Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3Rd Time's The Charm?


Strawberry-Jam

Recommended Posts

Strawberry-Jam Enthusiast

So, had a random crying spell this morning, depression and fatigue and headache even though I felt really good when I woke up (slept 9 hours, woke up naturally). I want to punch through a window or just sob. No reason. School is going well and I'm getting the hang of this celiac thing. But I just want to cry and cry.

Looked at the Maranatha almond butter that I had with breakfast today because I needed the protein. "May contain traces of soy......"

GAERHRHGAEHEATGEAFL

I had it on gluten-free SF chips for dinner last night too, so there'll be a little buildup. Besides this I have been very diligent about cutting out soy (ALL forms) for about a week. Since I cut out soy I haven't had these random sleep and depression attacks.

So I guess this means I definitely have a very serious soy intolerance? This is the 3rd depression "attack" that I can link to soy or soy lecithin.

I have no reason to be depressed except for that this is another food item I spent more money than usual on (costs more than PB) that I will have to throw or give away, which is frustrating. When I am using the reasoning part of my brain I feel pretty good. I laugh at jokes in class and enjoy people's company. But I am holding back the randomest tears and the front and back of my head hurts and sometimes my vision is a little off, like it's sliding around (if that makes sense to any of you).

WHEN WILL THIS END? That's what I want to know. When will I stop making mistakes and start feeling better on a consistent basis?? I only have a month left of school before I GRADUATE and I don't want to spend it feeling so bad!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenngolightly Contributor

WHEN WILL THIS END? That's what I want to know. When will I stop making mistakes and start feeling better on a consistent basis?? I only have a month left of school before I GRADUATE and I don't want to spend it feeling so bad!

It doesn't really end, you know? If you're intolerant to multiple foods, you're always on the look-out. I have this problem, too.

The good news is that you'll find your go-to foods and you can eat these without worry. If you want to add something new, that's when you have to worry all over again. Also, when you go out to eat or eat at someone's house. That's a worry, too. But once you find your go-to foods, you'll start to feel better. Make sure you find some go-to foods that are fast and tasty. Also, make sure some of them are snack foods that you can carry with you.

I'm a "no gluten, dairy, nuts, or corn" girl, so I know what you mean about feeling bad. I felt bad for a LONG time! But you'll figure it out. Unfortunately, it might take a while. I don't want to sugar-coat it. Eat fruits and veggies and protein. Nuts if you can. Those will be safe-bets. Then add processed foods slowly.

Good luck! Congrats on graduating!

Strawberry-Jam Enthusiast

I was just wondering... does anyone else react to soy like this...?

eatmeat4good Enthusiast

I am sorry you are feeling so bad, but I am so pleased with you that you post what you are experiencing. I am wondering the same things and experimenting like you.

Yesterday I got weak and used Hazelnut Coffeemate which has a may contain soy statement. Other than that I have successfully aboided soy for a few weeks. After I drank the coffee with coffee mate I started getting a low grade headache in the back of my head that kept getting worse. Like you describe. I didn't connect it. The headache lasted all evening and I had to use migraine medicine.

Today when I read your post, I thought Aha! It might be the soy.

I had no idea we could be that sensitive to soy...it is maddening. I hope your reaction passes soon, but thank you so much for your posts because I never would have connected the soy with headaches and depression. I will be watching my reactions more carefully...and my food. Hope you feel better soon girl! Thank you for all the information.

Strawberry-Jam Enthusiast

I've definitely linked the soy to out-of-the-blue depression, even traces... I can't think of anything else it could be. food diary to the rescue.

but I'm still having waves of fatigue especially in the afternoon/evening and I'm still having headaches (some of which are tension headaches I know because my neck hurts too from bad posture recently, but not all of them are from that). It's weird because I'll feel GREAT in the morning often but then have a wave of fatigue by end of day. I'm going to chalk it up to healing/getting over accidents for now and see if that's the answer.

...so yeah, depression attacks linked to soy, along with mondo headache, but sleep/fatigue attacks not sure about yet. that but maybe something else too. or maybe healing. we'll see.

annegirl Explorer

Hey, I totally know the suck that you're going through. :( I don't know if this goes for you, but I try and keep in mind that I already feel so much better!

Soy messes me up pretty bad. Last time I had some I had to take a day off from work, and really should have taken another. The only way to describe how I feel is I feel like I'm engulfed in a toxic cloud and I have a horrible "chemical" headache. It's pretty sneaky, but at least it's required to be listed as an allergen so you're a little safer!

If you're still feeling bad you might take a look at corn. I had no idea how bad it was messing me up until I took everything else out and really noticed the symptoms. I just discovered today that rice gives me the same reactions so you might think on that as well. Be aware that corn is in more things than gluten or soy, there is also the downside that it is not considered an allergen so it is not listed in ingredient labels as such.

Looks like you're right about a month behind me on "losing foods." I know it can be really depressing, and I'm really sorry. Again, I've really tried to focus on the positives. I'm eating waaaay better, feel way better even with the other food issues popping up and I've lost 20 pounds in 2 months so there is a lot for me to be thankful for (and yes, I have to repeat this over and over to myself);)

Hang in there, and congratulations on nearing graduation! That in itself could be the reason for your fatigue. :) School is tough work!

Strawberry-Jam Enthusiast

People keep telling me to give up corn, but I think that part of what I need is patience. The neurological issues are the last to clear up, so they say. My headaches and fatigue will take more than four weeks to dissappear (or one week if you count from my going off of soy).

I don't eat corn every day either... Mostly rice etc. I'm off almost all processed foods. Some of these headaches and fatigue waves come from nowhere, and some are sleep deprivation-related, as I'm still experiencing disturbed sleep (less than before, but it's still there). So I have to keep reminding myself that time is key here.

And AVOIDING SOY ARGGGH.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Debbie B in MD Explorer

Oh no!!!! There is soy in chocolate???? Soy lecithin. Oh no!!!!!!! Thanks for making me realize this and now why I have back slid a good bit. Thank you so much. I had avoided soy and thought I had been diligent. Now I can heal even more.Thanks again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      Insomnia help

    2. - wellthatsfun posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      nothing has changed

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,102
    • Most Online (within 30 mins)
      7,748

    Dawn74
    Newest Member
    Dawn74
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
    • Charlie1946
      Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless!
    • Charlie1946
      @trents thank you! I have only been taking 20mg 1x a day. Maybe I need to increase it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.