Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Keeping Positive And Feeling Blessed


WinterSong

Recommended Posts

WinterSong Community Regular

I just wanted to express my gratitude for all of the positive things that have come into my life this past week. I was diagnosed with Celiac last Friday via blood test. I've always been an incredibly health eater but have been struggling with horrible stomach aches (among other things) for about four years now. I always thought it was IBS but could never figure out what would cause my "attacks". I'd be scared to eat out, scared to eat at all at times. I had heard about Celiac, and after being incredibly sick for about a month, I decided to go to the doctor to get tested for it, just in case.

Honestly, I was really upset when I got the diagnosis, but now I'm excited. FINALLY I understand what's wrong. It's so easy get upset and overwhelmed (and I have been feeling A LOT of both over the past week), but I'm now seeing this as a positive thing. As long as I stick to this new lifestyle - I won't be sick anymore. And that's a really incredible thought. I was told to continue eating gluten until I get my biopsy done in two days, and I'm so excited to start the diet. Yes, it will be hard at times and there's still a long road ahead to figure out what works for me (I think I may be lactose intolerant as well), but it's just a new adventure. And I am SO ready to not be sick anymore.

My boyfriend helped a lot. I was really nervous to tell him about it, but tried to phrase it in the most positive way I could. He understands the difficulties (especially since we can't go to our favorite restaurants anymore) but said, "I feel bad that you can't eat some of your favorite foods, but I'm so happy that we know what's wrong. You need to do whatever you need to do to be healthy." He even said that he'd try out some of the gluten-free restaurants I found.

Also, my sister is a baker who has always wanted to open up her own bakery for those with special dietary needs. She knows how much I love to bake, and the moment I told her I was positive, she instantly decided to research and test out some recipes for me - cookies, cupcakes, bread....

And I'm grateful for everyone on this forum. Checking all of my food and bathroom products and finding new options has been pretty stressful over the past week, but anytime I had a question google took me straight to this forum with lots of people willing to help and offer their experience.

So thank you so much to everyone. I'm excited to begin a new, healthy chapter of my life.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Noomers Rookie

Awesome! I am trying to remain so grateful that I live in an area of the world with easy access to gluten-free foods. It could be so much worse!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...