Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Someone Give My Hubby Advice On Live gluten-free With Me


shayre

Recommended Posts

shayre Enthusiast

Hi. Could the non-celiacs (and celiacs) give my husband advice on how to live with my celiac disease as a family. I have been the only one gluten-free. My hubby and 2 small kids are not. I am beginning to realize that constant cross-contamination might be the source of feeling bad all of the time, and making othe autoimmune diseases flare up more often. I don't expect everyone to go gluten-free, although it would be nice. I know it's huge to ask them to make so many changes for my health. I think that my husband, David, would appreciate any thoughts and advice for dealing with this situation as a non-celiac. Anything to also help him understand the situation better and to not feel alone. I know that it's frustrating for everyone, especially when I'm not feeling well most of the time. David is sweet and understanding, but I think that he needs to hear from others at this point.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Hi David! It is very important that you help keep your wife safe by either drastically reducing the amount of gltuen in your house or eliminating it completely. Gluten is like a poison to your wife. Everytime you touch something with gluten and then your wife touches that thing after you it risks harming her/making her ill if she eats or touches her face after that. You cannot "kill" gluten with hand sanitizer like you can germs. It is a food protein and needs to be washed away with water and soap. You also can make your wife sick if you drink beer or eat a sandwhich and then kiss her. If you want to keep eating gluten AND help your wife stay healthy brush your teeth right after you eat gluten so you can safely kiss her.

Some ideas for keeping your wife safe if you plan to still have gluten in the house:

Choose one countertop or area of the kitchen that is the the gluten only zone. Prepare all gluteny food there and clean it well when you are done so your wife doesn't have to clean the gluteny crumbs.

When you wipe up some crumbs or wash a dish in the sink with a washcloth put that washcloth right into the dirty laundry pile or the washer so you wife does not use the same cloth on the gluten free countertops.

Flour and mixes that contain wheat flour (muffin, cake cookie) need to be banned from your home. Flour goes in the air and stays they for many hours afterward. The dust settles on everything and contaminates it. Airborne flour CAN make your wife sick.

You need to get new pans for gluten free cooking IF you have nonstick pans. The gluten settles in the scrathes of the pan and will continue to make your wife sick as long as she uses them to prepare gluten free food.

You also need to replace (get gluten-free dedicated) cutting boards, colander, plastic spatulas, wooden spoons and anything else that is plastic/has scrathes/or is made from a porous material like wood.

If youa re insistant on eating sandwiches and other gltueny food YOU need to make it yourself or your wife will need to wear gloves. While yes it is possible for her to make a sandwicha nd then wash her hands afterward it is NOT pratical and increases her risk of continuing to be ill dramatically.

You need to NOT share things that are gluten free. If you have a bag of chips and you are eating a sandwhich, as soon as you or one of the kids reaches their hand into that bag of chips, the chips are no longer safe for your wife to eat. You can deal with this in one of two ways--have her get her chips first and not take anymore after that and also mark the bag so she doesn't eat them later OR get her her own bag of chips and mark them "mom's chips ONLY" of something like that. This same principle also applies to all condiments in the house that your share. She needs her own butter, pb, mayo, cheese, lunch meat etc. Some members here with mixed households just put brightly colored ducktape on everythign that is for the gluten free eater.

You need to start feeding the kids mostly gltuen free (if not completely gluten free). There are many cereals out there that are kid friendly. There are also many normal meals that are naturally gluten free and don't require special bread, etc. If the kids are going to keep eating gluten, dad needs to feed it to them and dad needs to clean them up after they eat. They need to not kiss or touch mom until they have washed their faces, washed their hands and brushed their teeth.

So those are just the things off the top of my head....I'm sure there are many other things I forgot. Bottom line though is it is A LOT more work to keep a mixed household than it would be to just make everything in the house gluten free. In the end you may have to make your house gluten free in order for your wife to get healthy. My household is gluten free because my husband would not be able to do everything that is required to keep me safe and healthy. He works a full time job and he would forget too often. We have adapted just fine to having different meals. I don't think there is anything he misses that I used to make at home. He can eat whatever he wants when he is at work, out with friends or when we go out to eat. And the upside is we have discovered so many new meals that we love that we never would have tried if we were not forced to make the household gluten-free. I hope you will seriously consider making your home mostly gluten free and helping your wife to feel better. I posted in one of her other threads a little bit about all the different things that could happen to her healthwise if she does not get rid of the cc issues at home. Please take this seriously and help your wife be healthy!

Takala Enthusiast

My husband voluntarily went gluten free at home after watching me get sick one too many times. At the time it really surprised me, but he says he does not miss gluten foods since he eats lunch out and can have it then, if he wants it. We use rice pasta for spaghetti or macaroni dishes, and he eats gluten free breakfast cereals now. Those have been the 2 major changes. I was baking before anyway, and now it's just different ingredients.

He is unusual as he also can and does shop and cook, and this way it's easier for him if we have this set shopping list of things that he knows are safe - he pretty much leaves the baking part and shopping for the gluten free flours or the nuts that I process into nutmeals to me. He's never been a big junk food eater anyway, and tends to want to eat more vegetables and grilled meats, baked chicken, or fish than a lot of people.

Funny story. I had heard all this stuff about the Udi's, and decided to get a loaf so he could taste it (it has one ingredient I don't like, and it's white bread anyway, so I was more curious about his reaction and comparison to regular bread, than my having any intention of eating it.) It must have taken 4 months for the stuff to get used up out of the freezer. He said it wasn't bad, but it was just sort of "there," like white bread, not freshly baked. I'm like, don't you want bread, and he's like, no, if it's something fast I need, just let me put the peanut butter on a rice cake or a tortilla.

With kids, it might be a slightly larger adjustment at first, because if you "ban" something that tends to make them want it more. You'd also have to be good at finding or making yummy substitutes for their favorite snacks, if they are gluten filled. This isn't a biggie if you treat it as an exploration or an exciting new journey, and not as a punitive sentence. You will end up eating much healthier than other families who do not cook from scratch as often. One of the most charming videos I have seen on youtube was for a recipe for some sort of simple gluten free sponge cake, and it was a British lady that was teaching her small child how to make it while describing it for the camera. If children think that cooking gluten free is not a big deal, it won't be a big deal.

alex11602 Collaborator

With kids, it might be a slightly larger adjustment at first, because if you "ban" something that tends to make them want it more. You'd also have to be good at finding or making yummy substitutes for their favorite snacks, if they are gluten filled. This isn't a biggie if you treat it as an exploration or an exciting new journey, and not as a punitive sentence. You will end up eating much healthier than other families who do not cook from scratch as often. One of the most charming videos I have seen on youtube was for a recipe for some sort of simple gluten free sponge cake, and it was a British lady that was teaching her small child how to make it while describing it for the camera. If children think that cooking gluten free is not a big deal, it won't be a big deal.

My 4 year old daughter ended up loving gluten free eating as soon as I made her favorite food...pizza, except I used a potato and rice crust. After that it was so easy to get her to eat gluten free and my husband decided to do it for our health (my baby and I have celiac and the doctors suspect that the 4 year old may also).

To the original poster:

I think it is important for your husband to know that difference that it will make in your life. If you keep getting sick you won't be able to do as much as a family, but if you stay healthy you can spend more time together. I had my husband do research on what could happen so that he really knew the importance of the "diet". Good Luck.

T.H. Community Regular

I can pass on words of wisdom from my hubby, at least. :-)

First, this last Christmas at his mother's house, my hubby was talking about what we do to stay safe, how careful we are, what we can and can't eat/touch/and so on. His mother is very skeptical that we need to be THAT careful.

His reply was this: sometimes, I might not always feel like it's reasonable to be that careful, that maybe they don't have to worry about the cross contamination as much as they do. but at the same time, I'm not the one who is going to feel terrible or in pain if I'm wrong. And since I'm her husband, I'm going to support her in her trying to stay healthy, even if I don't understand it all.

Second thing from hubby. He came up with a way to describe gluten cc that I thought made sense and was easy to think about: gluten is rather like raw meat. Separate cutting boards for both. If you touch both, you wash your hands before you are touching other food you would eat. If you use utensils on both, you wash them before they are allowed to touch other food you would eat. If you touch both and then touch something else, then you wash your hands AND the thing you touched. If either of these things spills onto a surface, you wash it well afterwards.

The only major difference is that with raw meat, you can cook it and it'll be fine. Not the case with gluten, so any pans that have gluten cc need a thorough washing and scrubbing. Think about how high a heat is used to cook bread, and for how long, and the gluten is still there, happy and read to make us sick. This stuff is really, really hard to destroy. Soap and water and scrubbing if necessary, yes. Sterilizing techniques like steam and sanitizer - nope, doesn't do a thing.

Hope that helps a little. Good luck in finding a good compromise that works for you and your family. :-)

RebeccaLynn Rookie

This post just about made me cry - I am dealing with the exact same issue right now - non gluten husband & 2 kids. As I read your post, it sounded word for word what I have been saying in my mind for the last month as I struggle with being sick constantly. I also don't have the heart to ask everyone in my family to go gluten free, but it seems to be the only way that I will feel better.

So, thank you so much for putting into words what I have wanted to say, and for the EXCELLENT replies that are so helpful - I hadn't even thought of kissing as a means of cc!!! I am going to have my husband read this thread so he understands how serious this all is.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AnneSN commented on Jefferson Adams's article in Additional Concerns
      1

      Are Delimex Taquitos Gluten-Free?

    2. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    3. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    4. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    5. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.