Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3Rd Time's The Charm?


Strawberry-Jam

Recommended Posts

Strawberry-Jam Enthusiast

So, had a random crying spell this morning, depression and fatigue and headache even though I felt really good when I woke up (slept 9 hours, woke up naturally). I want to punch through a window or just sob. No reason. School is going well and I'm getting the hang of this celiac thing. But I just want to cry and cry.

Looked at the Maranatha almond butter that I had with breakfast today because I needed the protein. "May contain traces of soy......"

GAERHRHGAEHEATGEAFL

I had it on gluten-free SF chips for dinner last night too, so there'll be a little buildup. Besides this I have been very diligent about cutting out soy (ALL forms) for about a week. Since I cut out soy I haven't had these random sleep and depression attacks.

So I guess this means I definitely have a very serious soy intolerance? This is the 3rd depression "attack" that I can link to soy or soy lecithin.

I have no reason to be depressed except for that this is another food item I spent more money than usual on (costs more than PB) that I will have to throw or give away, which is frustrating. When I am using the reasoning part of my brain I feel pretty good. I laugh at jokes in class and enjoy people's company. But I am holding back the randomest tears and the front and back of my head hurts and sometimes my vision is a little off, like it's sliding around (if that makes sense to any of you).

WHEN WILL THIS END? That's what I want to know. When will I stop making mistakes and start feeling better on a consistent basis?? I only have a month left of school before I GRADUATE and I don't want to spend it feeling so bad!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenngolightly Contributor

WHEN WILL THIS END? That's what I want to know. When will I stop making mistakes and start feeling better on a consistent basis?? I only have a month left of school before I GRADUATE and I don't want to spend it feeling so bad!

It doesn't really end, you know? If you're intolerant to multiple foods, you're always on the look-out. I have this problem, too.

The good news is that you'll find your go-to foods and you can eat these without worry. If you want to add something new, that's when you have to worry all over again. Also, when you go out to eat or eat at someone's house. That's a worry, too. But once you find your go-to foods, you'll start to feel better. Make sure you find some go-to foods that are fast and tasty. Also, make sure some of them are snack foods that you can carry with you.

I'm a "no gluten, dairy, nuts, or corn" girl, so I know what you mean about feeling bad. I felt bad for a LONG time! But you'll figure it out. Unfortunately, it might take a while. I don't want to sugar-coat it. Eat fruits and veggies and protein. Nuts if you can. Those will be safe-bets. Then add processed foods slowly.

Good luck! Congrats on graduating!

Strawberry-Jam Enthusiast

I was just wondering... does anyone else react to soy like this...?

eatmeat4good Enthusiast

I am sorry you are feeling so bad, but I am so pleased with you that you post what you are experiencing. I am wondering the same things and experimenting like you.

Yesterday I got weak and used Hazelnut Coffeemate which has a may contain soy statement. Other than that I have successfully aboided soy for a few weeks. After I drank the coffee with coffee mate I started getting a low grade headache in the back of my head that kept getting worse. Like you describe. I didn't connect it. The headache lasted all evening and I had to use migraine medicine.

Today when I read your post, I thought Aha! It might be the soy.

I had no idea we could be that sensitive to soy...it is maddening. I hope your reaction passes soon, but thank you so much for your posts because I never would have connected the soy with headaches and depression. I will be watching my reactions more carefully...and my food. Hope you feel better soon girl! Thank you for all the information.

Strawberry-Jam Enthusiast

I've definitely linked the soy to out-of-the-blue depression, even traces... I can't think of anything else it could be. food diary to the rescue.

but I'm still having waves of fatigue especially in the afternoon/evening and I'm still having headaches (some of which are tension headaches I know because my neck hurts too from bad posture recently, but not all of them are from that). It's weird because I'll feel GREAT in the morning often but then have a wave of fatigue by end of day. I'm going to chalk it up to healing/getting over accidents for now and see if that's the answer.

...so yeah, depression attacks linked to soy, along with mondo headache, but sleep/fatigue attacks not sure about yet. that but maybe something else too. or maybe healing. we'll see.

annegirl Explorer

Hey, I totally know the suck that you're going through. :( I don't know if this goes for you, but I try and keep in mind that I already feel so much better!

Soy messes me up pretty bad. Last time I had some I had to take a day off from work, and really should have taken another. The only way to describe how I feel is I feel like I'm engulfed in a toxic cloud and I have a horrible "chemical" headache. It's pretty sneaky, but at least it's required to be listed as an allergen so you're a little safer!

If you're still feeling bad you might take a look at corn. I had no idea how bad it was messing me up until I took everything else out and really noticed the symptoms. I just discovered today that rice gives me the same reactions so you might think on that as well. Be aware that corn is in more things than gluten or soy, there is also the downside that it is not considered an allergen so it is not listed in ingredient labels as such.

Looks like you're right about a month behind me on "losing foods." I know it can be really depressing, and I'm really sorry. Again, I've really tried to focus on the positives. I'm eating waaaay better, feel way better even with the other food issues popping up and I've lost 20 pounds in 2 months so there is a lot for me to be thankful for (and yes, I have to repeat this over and over to myself);)

Hang in there, and congratulations on nearing graduation! That in itself could be the reason for your fatigue. :) School is tough work!

Strawberry-Jam Enthusiast

People keep telling me to give up corn, but I think that part of what I need is patience. The neurological issues are the last to clear up, so they say. My headaches and fatigue will take more than four weeks to dissappear (or one week if you count from my going off of soy).

I don't eat corn every day either... Mostly rice etc. I'm off almost all processed foods. Some of these headaches and fatigue waves come from nowhere, and some are sleep deprivation-related, as I'm still experiencing disturbed sleep (less than before, but it's still there). So I have to keep reminding myself that time is key here.

And AVOIDING SOY ARGGGH.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Debbie B in MD Explorer

Oh no!!!! There is soy in chocolate???? Soy lecithin. Oh no!!!!!!! Thanks for making me realize this and now why I have back slid a good bit. Thank you so much. I had avoided soy and thought I had been diligent. Now I can heal even more.Thanks again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.