Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2 Mos Gluten Free -- Symptoms Return -- Help

raeskids

Recommended Posts

raeskids Rookie
raeskids
Posted

Samuel has been gluten free since January 20. Until March 10, he seemed to be doing really well. We went out to eat for my husband's birthday and I ordered some food from the gluten free menu for myself and gave him some -- there must have been some cross-contamination.

His bowel movements are terrible. He's got a diaper rash that bleeds, and I've seen blood in his stool. His stool is gritty, like sand with dark flecks. (Sorry, I know this is tmi, but I also know you guys understand and help.)

How long till this works its way out?

Samuel was classified as having severe Celiac Disease and had a bought of Celiac Crisis back in January that landed him in the hospital for around 7days.

Also, he's still not gained any weight. He hasn't lost any either (which is really good since they were considering feeding him with an iv for a while.) He does have much more energy, but still sleeps a great deal. Let's see -- 12 hours at night, and then a 3hour nap and another 1-2 hour nap. He's 18months.

Thanks for the advice and help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

It sounds like you are going to have to be extremely careful what you feed Samuel - poor wee guy is so sensitive :unsure: It sounds like eating out is too risky for him right now; if you do eat out you will need to take some food from home for him. You need to get him healed up really well at home on whole foods. What has he been eating and what does he seem to tolerate well?

Forgive me if I don't recall what kind of supplements you have him on and if they have given him any treatment regime. Could you remind us please?

MacieMay Explorer
MacieMay
Posted

Poor little guy!!

All the sleeping is probably good for him. All the trama his little body has been through. He's probably just catching up. The body heals and babies grow when sleeping.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,007
    • Most Online (within 30 mins)
      7,748
    Comb0001
    Newest Member
    Comb0001
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      Chances of being coeliac

      By Scott Adams · Posted

      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Wheatwacked
      Chances of being coeliac

      By Wheatwacked · Posted

      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.