Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Must Apologize


jenngolightly

Recommended Posts

jenngolightly Contributor

I have always had tough side effects from gluten. I'd writhe in pain and have to stay home for days because I couldn't be 20 feet away from the toilet. Migraines, vomiting, cold sweats, etc.

But the other day it happened. I was in such terrible pain that I had my son take me to the ER. I tried to wait it out, but it kept getting worse and worse. By the time he took me, it felt like I was having contractions!

I used to read posts from some of you who would talk about going to the ER for post-glutening symptoms and I'd always think to myself, "Geesh, suck it up!"

Now I can be so much more sympathetic!

So here's my interesting story...

I ended up getting a CT scan of my abdomen. They needed me to drink about a quart of this liquid "contrast" so they could see what was wrong. Fine. No problem. I'm dying, but I'll drink your liquid contrast.

They bring me this red drink and I drink two sips and throw up. I TOLD them that I don't eat gluten, sugar, dairy, corn, soy, preservatives, artificial stuff, etc. It's been out of my system for so long that my body expelled it as soon as it got to my stomach. It was actually quite funny now that I think back. :-)

I asked to see the ingredients of the drink they gave me. Of course it was fruit punch with the contrast mixed in. Supposedly this contrast stuff is awful tasting. So I told them again about what I do and don't eat. So they bring me some kind of powdered juice drink with no sugar mixed with the contrast in it. The doctor came in to give it to me. By then I was out of my mind in pain and screaming that I don't drink that sh*t and just bring me the g*d d*mn contrast and I'll drink it straight from the bottle!!!! The doctor was furious with me and telling me that it tastes terrible and he's sure I won't drink it. I'm telling him that I threw it up when it was mixed with the juice, so how much worse could it be? He STORMED out of the room. A nurse brought me water with the contrast. Wouldn't you know? It tasted fine.

All ended well. I was given some super-duper laxatives and sent home that night on Oxycontin.

I'm still mad at that doctor for getting angry that I wouldn't drink fruit punch or diet fruit punch, so I'm not tempted to go back to the ER anytime soon. Having food issues is tough and when you're in a confined space like an ER, it's more difficult.

So a big I'M SORRY to all of you who've gone to the ER when you've suffered from gluten poisonings! I'll read your posts with sympathy from now on. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kwylee Apprentice

So glad you stood up for yourself. Isn't it doctors who are supposed to go by the adage, "First do no harm"????

I had to smile at your story. Would have been great if you would have barfed on his shoes!! Hope you're feeling much better.

Roda Rising Star

We don't give our patients the contrast with anything BUT water. On occasion when we have a child we may mix it with some kind of punch, but water is usually the only option at my facility. Glad you survived the glutening!

K8ling Enthusiast

Oh my goodness, that's like when I went to the ER for an IV from my morning sickness and he ran a Pregnancy test (not quant, just one to see if I was pregnant!!) and gave me a bunch of tests before even getting me an IV! And then he gave me the wrong anti nausea!! I had told them when I came in that Ineeded an IV and some IV zofran and he totally ignored me. And brought me CRACKERS! After I told him I had Celiac!!

My OB said ER doctors hate to be told what to do, I bet this was the case here too. I hope you never have to go back!!!!!

jenngolightly Contributor

I've found that most times people are pretty nice about my diet, but I wonder if deep down they don't really believe that you can be THAT resolute about not eating things that you can't tolerate. Especially for medical reasons. As if the doctor was SURE I'd drink fruit punch at that moment because it was medically necessary (thanks Roda for clearing that up for me). It's not that I wouldn't drink it, but I clearly couldn't drink it because I vomited my lunch all over the poor nurse (yes, kwylee - would have been great if the doc had been next to me at that specific time). I should have known to ask what that fake pink stuff was that they were shoving in front of me, but I was in so much pain that I trusted the medical staff. They're always in a hurry with too many patients. I wonder how I could handle it better next time? If I have to go back, that is. I'd rather be prepared - but I hope I never have to go - thanks for the story K8ling! :D

cyberprof Enthusiast

My OB said ER doctors hate to be told what to do, I bet this was the case here too. I hope you never have to go back!!!!!

Ha ha LOL! My "baby" brother is an ER doc.

  • 1 month later...
hammergirl Newbie

This is a random comment: but I seriously hope that I can get my body to immediately react to gluten the ways yours did! I would much rather take a momentary vomit rather than dealing with the pain and cramping and serious D!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenngolightly Contributor

This is a random comment: but I seriously hope that I can get my body to immediately react to gluten the ways yours did! I would much rather take a momentary vomit rather than dealing with the pain and cramping and serious D!

I'm quite sure I threw up because of the sticky-sweetness of the punch because I don't eat sugar or artificial sweeteners. The mixture was gluten-free. Yes, it would be great if I could immediately vomit from gluten.

It's funny you wrote this now because I was at the grocery store and in the juice isle yesterday for some reason. I saw a jug of Hawaiian punch and I felt distinctly nauseous and had to quickly exit towards the meat department. :-)

WhenDee Rookie

Oh, lovely. A doctor who knows FAR LESS than he THINKS he knows. Always a delight. ;)

Too bad this kind of doctor is so darned commonplace.

sandrad Newbie

Funny...when i had my ct scan a few years ago the contrast was mixed in water and it tasted fine...now barium is another thing ;p

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,957
    • Most Online (within 30 mins)
      7,748

    konny heigle
    Newest Member
    konny heigle
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.