Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had To Laugh...


Guest imsohungry

Recommended Posts

Guest imsohungry

My hubby and I went to a local restaurant the other night...

I never really think of myself as a person with Celiac, Epilepsy, Lupus, etc. (I just quietly go about my business until one of my problems gets in the way). B)

So here I am last Friday, sitting in this restaurant...when I suddenly realize what it has taken to get my body "comfortable" and "accommodated."

1. I am in a booth with plenty of leg room due to my poor leg circulation and bad knee

2. The booth must be in a warm side of the restaurant or my Raynaud's is bothersome (so I'm sitting in my booth wearing a JACKET in JULY!) :rolleyes:

3. I must avoid cigarette smoke due to Multiple Chemical Sensitivity and have plenty to drink due to the Sjogren's.

4. The lighting in the restaurant and patterns on the table-top were making me "seizury" so my hubby and I had to cover the table with napkins in order to avoid a seizure. (I think our waiter thought I was germ-phobic) :blink:;)

5. The waiter comes to take my order, I reply, "I'll have a hamburger, plain, no bun. A potato, plain. And a side of vegetables with no seasonings. :P

And so, there I sat, sprawled out in my booth, wearing a jacket, sitting over a table covered in neatly folded white napkins, eating food that was special-ordered and self-seasoned. :rolleyes:

I just had to giggle. -Julie ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

I'm laughing now. I was cracking up about this the other day - somehow I still consider myself low maintenance!!! I used to laugh my head off when watching the movie "When Harry Met Sally" and she thought she was low maintenance, but he says she's the worst kind - she thinks she's low maintenance, but really she's high maintenance. Well, that's me, now.

I tell people I can't have gluten. Then they say ok, how about this? Then I have to say, oh wait, I can't have nightshades. Ok, how about this? Oh wait, I forgot to mention, I'm allergic to shellfish. Hmmmm. What else? Oh yeah, I avoid corn, don't eat much sugar, and can I read that label to see if it has MSG or citric acid on it?

By the way, I can't be in the sun too much, mold causes me problems, and caffeine and alcohol are also out. Sorry! Are you sure you still want me to come over? :)

Anyway, even with all that, I think I do pretty well. Of course I'm about 4 days away from finding out if I have a connective tissue disease on top of all this, but heck, that at least won't add any more food restrictions (except maybe alfalfa sprouts!) to my list so I'm ok with that! :D

Thanks for the post... I have been saying for the last week to anyone who rolls their eyes at me that I really hope they broke the mold after they made me...

Stephanie

PS at least I haven't had a migraine in a while! :)

Guest imsohungry
I was cracking up about this the other day - somehow I still consider myself low maintenance!!!

Hee, hee :P

Yeah, I know what you mean. I really don't think of myself as "high maintence" until I stand back and look at it all! I'm just an easy-going kind of person B)

Congrats on no recent migraines...I know from experience that everyday without one is a blessing! ;)

We gotta appreciate the irony of life! :rolleyes:

Merika Contributor
I tell people I can't have gluten. Then they say ok, how about this? Then I have to say, oh wait, I can't have nightshades. Ok, how about this? Oh wait, I forgot to mention, I'm allergic to shellfish. Hmmmm. What else? Oh yeah, I avoid corn, don't eat much sugar, and can I read that label to see if it has MSG or citric acid on it?

Stephanie,

Hahahahahaha, lol :D Same story here!

Merika

lgranott Rookie

Thats so funny, I can completely relate. At first I was just a vegetarian by choice. Never made a fuss and always found something to eat--still low maintenance...

Then I slowly (perhaps b/c I am slow, lol) realized that I couldn't do the dairy thing--ok, I could still consider myself lowish maintanace...

NOW!!!! No gluten???? No one wants me around when it comes to food:)

I just don't understand why--lol. I am still low maintenance, aren't I? I'm easy going about all of it--I just can't eat anything ;)

Talk about there being nothing to do but laugh at yourself...

I had all this energy!!!! So I went on a fast-paced bike ride, then a 5 mile run. Wow!!! Haven't been able to do that in a while. Realized at mile 4 1/2 that I had hardly eaten and was about to pass out:) oops. So I took my very shaky self to Whole Foods and went to the prepared foods (which I never do) and found something that I thought was gluten-free. It had tofu tomato and soy cheese--great! Took it home and shovelled it in my mouth. After swallowing 5 bites w/o even chewing I began to taste what I was eating... I wondered what the chewy thing was--AHHHHH!!!!! Noodles. I read the ingrediants 3 times, I don't know how I missed it:( I guess I was too hungry, I haven't done anything that stupid before... Well I had a little while before I knew I would have a reaction--so after panicking, I just laughed b/c there was nothing else I could do. So now on day two of my punishment--ouch!

Liatt

celiac3270 Collaborator

Ha...that's kind of funny, but in a twisted way :lol:

MySuicidalTurtle Enthusiast

Laughing about it is the best thing to do! It's a lot of things to do but at least you are out there doing them and being happy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

It's nice to be able to laugh at ourselves and also be able to go out and have fun at the same time ;)

jenvan Collaborator

I always say I'm high-maintenance in ways I can't choose--but in the ways that matter--like relationally, I am low maintenance--I don't get into fights, don't like 'drama' in relationships etc. So, at least we're not trying to be a pain in the butt like some people are--we can't help it when we're a pain !! :lol: lol !

Guest imsohungry
...So, at least we're not trying to be a pain in the butt like some people are--we can't help it when we're a pain !! :lol: lol !

HA! Very true. I work with a lady who is never happy with anything...when the office goes out for lunch, she complains about everything from the service and seating to the temperature of the food and the background noise. <_< (Needless to say, she is a pain in the butt...not to mention no fun...to eat with). :ph34r:;)

I may be "high maintenance," but at least I can still laugh about most things!

Just for the record Jen...I've don't get in fights either. :D

Julie (High maintenance; Low drama) B)

watkinson Apprentice

Hi everyone,

Just wanted to say how refeshing this thread is. :) I love how all of you have such great attitudes. Life may be a difficult at times but it's as good as we make it.....Life is great!!!! :D

Wendy

Guest gliX

haha that stories hilarious..

whenever i go out to eat i just say i'm allergic to bread and they seem to understand

it's easier than explaining celiac disease

whenever i get fast food they go crazy, call a manager over, and have no idea what i want, after i say "no bun." :unsure:

mouse Enthusiast

Also love this topic. I just about never get invited to anyone's home to eat as they are just to afraid to feed me. Had one couple invite us over last fall for a cookout and she made me a gluten-free chicken breast and a fantastic tossed salad. I really appreciated the extra effort she went through so that I could be part of the group. Have a sister-in-law who lives about 1 1/2 hours east of us and my husband had had them over last fall and he did the cooking on the grill - burned it all and started over. I was still to weak to do much cooking or entertainting. We all had a good laugh over his cooking skills. In 42 years of marriage he had never had to cook or grill and I have to give him all A's for his efforts. But, the same sister-in-law was suppose to be a fantastic cook and she invited us to their place. She emailed a list of all the ingredients and I felt like a fool, when I had to email her back with no or if OK, what brand she had to use. I was so embarrased by the time the dinner came around. But STUFF my embarrasment - THAT WAS THE BEST MEAL, I have had since my diagnosis in 2/04. Now if I can only get them to move nearer to us. HA HA. We generally meet friends at restaurents, unless I cook the meal. When we do get invited to cookouts (not sit down's) I just bring something I like and cook triple of it - that way everyone can try it and I still get to stuff myself. Also usually bring a gluten-free cake or brownies and chuckle inside when they all rave about the great brownies, etc. I figure if maybe they realize this is not a big deal, maybe I can get invited to actual dinners.

Guest imsohungry

Armetta and Wendy...nice to meet you! :) I don't think I've met ya'll before. Glad you are enjoying the thread... ;) I can't always find the humor in the health issues, but I try to laugh when I can! Keep smiling everyone. :D

Pegster Apprentice

We have to laugh when my family goes to a restaurant together. I, too, just say I'm allergic to bread or to flour so the waiters understand. But daughter #1 is allergic to cashews and pistachios and avoids cheese and creamy sauces. Daughter #2 has the peanut allergy. My husband eats everything so he tells the waiter to bring him MY BREAD, and everyone else's nuts, cheese, etc. on a plate. He doesn't want anything to go to waste! :D

KaitiUSA Enthusiast
We have to laugh when my family goes to a restaurant together.  I, too, just say I'm allergic to bread or to flour so the waiters understand.  But daughter #1 is allergic to cashews and pistachios and avoids cheese and creamy sauces.  Daughter #2 has the peanut allergy.  My husband eats everything so he tells the waiter to bring him MY BREAD, and everyone else's nuts, cheese, etc. on a plate.  He doesn't want anything to go to waste! :D

<{POST_SNAPBACK}>

HAHA thats great :lol::P My family would have probably dont the same thing...hey if your paying for it anyway you might as well get anything you can out of it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    731049
    Newest Member
    731049
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.