Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elimination Diet Help?


Villified

Recommended Posts

Villified Newbie

I recently did two elimination-rechallenges to confirm a doctor's suspicion that my years of bizarre and sometimes debilitating symptoms were celiac related. After the challenges and after being gluten-free for a few weeks, my symptoms (the worst of which was nearly incessant migraines w/aura) were almost entirely gone. In the past week, though, they've been acting up again. I've had palpitations, dyspnea, joint pain, non-migraine headaches, chills, muscle aches, tingling and pain in the extremities, lots of gas and associated abdominal maladies, and akathisia. It's not nearly as bad as it was before; I'm able to function and I'm very very grateful for that. I started to notice that I'd feel particularly bad (tired and spacey in particular) after I ate something starchy. I read up on other food intolerances and decided to do an elimination diet. I want to be very thorough about this, getting rid of anything that might be causing residual symptoms, so that I can be healthy again. My problem is twofold: first, I can't find any definitive list of categories of food that are sometimes not well tolerated. Second, I'm a vegan, which narrows down my options even further. If I really consider every possible problematic food I'm not sure I'd be able to eat anything at all. Are there intolerances I should be focusing on on the basis of probability?

I know I should be doing this under the supervision of a doctor or nutrionist but my resources are limited.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Hi Villified.

I think most people start with the top 8 allergens.

Open Original Shared Link

dilettantesteph Collaborator

It can take quite awhile to find all the gluten that you are still eating without realizing it. It took me about a year to really get rid of everything. I also got more sensitive to trace gluten as I went along so symptoms kept coming back until I got more careful with my diet. I am now down to very few processed foods. It might be a good idea to make sure that you have taken care of all the gluten before you get into other food intolerances because things can get very confusing. Keep a food diary no matter what.

Many celiacs have problems with dairy and soy so it would probably be a good idea to get rid of them right away. You can always try adding them back later. Oh wait, I remember you are vegan, no dairy anyway, or eggs. I was vegan when I was diagnosed, but I have added some dairy, eggs and meat now just to have enough to eat. I had to get rid of soy early on. I could handle soy if I got edaname in the shell, but otherwise there seemed to be too many cross contamination problems. It's a process.

cahill Collaborator
If I really consider every possible problematic food I'm not sure I'd be able to eat anything at all. Are there intolerances I should be focusing on on the basis of probability?

I was vegan or vegetarian for most of my adult life, so I can understand where you are with this,,,,Unfortunately ,for me what happened was, the very foods I had depended on while vegan/ vegetarian are the ones my body currently can not tolerate.I am hopeful that once my gut has healed I will be able to tolerate at least some ,if not all, of them again ( except gluten of course ).

Starting with wheat/gluten ( of course) soy,nuts and peanuts may give you a place to start. Other foods that some (not all ) celiacs are sensitive to are,soy, nightshades ( potatoes,tomatoes,peppers ect..),corn,grains,dairy .

Doing a strict elimination/reintroduction diet is very very tough,I am currently in the process of doing an elimination/reintroduction diet

Marie1976 Enthusiast

I'm a vegan too, so I'm in the same boat. And I'm dealing with headaches too. (I'm still eating gluten until after endoscopy.) Trying to figure out what is vegan and gluten-free. I didn't think there would be gluten in tofu, is there?

cahill Collaborator

I'm a vegan too, so I'm in the same boat. And I'm dealing with headaches too. (I'm still eating gluten until after endoscopy.) Trying to figure out what is vegan and gluten-free. I didn't think there would be gluten in tofu, is there?

This is a gluten free vegan recipe site Open Original Shared Link

the recipes on this site are quite good

I am currently unable to eat soy so I havent checked tofu for gluten.Sorry,, If you are unsure you can always call the company that produces your tofu,or check their web site ,,if they have one, for an ingredients list .

Marie1976 Enthusiast

This is a gluten free vegan recipe site Open Original Shared Link

the recipes on this site are quite good.

Awesome! Thanks! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,086
    • Most Online (within 30 mins)
      7,748

    M A Humphries
    Newest Member
    M A Humphries
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.