Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Till I Heal?


chili

Recommended Posts

chili Apprentice

I was diagnosed 2 months ago. The majority of my symptoms have gone away. I still do get the occasional symptom. tingling in the hands and feet, or even heart palpitations. even bowl movements are still not normal..alot better than before? how long does it take for everything to back to normal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

They say children heal the fastest and adults can take 6 months to 2 years to fully heal.

It takes a while.

Brigit Apprentice

Hi,

it's wonderful that you've started seeing improvement. I've heard that you will start seeing results between 2 - 4 months, but like mentioned above it's going to take a lot longer for your body to build up it's vitamin and mineral stores again and for your body to heal and work effectively.

It'll be worth it!

All the best!

chili Apprentice

Hi,

it's wonderful that you've started seeing improvement. I've heard that you will start seeing results between 2 - 4 months, but like mentioned above it's going to take a lot longer for your body to build up it's vitamin and mineral stores again and for your body to heal and work effectively.

It'll be worth it!

All the best!

Thank you very much!! sometimes I feel that gluten is creeping into my diet!! I try very hard to be gluten free, although I have small children, and I handle bread on a regular basis. I try to sanitize but sometimes I feel it is not enough,

gailc Newbie

I hope you get resultsd quickly.

I guess I am lucky, or maybe it is not celiac disease. I had experienced 6 different kinds of pains in my intestines and nausea. They went away immediately. I was shocked. I expected maybe two weeks or 2-3 years as I read somewhere for complete healing.

I had food sensitivities before, beef and eggs, and after the waiting period of a week or so the only change was the 1 1/2 years of diahreah quit cold turkey. I noticed no other changes.

Eliminating wheat has changed a lot of things, dry eye-very painful is almost gone and nose stopped running. Also rice does not bother me now, it was a problem before.

I hope this is not celiac, would be nice to have a piece of wedding cake or something good in a restaurant.

gailc

gfreecarboholic Rookie

First, let me start by saying I am so thrilled to have found this forum. I am about as newbie as they come. I started eating gluten-free on Tuesday so I've only been on the diet a few days. I already feel better but yesterday I started having symptoms again. My question is, is this normal or have I glutened myself? I felt so great for the first couple of days. It was really frustrating to suddenly have a pounding headache and stomach pains again. Should I not have these symptoms anymore?

mushroom Proficient

First, let me start by saying I am so thrilled to have found this forum. I am about as newbie as they come. I started eating gluten-free on Tuesday so I've only been on the diet a few days. I already feel better but yesterday I started having symptoms again. My question is, is this normal or have I glutened myself? I felt so great for the first couple of days. It was really frustrating to suddenly have a pounding headache and stomach pains again. Should I not have these symptoms anymore?

At this point it is hard to know if you have been glutened. It IS normal to have ups and downs, our good days and bad days, when we first start the diet. Or you could have gotten some cross-contamination somewhere, which is easy to do - especially if you haven't had much experience at avoiding gluten :) Hope you are feeling better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chili Apprentice

Maybe you got some cross contamination...I am feeling pretty crappy for the last couple of days, all my symptoms are back..I got sick from taking a multivitamin that claimed it was gluten free..I have been paying for it...when I get glutened it takes me a good week to recover. Is that normal? does anyone else take that long...I feel like I have no energy to move. I have 3 small children and find that I am dragging my butt around... I just want to feel better!!

gfreecarboholic Rookie

Thanks Mushroom and Chili! I appreciate the words of wisdom. I am starting to wonder if my medication is making me sick. I've been on Synthroid for about 7 years now and I just ran across a website last night that said it could contain gluten. I tend to feel worse at night which leads me to believe that it may be something I am taking regularly (I take Synthroid every morning). I am going to talk to my doctor about switching to the generic that is gluten-free.

Thanks again!

TSA Rookie

Thanks Mushroom and Chili! I appreciate the words of wisdom. I am starting to wonder if my medication is making me sick. I've been on Synthroid for about 7 years now and I just ran across a website last night that said it could contain gluten. I tend to feel worse at night which leads me to believe that it may be something I am taking regularly (I take Synthroid every morning). I am going to talk to my doctor about switching to the generic that is gluten-free.

Thanks again!

gfreecarboholic,

I'm new to this forum too! I found out that I was celiac back in Nov 2010, at first it was difficult but now its getting easier. They say it takes awhile to heal. I was sick for a year before I found out, so I'm wondering if it will take another year to be back to normal, if theres such a thing anymore. I wish I would've joined sooner. Good luck and I hope you find your answers!

Tammy

Marilyn R Community Regular

I'm almost at the one year gluten-free point. I feel so much better than before, but not up to the level I used to be.

I've been to multiple specialists and they've all run oodles of blood tests. Based on what I'd read on this forum, I recently requested that my endocrinoligist check my Vitamin D level. It's really low, even though I live in the sub-tropics and don't use sunscreen. (I also asked for a B-12 and Iron, those were normal, but other forum members have had results below the normal range.)

The specialist copped an attitude with me about asking for blood tests but I was insistent. She told me being soy intolerant could just be in my mind. When I told my boyfriend about that, he said, "Don't you wish you could just wiggle your finger at her to give her diarreah? You could ask her if that was in her mind or in her PANTS?"

I guess I'm keeping the dear Irish BF, thinking about ditching the doctor. (Her office hasn't called me about my blood tests, I only learned about them because I picked up a copy of them up myself today. They were drawn on 3/15/11.

My advice is to read (especially from this forum), search symptoms, and become a pitt bull in your doctor's office visits. Hope that helps, and hope you feel better soon!

chili Apprentice

Thanks for all the advice, 4th day of my CC and I am starting to feel better!! Have to really watch what I am intaking....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.