Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok, I'm Getting Really Freaked Out!

jeslk

By jeslk
in Coping with Celiac Disease

Recommended Posts

jeslk Apprentice
jeslk
Posted

I've been doing a lot of reading on this forum over the past two days, and I'm starting to get really freaked out about getting "glutened.". At first I wasn't worried at all because I don't have any outward symptoms, but now I've come across several posts indicating that even a crumb can cause damage!

I mean, is it really true that coming into contact with just trace amounts can negate all of the other gluten free time I've done? Hearing about reduced life spans and the like - it's really hitting home how much gluten really is a poison for us. I'm actually hoping I do start to show symptoms so that I'll know. Otherwise, my doctor suggested that I need to be even more "borderline paranoid" about coming into contact with gluten.

Plastic bubble, anyone?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hnybny91 Rookie
hnybny91
Posted

Sadly you do have to be a little paranoid. My DD's birthday was the other day and she wanted grilled cheese sandwiches for her birthday. She is gluten free like me so I grilled hers on the George Foreman grill and then made her boyfriend some mini quesadillas on the same grill. I wiped the grill with a sponge and then made mine with gluten free bread. I got glutened because I did not thoroughly wash the grill pan after boyfriends :(

Fire Fairy Enthusiast
Fire Fairy
Posted

I got glutenated from a scratched no-stick skillet. And I got glutenated from invisible crumbs in grape jelly. :( You see since I live with gluten eaters I didn't toss the old jelly I just bought new, unfortunately the jellys got switched round. I also think I might have gotten sick from ingesting some nail polish. I had some polish that literally wore off over a day. And I now know my top coat had gluten in it. :(

To quote Alister Mad Eye Moody (Harry Potter) "Constant Vigilance." (I might have to make that quote part of my signature. :))

jeslk Apprentice
jeslk
Posted
  • Author

Wow, it really is crazy, huh? So I guess what I don't understand is whether or not gluten is effecting me the same way, even if I don't get the outward reaction . . . I keep get g mixed messages, since I see some people saying that you have to figure out what your tolerance is.

Is there such a thing as gluten tolerance for someone with celiac?

Lori2 Contributor
Lori2
Posted

I'm actually hoping I do start to show symptoms so that I'll know. Otherwise, my doctor suggested that I need to be even more "borderline paranoid" about coming into contact with gluten.

Actually, aren't you showing symptoms? Your signature says you have been diagnosed with non-Hodgkin's lymphoma and thyroid cancer. According to Dr. Green (Columbia Celiac Center) in his book, Celiac Disease A Hidden Epidemic, he states that thyroid cancer is 22 times more prevelant in a celiac than in the general population. Non-Hodgkin's lymphoma is 9 times more prevelant. Somehow, I guess my diarrhea, gas and cramps aren't too bad after all.

jeslk Apprentice
jeslk
Posted
  • Author

Actually, aren't you showing symptoms? Your signature says you have been diagnosed with non-Hodgkin's lymphoma and thyroid cancer. According to Dr. Green (Columbia Celiac Center) in his book, Celiac Disease A Hidden Epidemic, he states that thyroid cancer is 22 times more prevelant in a celiac than in the general population. Non-Hodgkin's lymphoma is 9 times more prevelant. Somehow, I guess my diarrhea, gas and cramps aren't too bad after all.

Yes, I meant immediate symptoms of being glutened. It's precisely because of the two cancers that I am concerned I won't know if I'm accidentally ingesting gluten and causing more damage.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,404
    • Most Online (within 30 mins)
      7,748
    suzanne2014
    Newest Member
    suzanne2014
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • maryannlove
      Gluten free thyroid medications

      By maryannlove · Posted

      Unfortunately not going to be able to let you know how Amneal is working because I still have almost 3 month supply of Mylan.  Had annual appointment with endocrinologist last week (though get scripts for blood work more often) and since was on my last refill, she sent new script to pharmacist.  Staying on my Mylan until it's gone.  (I tend to build up a supply because after trying a couple of endocrinologists for my Hashimotos, one finally got my thyroid regulated by my taking only six days a week instead of adjusting the strength which had me constantly up and down.  Will be forever grateful to her.  Apparently high percentage of folks with Celiac also have Hashimotos so all this relevant/helpful on Celiac.com.    
    • KimMS
      Gluten free thyroid medications

      By KimMS · Posted

      Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have been taking it for 3-4 weeks and the past 10 days I have developed extreme fatigue/sluggishness, joint pain and some brain fog. I don't know if it is the new levo med, but nothing else has changed. Has anyone else taken Accord levo? Any issues? It seems to fall into the "no gluten ingredients, but we can't guarantee 100%, but it's likely safe category." I'm wondering if it is worth switching to Amneal or at least getting my thyroid levels checked. If the med is causing my symptoms, I'm guessing it's not because of gluten but maybe the potency is different from Mylan and I need different dosing. Accord was recalled for lower potency, but my pharmacist said the pills I have were not part of that lot.  
    • Mrs Wolfe
      Cartilage and rib pain.

      By Mrs Wolfe · Posted

      I appreciate the information and links.  
    • Mrs Wolfe
      Cartilage and rib pain.

      By Mrs Wolfe · Posted

      Thank you for the information.   
    • Wheatwacked
      I hate to cook!

      By Wheatwacked · Posted

      In 70-year-olds, DHEA (Dehydroepiandrosterone) levels are significantly lower than in young adults, typically around 20% of youthful levels, according to the National Institutes of Health (NIH) | (.gov). This decline is a natural part of aging, with DHEA production decreasing from its peak in the third decade of life. While some studies suggest potential benefits of DHEA replacement in older adults, particularly in women, results are not consistently positive across all studies. 
×
×
  • Create New...