Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Might Be A Very Silly Question But Here It Goes :(


Dellers

Recommended Posts

Dellers Apprentice

I have never been to the USA I am flying out there during this week and I am making myself paranoid about toilets ! I have an anxiety problem along with gluten. In disney land I keep on looking at the online maps for the toilet locations. In the uk if you serve food there has to be toilets. Is it like this in the usa also ? I have always wanted to go over there but I am getting really paranoid about it I am not sleeping at night and feel really sick the last few days. My husband is helping me he has a list of gluten free places to eat out at :) but everything is new and I cant exactly just run home. I have three packets of imodiums for my luggage and I will get a few more before I leave.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aeraen Apprentice

Funny, I had the same anxiety when I traveled to the UK :lol: Everyone warned me that the gas (petrol) stations didn't always have restrooms like they do here. But, I never had a problem finding one.

And, yes, restaurants always have restrooms. I often swing into a McDonalds or other fast food restaurant just to use the loo.

Dellers Apprentice

haha joys of it. Thank you so much I feel really silly about it but I am just going out of my mind being so far away from everything I know. Can you tell me if the mac donalds or burger king chips are gluten free ? over here mac donalds are ok burger king is 50/50

kareng Grand Master

You can go to any fast food place & use the restroom and not buy anything. Grocery stores have them, too. I have even stopped at a hospital and used the one near the entrance. Shopping malls always have one near the Food Court area. Big stores like Walmart, Target Kohls, Bed, Bath & Beyond, Lowes, Home Depot are all easy to use.

Pf Changs is a really safe gluten-free place to eat. Be careful, some places, like Applebys, say they have gluten-free food but it is fried with the breaded things. I think there are restuarants in the Disney area that do a good job of gluten-free. You can go to a grocery to get fruit, yogurt, etc.

Dellers Apprentice

Thank you so much for all the help. I have always wanted to go over there but the last week I feel that I dont want to go over this. My husband found the changs place :) I will bring over a few bread rolls in my luggage just until I can find a grocery store. I will be arriving there at 4pm but with jet lag I will be very tired.

Meatballman Rookie

Not to worry Disney world has plenty of rest rooms .Went last August no problems.

rosetapper23 Explorer

If you're going to Disneyland, you're going to Gluten-Free Paradise! Not only are there restrooms EVERYWHERE, but almost every restaurant has a gluten-free menu. They serve gluten-free bread, pasta, hotdog buns, hamburger buns, and pizza there. When you first walk through the gate, go to an information booth and request everything they have about gluten-free accommodations at the parks--you'll be so surprised! I felt completely safe there. No matter where you eat at Disneyland, a restaurant manager will come out to visit you at your table and discuss all the precautions that will be taken with your food. When I ordered some ice cream, the employees actually opened a new package of ice cream and used a brand-new spoon. I had no problems with contamination whatsoever there...and, actually, I didn't want to leave...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dellers Apprentice

its such a relef to hear that :) we are renting a villa in the Disney area. I was in a panic the other night that there is no toilets around the car park area of it :(

srall Contributor

I have never been to the USA I am flying out there during this week and I am making myself paranoid about toilets ! I have an anxiety problem along with gluten. In disney land I keep on looking at the online maps for the toilet locations. In the uk if you serve food there has to be toilets. Is it like this in the usa also ? I have always wanted to go over there but I am getting really paranoid about it I am not sleeping at night and feel really sick the last few days. My husband is helping me he has a list of gluten free places to eat out at :) but everything is new and I cant exactly just run home. I have three packets of imodiums for my luggage and I will get a few more before I leave.

Hee hee...we are flying to England this summer and my daughter and I are gluten/dairy/soy/corn/blah blah blah...free. Anyhow, I'm nervous too, but I have to imagine that it will be the same amount of difficult or easiness to find foods and bathrooms there. I think you'll do fine. There is a very recent thread on the Parents of Kids board about Walt Disney World (in Florida) that may be helpful to you. I think you'll definitely be able to find nearby bathrooms. I hope you enjoy your trip.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,702
    • Most Online (within 30 mins)
      7,748

    Coach Chris
    Newest Member
    Coach Chris
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.