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Gluten "test"


Kelleybean

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Kelleybean Enthusiast

Hi -

I have a strange question. My son is on a gluten free/casein free diet for 4 months not b/c of celiac but b/c of autism. We did not notice any dramatic improvement with the diet, but that might have been b/c we made the transtion VERY slowly. We reintroduced a little casein and he did fine. Next we want to test him on a small amount of gluten to see if there is a reaction to give us guidance on whether to continue with the diet.

So this is my question ... do people who do not have a gluten sensitivity have a reaction when gluten is re-introduced when they haven't had gluten for a while? I was trying to figure out if we see any reaction if this means he's gluten sensitive or if we should expect to see some problems no matter what since he's been it's been 4 months.

I hope I'm making sense!


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CrunchyChristianMama Newbie

If he's not sensitive to gluten he won't have a reaction to it just because he hasn't had it for 4 months.

Hi -

I have a strange question. My son is on a gluten free/casein free diet for 4 months not b/c of celiac but b/c of autism. We did not notice any dramatic improvement with the diet, but that might have been b/c we made the transtion VERY slowly. We reintroduced a little casein and he did fine. Next we want to test him on a small amount of gluten to see if there is a reaction to give us guidance on whether to continue with the diet.

So this is my question ... do people who do not have a gluten sensitivity have a reaction when gluten is re-introduced when they haven't had gluten for a while? I was trying to figure out if we see any reaction if this means he's gluten sensitive or if we should expect to see some problems no matter what since he's been it's been 4 months.

I hope I'm making sense!

Roda Rising Star

If he's not sensitive to gluten he won't have a reaction to it just because he hasn't had it for 4 months.

That was my thought. We put my youngest son gluten free after he had a full celiac pannel done. The only thing positive was the ttg. I figured he is celiac based on that positive test and me having it. We did not do a scope or consult with a GI. His daddy wanted a little more evidence that we did the right thing so after 4 1/2 month we decided to do a gluten challenge. Gluten definately bothers our son and the challenge only lasted 3 days when his daddy said enough. He is happily back gluten free, as the challenge was to me that there was proof in the pudding. If your son truely does not have an issue with gluten it shouldn't matter that he hasn't had it in that long.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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