needing surgery, (went to a different doc) and the surgeon consult was like Oh, My, they blew this off ? :blink:

Delay, deny, duplicate, delay, deny, start over. What a racket.

Oh, and the blood panels are not that perfectly accurate in children (nor adults). Maybe look at an over the counter genetic test and screening to see what's going on.

kareng Grand Master

Just call tomorrow and tell the main desk you need a copy. They will probably send your call to someone who takes care of that. Tell them you need to pick up a copy asap. If they ask why, tell them you need to run them by a Celiac expert/ another doctor or the school nurse. This should work. They may ask you to give them a day. That is reasonable.

Are you in the US? If this doesn't work for some reason, pm me. Medical info law was my best subject & I supervised this in several hospitals. I doubt you will need to get upset. Start out being nice.

ravenwoodglass Mentor

'Pretty much normal' says to me it may be a low positive. I could be wrong of course but do get a hard and complete copy of those tests. When all the tests are done do a trial of the diet no matter what the results.

Takala Enthusiast

LOL. Yeah, I'm pretty ferocious on the internet to motivate people, but I don't yell much in real life, because if you are stubborn enough and polite enough AND know your rights, you can usually get what you need.

But I continue to be amazed at how these people treat your information. When you go for any tests, you have to sign releases and disclaimers that the doctor and testing facility can give the information to almost anyone or anything that requests it, including local and Federal law enforcement, courts, insurance companies, collecting agencies. They do that to increase the chance of successfully suing you if you default on the payment of fees you just guaranteed, or if there is a mistake that results in injury or a lawsuit. You sign away your rights to privacy. But then the medical offices attempt to with hold that same testing result FROM YOU, the patient, by constantly pulling stunts like this.

I see no reason why the insurance companies should know your exact test results, and then be making financial decisions on your future treatment and level of coverage, while you are kept in the dark like a fungus and fed poop !

We won't get medical costs under control until there is more patient accountability. We are trying to do a good thing here, save ourselves illness by possible diet change. We are not here for further subsidizing the heartburn medication or anti depressant industry.

shopgirl Contributor

That's like telling someone they're "pretty much pregnant."

Demand clarification and copies of those reports.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,075
    • Most Online (within 30 mins)
      7,748

    Amy1620
    Newest Member
    Amy1620
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.