Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This May Seem Like A Crazy Question


lilykuh

Recommended Posts

lilykuh Newbie

As a background, I've been gluten-free for about 2 years. Tests for Celiac were negative, but I'm allergic to wheat and can't tolerate any gluten at all. Since adjusting to the diet, I've been fine. The inconvenience is well worth it because I feel so much better. This may sound like a crazy question, but I'm asking anyway. I've worked in the same building for the last 15 years, and from the very first day I've had an allergic response to it. It's the only building I've ever been in that's affected me this way. I've never had any idea what it is that bothers me. My employer had the area where I work tested for mold and for air flow and pressure. Everything was within normal limits. The building is old, 1888, so I've assumed it's probably something specific to old buildings even though I've never had any problems with other old buildings. It's not related to seasons, it's just a constant irritation. I've been allowed to move my office to a space where there's a window that I keep open for fresh air, and with that I've managed to work--feeling fine on Monday morning and gradually getting worse till Friday, when I often have an earache, am dizzy, and my ears are stopped up. I just found out that before this building's current use, it was a bakery for 50 years. Very little remodeling has been done on it. It's still the original walls and floors, with some newer dropped ceilings. It's a very large brick building with lots of dead spaces. Is it possible that the wheat and flour that would have been here during the 50 years of baking is the source of my allergy? Could it still be hanging around in the air and dead spaces above the drop ceiling? On one hand it sounds impossible, but at the same time, wheat and gluten are the only things that I know I'm allergic to, and this is the only building I've ever had this problem with.

Thanks,

Lilykuh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Welcome to the forum Lilykuh.

You have come to the right place to help you find answers.

First off, are they doing any remodeling in your building with drywall? I have heard from here that drywall and the mud they use contains gluten.

I guess it is possible that the flour is in the air ducts. Anything is possible I have found out.

Hopefully others have some ideas or experiences to help.

Takala Enthusiast

"Within normal limits" - meh. <_< More likely it's mold or fungus and dust in the air heating and cooling ducts and you are supersensitive.

The only other thing could be that somehow you are getting cross contaminated by something that you eat or drink there.

Can you get one of those plug - in, electric air filters ? Some of them are truly amazing. We have crummy air quality here sometimes where I live in the summer, between the smog coming up into the edge of the foothills, and the diesel exhaust, and smoke from forest fires, it's an allergy nightmare if the breeze is not blowing it away. I went for an auto repair on a bad day, and noticed that the waiting room had one running and that I could actually breathe in there, and after quizzing the receptionist about it, we went ahead and got one for the house.

lilykuh Newbie

Welcome to the forum Lilykuh.

You have come to the right place to help you find answers.

First off, are they doing any remodeling in your building with drywall? I have heard from here that drywall and the mud they use contains gluten.

I guess it is possible that the flour is in the air ducts. Anything is possible I have found out.

Hopefully others have some ideas or experiences to help.

Thanks, Dixiebell. There's no remodeling going on now, but if drywall and mud have gluten in them, that probably explains why I felt worse when they remodeled my first office. I expected I would feel better, having everything fresh and new, but my allergies were worse afterwards. That's when they let me move to the office I'm in now. I do think if there is flour dust still in the building, that it could be in the air ducts. They run through and vent into old dead air space. I was told that air pressure keeps the flow of air going out and that the old stale air can't be pulled through the air vents. But if there are flour dust particles, seems they could fall down into the vent openings, even if the air flow is going out. I've only worried about eating wheat. Can you have an allergic reaction if it's in the air?

Lilykuh

lilykuh Newbie

"Within normal limits" - meh. <_< More likely it's mold or fungus and dust in the air heating and cooling ducts and you are supersensitive.

The only other thing could be that somehow you are getting cross contaminated by something that you eat or drink there.

Can you get one of those plug - in, electric air filters ? Some of them are truly amazing. We have crummy air quality here sometimes where I live in the summer, between the smog coming up into the edge of the foothills, and the diesel exhaust, and smoke from forest fires, it's an allergy nightmare if the breeze is not blowing it away. I went for an auto repair on a bad day, and noticed that the waiting room had one running and that I could actually breathe in there, and after quizzing the receptionist about it, we went ahead and got one for the house.

I don't think it's cross contamination because I only eat and drink what I bring from home.

I have to give my employer credit, they called in OSHA and did some very thorough testing, and they let me read all the reports. Of course there are hundreds of kinds of mold, and they can't test for all of them. But I felt like they made an honest effort to find the source of the problem. I've tried two different kinds of air filters and neither one made a difference. What type of filter do you have?

Lilykuh

ravenwoodglass Mentor

Hopefully the poster with the air filter advice will get back to you with the brand. One other thought, when you are at work and use the rest room do you use the soap they provide? If so have you checked to make sure it is gluten free? Do you prepare your lunch in a shared lunch room or eat at a local restaurant when at work? You could be getting CC at lunch time. Does your office have a coffee pot that everyone uses? If so do you use flavored coffee's in it? Is there anything you use at work that you don't at home, hand sanitizers, cologne, air fresheners, anything different that you don't use or eat when not working?

Marlie Apprentice

Years ago I started getting rashes at work. I would notice they would get better over the weekend and then worsen as the work week went on. I only have skin allergies but the reaction was delayed. I was going crazy trying to figure out what it was. It was the new rugs. The rugs went and my hives disappeared. Do you wear dry clean clothes during the week but not during the weekend? I'm also allergic to the chemicals in home dry cleaning kits (tried it once on a down pillow and that was enough). I hope you solve your mystery.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

You were saying you feel like you're allergic to it - so do you have a different response to the building than you do to gluten?

What's your reaction?

Because honestly? Oh heck yeah you could be allergic to your building, but not necessarily the gluten, although an allergy to wheat would do it, too.

They are making plywood in the last few years that they add wheat to, more than just the glue. Lots of 'green' things now are adding more natural products to them, which we can react to allergically. Like soy oil and wheat oil being used to make some of the plastics inside cars (Ford Fiesta is one, for example, that has this). Paper is now sometimes using wheat straw along with the wood pulp (more common in Canada than USA, I believe). Carpets usually have soy, from what I read on some soy allergy sites. A glue or polish can easily have something that gets you. Or paints, or old glues, or ceiling tiles, or the chairs and tables that you use - honest to god, you would not BELIEVE the things that can get you if this is an allergy.

If touch is enough to be getting you, anything in the building could be a potential problem. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,962
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.