Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel Like People Are Irritated With Me...

Jenn624

By Jenn624
in Coping with Celiac Disease

Recommended Posts

Loey Rising Star
Loey
Posted

I may just be oversensitive, but I feel like people get annoyed by me needing to know ingredients and not going out to eat at certain places.

I have a bridal shower to go to and just messaged the bride to ask about the menu. I can feel her rolling her eyes.

I am overreacting. I know that. I already told my husband I am worried about Easter dinner at my in-laws. He insists it will be okay and I just have to tell them what I can eat. I know differently. She couldn't understand at New Year's why I couldn't have the corn casserole when it only had ONE TABLESPOON on flour. I tried to remind my husband how his mom cooks...it will be things with tons of ingredients and I will end up sick. He naively disagrees.

We are having a luncheon at the school where I teach and it's a covered dish. I looked at the menu and it's going to be slim pickings for me once again.

I never realized how much our world revolves around food...

Jenn

I don't think you're over reacting. This is a really tough diet to follow and even harder for outsiders to understand. Most restaurants and caterers will work with you on a simple menu. I had a restaurant bend over backwards o help me after a funeral.

I'm posting a few links on celiac that you might want to share with the bride and others. I hope that they help. Please feel free to PM me anytime if you need to vent.

Loey

Open Original Shared Link

https://www.celiac.com/gluten-free/

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenngolightly Contributor
jenngolightly
Posted

"OMG I know why you got sick - I used the mayo!"

We use the squeeze mayo. In fact, if anything comes in a squeeze bottle, that's what we buy. If you are budget conscience, you can buy your own squeeze bottles and transfer condiments into those. Even if I wasn't gluten-free, I'd buy squeeze bottles. It's nasty to see those little crumbs and unidentifiable specks of other food sitting in the margarine or mayo. Blech.

monika Newbie
monika
Posted

Try being in college where all of the on campus food easy grab stuff is things you can't have. I was walking past a group that had pizza hut personal pizzas and i was just about ready to die right then and there. I wanted it sooooo bad, but decided it was not worth it, which lead to me thinking i could make my own even better so :)

Yeah it stinks. My grandmother makes homemade bread (the gluteny kind). She was baking a loaf over the weekend and i just about lost it due to the oh so good smell. Again i told myself it wasn't worth it.

One day at a time :)

hahah I usually avoid going near the places with food on campus. It's horrible! the temptation is there but you can't. Oh well, like you said it's not worth it. I'm just glad im out of the dorms. I can finally make my food in my own kitchen!!!! :D

K8ling Enthusiast
K8ling
Posted

I bring all my own food, and tell them ahead of time. I tell them all about the disease and if it is a problem then I eat before I go. I have never had to skip an event because of food before.

I used to worry I was being inconvenient but if it was a peanut allergy people would bend over backwards. So now I just do it, no fuss, and they can deal with it.

taysic Rookie
taysic
Posted

Folks with gluten intolerance are EXTREMELY sensitive ... forget it if others don't get it.

color-me-confused Explorer
color-me-confused
Posted

I Thought of this post today when I was at work. I had over heard some women talking about me and my "Fad" diet and how I wanted to just feel special and make it all about me. I couldn't believe it! When it comes to food I have to make it about me. SOoooo frustrating!

Wow. My co-workers on learning about the celiac diagnosis generally say something like: "wow, that's rough. can you still drink beer?" really, I've fielded the beer question about 8 times. I work with scientists and engineers and anything novel tends to bring out the curiosity ;) It's a small company so I'd rather have most people I am routinely in contact with know than not know.

Lima Bean Newbie
Lima Bean
Posted

I have had surprising good responses.

"Why did you bring your own food? The food at this party is reallly good?"

I tell them I have Celiac and get:

" oh! That's gluten free, right? ". Then they tell me about someone they know who is gluten free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Loey Rising Star
Loey
Posted

I may just be oversensitive, but I feel like people get annoyed by me needing to know ingredients and not going out to eat at certain places.

I have a bridal shower to go to and just messaged the bride to ask about the menu. I can feel her rolling her eyes.

I am overreacting. I know that. I already told my husband I am worried about Easter dinner at my in-laws. He insists it will be okay and I just have to tell them what I can eat. I know differently. She couldn't understand at New Year's why I couldn't have the corn casserole when it only had ONE TABLESPOON on flour. I tried to remind my husband how his mom cooks...it will be things with tons of ingredients and I will end up sick. He naively disagrees.

We are having a luncheon at the school where I teach and it's a covered dish. I looked at the menu and it's going to be slim pickings for me once again.

I never realized how much our world revolves around food...

Jenn

I'm so sorry you are going through this. I'm posting some links below that explain celiac to those who don't suffer from it. I hope it helps your husband to understand your problem and how important it is to remain gluten-free. Feel free to PM me if you need to vent one-on-one.

Loey

Open Original Shared Link

https://www.celiac.com/gluten-free/

Open Original Shared Link

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.