Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Biopsy

salexander421

Recommended Posts

salexander421 Enthusiast
salexander421
Posted

Well, they called with my results today and they said there were no signs of celiac. I asked them to send me a copy of the report so I can overlook it myself. They did find gastritis, inflammation in my esophagus, and a hiatial hernia. This doesn't really surprise me given the fact that when I eat gluten I get indigestion and stomach issues. I'm not sure how many biopsies they ended up taking so I'm not sure if the test is even conclusive for celiac. But, looks like I have no signs of celiac.

Given the fact that I have major issues when I eat gluten, something is obviously bothering my insides according to the endoscopy results :P, I have two copies of DQ8, and pretty much all of my issues resolve on a gluten free diet...I'm officially diagnosing myself with non celiac gluten intolerance :)

I've only been gluten free for almost a week now and I already have pretty much zero gas, my stomach cramps have lessened quit a bit, my brain feels clearer, and I already have improved energy. Given the fact that I was gluten free for about a year before doing a 3 month gluten challenge I think my body will probably bounce back much quicker this time around.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I hope you bounce back quickly. Sounds like your body is telling you being gluten free is the right thing.

salexander421 Enthusiast
salexander421
Posted
  • Author

Thank you, I'm just so glad to have all the testing behind me so I can get on with my healthy lifestyle!

MsCurious Enthusiast
MsCurious
Posted

Thank you, I'm just so glad to have all the testing behind me so I can get on with my healthy lifestyle!

You must be relieved to know you don't have Celiac! Good for you that you realize you have NCGS and will continue gluten free. That is exactly what I plan to do, regardless of my biopsy outcome. I will just be happy to know I don't have celiac, but having DQ2.5 marker and the symptoms I have, and knowing gluten-free makes me feel so much better, as soon as the biopsy is done, I'm gluten free. No more poison for me! Congrats to you salexander421! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,935
    • Most Online (within 30 mins)
      7,748
    Kristina Windom
    Newest Member
    Kristina Windom
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Help I’m cross contaminating myself,

      By Wheatwacked · Posted

      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Bitters for digestion?

      By Wheatwacked · Posted

      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.