Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need A Reason Not To "cheat" On Diet


thleensd

Recommended Posts

thleensd Enthusiast

I know that some of us here (like myself) went through horrendous experiences and will therefore never knowingly touch gluten again. However, I know some people were diagnosed and didn't have many symptoms to speak of and don't get a physical reminder if some gluten slips in.

I'd like to be able to offer something concrete to someone I know that cheats once in a while since they don't get a reaction. Are there stories here or elsewhere I can point her to? She's smart, but young, away from home, and invincible. I can't just say, "you might get cancer" (like trying to tell a smoker to quit...). I don't think she'll come on here and browse on her own.

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

If she knew there were a violent man who hated women, and loved to torture them, loose in the neighborhood, who had just escaped from jail, would she walk the streets alone at night? That is the equivalent of what she is doing, the kind of risk she is taking, if she continues to eat gluten. He may not find her, but if everyone else is indoors safe, he very well might. That is the kind of risk she is taking. If she is not afraid of harm, is not afraid of dying a tortured death, well I guess that is her business. There is nothing you can do to protect her. She may say she is a karate master and can defend herself - well, good luck. You can only fight back against gluten by avoiding it.

Not much help I am afraid for someone who won't listen.

adab8ca Enthusiast

and unfortunately you cannot make anyone do things they don't want to...i was clearly sick for a LONG time without symptoms since the damage was so horrendous but if I had known sooner, I maybe could have avoided the HELL i am in right now. When it hit, it hit me hard and I was 42. Thought I would end up in a wheelchair from neurological symptoms. This diagnosis is a GIFT. She can avoid SO much trouble...Too bad she can;t come live in my broken body for a bit to see what her future likely holds.

sb2178 Enthusiast

Well, I lost almost 6% of my bone density 14 months, and of that time I was only clearly symptommatic for 2. Do the math, and she'll have stress fractures and non-traumtic breaks within 10 years. Yay, hip fractures in your thirties and forties! (Those results were very weird. Scared me silly, and it was just incidental that I worked in a research center and happened to demo/teach the scanner twice.)

Anemia is also insidious-- you adjust to the new "normal" but it is not normal to be out of breath after going up two flights of stairs at a normal pace.

Or maybe she'll develop a higher sensitivity and that problem will solve itself? Not that I actually wish that on anyone.

color-me-confused Explorer

Well, I lost almost 6% of my bone density 14 months, and of that time I was only clearly symptommatic for 2. Do the math, and she'll have stress fractures and non-traumtic breaks within 10 years.

Wow. That's a frightening rate - I had no idea that such bone loss was possible so quickly. I meet w/ my GI doc in 3 weeks and the gene test and a bone scan for a baseline on my list.

annegirl Explorer

Well, cancer isn't as far out as she might think. I just lost a friend to cancer at 35. He had Crohn's not Celiac, but it's similar enough to be scary (I have another friend with Crohn's that manages her disease by being gluten free).

He was sick at 32 with cancer, got it to go into remission and then it came back right after he met his girlfriend. He passed away a month ago.

It's just not worth it to mess around with your life. It might seem ok when you're young....but it will bite you in the butt later.

This from a girl who NSAID her way to leaky gut at 15 {braces hurt!} and suffered through 13 years of chronic pain, illness and allergies before discovering what the underlying issue was.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.