Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free For A Few Days And Not Feeling Great


xxkristin

Recommended Posts

xxkristin Apprentice

I was diagnosed with celiac disease a couple days ago and since then I've been eating gluten free, well to my knowledge at least. The past 2 days, I've been hungry constantly. Even after eating a meal, I'll still be hungry. And I get REALLY hungry and have stomach pains sometimes. I also feel a bit weak at times and nauseous, especially when I'm hungry. Is this normal after you cut out gluten? And if so, how long does it usually take to go away? I don't really like feeling hungry and nauseous all the time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

It is very normal. Many people have the extreme hunger and it is like your body is trying to make up for the malnutrition. I don't know how long it lasts, but mine took a few weeks to settle down. Hope you feel better soon. For now, eat as much as you like and can tolerate. Mostly whole foods, not packaged foods. The healing will take a while, but it should get easier. Welcome!

Strawberry-Jam Enthusiast

Definitely normal! I wasn't experiencing it as badly as you did, but after going gluten-free I started getting hungry many times a day and my stomach would actually GROWL. This was a huge step forward for me, since my primary symptoms were never feeling truly hungry, since my stomach emptied so slowly of undigested gluten, or being bloated/full alla time with acid reflux no matter how little I ate.

It should settle down after a while. For now, eat what you can, and make sure you get enough fat and protein, which should help keep you fuller longer.

Brigit Apprentice

Hi,

I've only been gluten free for 3 weeks. And they have been rather rough. Some days, I've been incredibly tired and very sore, and also like you mentioned; nauseous and hungry. But in between those days I've had glimpses of what it's going to feel like to be better, to wake up with no tingling in my hands and have no dizziness during the day. And that's what you need to remind yourself about.

We need to put some hard work in now, emotionally and mentally to help our bodies through a difficult time. You're body is going through change, so it's not going to be easy, but it is going to be worth it.

And yes, eat lots of what you can. Fresh fruit and veggies. Nice fish and meat, nuts and seeds. There are quite a few lovely treats to snack on.

Stick it out, I've been told that you'll start feeling better around 2 or 4 months, that's not to far away. :)

T.H. Community Regular

Hungry all the time - yeah, not uncommon symptom. Mine lasted about 8 weeks, and I was simply hungry every moment of the day. Yeah, that sucked. A lot. But it did go away.

Nausea - sometimes that can be hunger, but sometimes it can be due to intolerances, like dairy. Most of us are lactose intolerant until we've healed. The part of the villi that makes lactase is also the part that our gut attacks when we eat gluten. <_< But for most celiacs, this passes after you've healed, often around 6 months or so, I think?

Emma-Lee Rookie

When I went gluten free (3 weeks ago) I noticed the hunger right away. YES NORMAL. What I did was make sure I was packing myself plenty, I mean plenty of food for work. LOTS of snacks, I ate so much, but I didn't care because I hate being hungry and nauseous....3 weeks later I don't need as much. So I just recommend being accepting of yourself, and knowing that you need to eat more regularly and more often for a while. It was tough, but it takes time. Oh, and that gas can take months to clear. Your GI has to heal....it's been so frustrating for me, but I totally get yah....hang in there, it will pass.=)

AerinA Rookie

For me the nausea turned out to be low blood sugar. I think it was withdrawal/body in starvation mode/"ohmygodwhereismygluten." I think our bodies are trying to make us eat gluten because that's what you're used to and a lot of people do have some form of withdrawal. I was actually hungry all the time PRE-gluten free diet and had vitamin deficiencies, after a few weeks on the diet I'm eating a much more normal diet, by choice, rather than having to force myself to wait for the next meal. Things get better all the time. I'm sure they will for you, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - daniellelawson2011 replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    2. - trents replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    3. - daniellelawson2011 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    4. - Joe R replied to Joe R's topic in Related Issues & Disorders
      2

      Immunologist Referral if IgA Deficient

    5. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Help needed


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,688
    • Most Online (within 30 mins)
      7,748

    Ann T
    Newest Member
    Ann T
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • daniellelawson2011
      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
    • daniellelawson2011
      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Thank you for your advice. I appreciate the help. 
    • nanny marley
      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
×
×
  • Create New...