Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tidal Wave Of Intolerance The Aftermath?

Newtoitall

Recommended Posts

Newtoitall Enthusiast
Newtoitall
Posted

Hey thur lovely people, A quick question.

from what I gather, the healing process can be long and brutal for some.

alright, all good and fine, BUT I've been dealing with damn near every intolerance there is since this whole ordeal.

I'm basically being told I'm just healing, Anyone else with this kind of healing process? super sensitive digestion?

would love to know this is more common and it does hopefully..subside.. no biggy if not, y'know chickens..great =P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


starrytrekchic Apprentice
starrytrekchic
Posted

I felt this way after I'd been glutened, early on in the healing process. It took me a while to realize I react to everything (just the mere act of eating) in the days after I've been glutened. Basically, I was irritating the digestive tract which was already pretty irritated from the accidental gluten.

It also happened if I was getting low levels of cross-contamination repeatedly--I felt like I reacted to everything, really it was just that my intestines were constantly, mildly irritated, and any substance crossing through them made them more irritated.

In the end, I was only ever intolerant to onions, but at times when healing, it felt like I was intolerant of everything. So my advice is go through your gluten-free diet and recheck everything, especially for cross-contamination. When you start feeling like you can't eat anything, retrace your steps for a few days and see if there was a triggering point when you might have gotten some gluten.

IrishHeart Veteran
IrishHeart
Posted

I felt this way after I'd been glutened, early on in the healing process. It took me a while to realize I react to everything (just the mere act of eating) in the days after I've been glutened. Basically, I was irritating the digestive tract which was already pretty irritated from the accidental gluten.

It also happened if I was getting low levels of cross-contamination repeatedly--I felt like I reacted to everything, really it was just that my intestines were constantly, mildly irritated, and any substance crossing through them made them more irritated.

In the end, I was only ever intolerant to onions, but at times when healing, it felt like I was intolerant of everything. So my advice is go through your gluten-free diet and recheck everything, especially for cross-contamination. When you start feeling like you can't eat anything, retrace your steps for a few days and see if there was a triggering point when you might have gotten some gluten.

THANKS! this helps immensely...I have been 100% gluten-free, yet I believe I was glutened at my sister's house, then at the dentist's office 2X in the past month and so, I keep feeling as if I am reacting to EVERYTHING...it's ridiculous. I start to feel a bit better and then,I have heartburn or stomach pain or C or D or a huge increase in the chronic burning neuropathy I have or BRAIN FOG/Exhaustion or insomnia...so I KNOW it's been a gluten dose or CC because these are my "tells". :rolleyes:

I know the healing process is long, but geez, I'd like to have a few good days strung together....It's only been 10 weeks. So I'll be patient, but it's been so long and I was getting discouraged....until I read THIS!!

:)

cahill Collaborator
cahill
Posted

Hey thur lovely people, A quick question.

from what I gather, the healing process can be long and brutal for some.

alright, all good and fine, BUT I've been dealing with damn near every intolerance there is since this whole ordeal.

I'm basically being told I'm just healing, Anyone else with this kind of healing process? super sensitive digestion?

would love to know this is more common and it does hopefully..subside.. no biggy if not, y'know chickens..great =P

Brutal it can be some days,,give your body the time and care it needs to heal

healinginprogress Enthusiast
healinginprogress
Posted

I felt this way after I'd been glutened, early on in the healing process. It took me a while to realize I react to everything (just the mere act of eating) in the days after I've been glutened. Basically, I was irritating the digestive tract which was already pretty irritated from the accidental gluten.

It also happened if I was getting low levels of cross-contamination repeatedly--I felt like I reacted to everything, really it was just that my intestines were constantly, mildly irritated, and any substance crossing through them made them more irritated.

In the end, I was only ever intolerant to onions, but at times when healing, it felt like I was intolerant of everything. So my advice is go through your gluten-free diet and recheck everything, especially for cross-contamination. When you start feeling like you can't eat anything, retrace your steps for a few days and see if there was a triggering point when you might have gotten some gluten.

This is exactly how I've been feeling, too...like everything is poison, I react to everything! Yesterday I was feeling like I wasn't sure how much more I could take :( This gives me hope...also, I think it's time to get rid of the gluteny shampoo..it's worth a shot.

IrishHeart Veteran
IrishHeart
Posted

This is exactly how I've been feeling, too...like everything is poison, I react to everything! Yesterday I was feeling like I wasn't sure how much more I could take :( This gives me hope...also, I think it's time to get rid of the gluteny shampoo..it's worth a shot.

Out with the gluteny shampoo!! LOL

I did early on ....and my hair spray too (both had hydrolyzed wheat protein) and my scalp stopped breaking out....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.