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I Feel Like People Are Irritated With Me...

Jenn624

By Jenn624
in Coping with Celiac Disease

Recommended Posts

Loey Rising Star
Loey
Posted

I may just be oversensitive, but I feel like people get annoyed by me needing to know ingredients and not going out to eat at certain places.

I have a bridal shower to go to and just messaged the bride to ask about the menu. I can feel her rolling her eyes.

I am overreacting. I know that. I already told my husband I am worried about Easter dinner at my in-laws. He insists it will be okay and I just have to tell them what I can eat. I know differently. She couldn't understand at New Year's why I couldn't have the corn casserole when it only had ONE TABLESPOON on flour. I tried to remind my husband how his mom cooks...it will be things with tons of ingredients and I will end up sick. He naively disagrees.

We are having a luncheon at the school where I teach and it's a covered dish. I looked at the menu and it's going to be slim pickings for me once again.

I never realized how much our world revolves around food...

Jenn

I don't think you're over reacting. This is a really tough diet to follow and even harder for outsiders to understand. Most restaurants and caterers will work with you on a simple menu. I had a restaurant bend over backwards o help me after a funeral.

I'm posting a few links on celiac that you might want to share with the bride and others. I hope that they help. Please feel free to PM me anytime if you need to vent.

Loey

Open Original Shared Link

https://www.celiac.com/gluten-free/

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

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jenngolightly Contributor
jenngolightly
Posted

"OMG I know why you got sick - I used the mayo!"

We use the squeeze mayo. In fact, if anything comes in a squeeze bottle, that's what we buy. If you are budget conscience, you can buy your own squeeze bottles and transfer condiments into those. Even if I wasn't gluten-free, I'd buy squeeze bottles. It's nasty to see those little crumbs and unidentifiable specks of other food sitting in the margarine or mayo. Blech.

monika Newbie
monika
Posted

Try being in college where all of the on campus food easy grab stuff is things you can't have. I was walking past a group that had pizza hut personal pizzas and i was just about ready to die right then and there. I wanted it sooooo bad, but decided it was not worth it, which lead to me thinking i could make my own even better so :)

Yeah it stinks. My grandmother makes homemade bread (the gluteny kind). She was baking a loaf over the weekend and i just about lost it due to the oh so good smell. Again i told myself it wasn't worth it.

One day at a time :)

hahah I usually avoid going near the places with food on campus. It's horrible! the temptation is there but you can't. Oh well, like you said it's not worth it. I'm just glad im out of the dorms. I can finally make my food in my own kitchen!!!! :D

K8ling Enthusiast
K8ling
Posted

I bring all my own food, and tell them ahead of time. I tell them all about the disease and if it is a problem then I eat before I go. I have never had to skip an event because of food before.

I used to worry I was being inconvenient but if it was a peanut allergy people would bend over backwards. So now I just do it, no fuss, and they can deal with it.

taysic Rookie
taysic
Posted

Folks with gluten intolerance are EXTREMELY sensitive ... forget it if others don't get it.

color-me-confused Explorer
color-me-confused
Posted

I Thought of this post today when I was at work. I had over heard some women talking about me and my "Fad" diet and how I wanted to just feel special and make it all about me. I couldn't believe it! When it comes to food I have to make it about me. SOoooo frustrating!

Wow. My co-workers on learning about the celiac diagnosis generally say something like: "wow, that's rough. can you still drink beer?" really, I've fielded the beer question about 8 times. I work with scientists and engineers and anything novel tends to bring out the curiosity ;) It's a small company so I'd rather have most people I am routinely in contact with know than not know.

Lima Bean Newbie
Lima Bean
Posted

I have had surprising good responses.

"Why did you bring your own food? The food at this party is reallly good?"

I tell them I have Celiac and get:

" oh! That's gluten free, right? ". Then they tell me about someone they know who is gluten free.

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Loey Rising Star
Loey
Posted

I may just be oversensitive, but I feel like people get annoyed by me needing to know ingredients and not going out to eat at certain places.

I have a bridal shower to go to and just messaged the bride to ask about the menu. I can feel her rolling her eyes.

I am overreacting. I know that. I already told my husband I am worried about Easter dinner at my in-laws. He insists it will be okay and I just have to tell them what I can eat. I know differently. She couldn't understand at New Year's why I couldn't have the corn casserole when it only had ONE TABLESPOON on flour. I tried to remind my husband how his mom cooks...it will be things with tons of ingredients and I will end up sick. He naively disagrees.

We are having a luncheon at the school where I teach and it's a covered dish. I looked at the menu and it's going to be slim pickings for me once again.

I never realized how much our world revolves around food...

Jenn

I'm so sorry you are going through this. I'm posting some links below that explain celiac to those who don't suffer from it. I hope it helps your husband to understand your problem and how important it is to remain gluten-free. Feel free to PM me if you need to vent one-on-one.

Loey

Open Original Shared Link

https://www.celiac.com/gluten-free/

Open Original Shared Link

Open Original Shared Link

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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