Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy, Gastroscopy, And Surgery...

healinginprogress

Recommended Posts

healinginprogress Enthusiast
healinginprogress
Posted

Had my appointment with the colorectal surgeon today and she decided I should get a colonoscopy and a gastroscopy to make sure there's nothing else going on down there. I also have rectal prolapse (part of my colon comes out when I go to the bathroom), which I learned can be linked to malabsorption and malnutrition, as well as always straining and pushing, etc. And for that...I need surgery.

I'm glad that they're taking care of everything. But I'm not gonna lie...I'm a little scared. I'm especially scared for the amount of time I'll have to take off work.

I'm so overwhelmed with everything :(

Plus...I'm 29 for crying out loud! WTF?! It's so frustrating! I know I should be grateful that these things are being taken care of now, but it's just so crazy! I feel too young to be having bum surgery LOL I'm just so angry, depressed, sad, anxious, tired of it all!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I said to someone the other day, Who said "life's a breeze"? And she said, Nobody. Life's a b*tch, and then you die :lol: Well, it's really not that bad, although sometimes it seems it is. You just have to navigate your way through the bad parts as best you can, and pretty soon the storm has passed and you are sailing in smoother waters. :D

I am sorry that you have to have bum surgery, that is a bummer :P but it does not sound like an insurmountable problem. It's natural to be scared about these things though. Do you have any kind of support system to help you through this hard time? You sound like you need a hand to hold :) If not, we will hold your hand for you - feel free to express all your fears and problems and we will try to see you through.

But do hang in there; this as you say is a good thing to happen early so you can get it out of the way and move on. Have you resolved your constipation problems so that you will not be putting too much pressure on the incision? Also, I am glad she is going to do a colonoscopy and gastroscopy to check everything out ahead of time. A wise doctor.

So be strong hon, and know we are all here for you and with you. {{{{{hugs}}}}} And you can hold my hand any time.

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

Thanks, mushroom. I know I'll be okay, just a lot to process. I actually had a really great day today, had energy, felt positive, it was wonderful. I hope more days like this will follow.

And guess what? Today marks month 2 of gluten-free (though it feels SOOOO much longer, wow!)!!!! I'm on the right track.

bonnie blue Explorer
bonnie blue
Posted

So sorry to hear about your surgery, I am sending good thoughts your way. B) Congrats on the two months gluten free!!! Good for you, and last I love your picture!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,080
    • Most Online (within 30 mins)
      7,748
    Shelly3556
    Newest Member
    Shelly3556
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sillyac58
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By sillyac58 · Posted

      I used the cream for 4 days as prescribed 3 years ago. While I cannot be sure it triggered these problems, the timing is very suspicious. Yes, the oats are gluten free, and while I knew some celiacs have a problem with oats, I only just thought to eliminate them.  I just read about corn on this website, which I do eat plenty of. I do eat dairy, and would be so terrible sad to give it up, but..... Thank you for the diary suggestions. I'll start one today. Thanks for responding!
    • trents
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By trents · Posted

      Welcome to the forum, @sillyac58! Are you still using this topical medication for this precancerous spot on your lip? If not, are you saying you used it for a limited time and believe it triggered additional ongoing immune system reactions with unpleasant symptoms? I'm not clear on this. Are the oats you use certified gluten free? You may know this already, but even if they are certified gluten free, the oat protein avenin is similar enough to gluten to cause reactions in some celiacs. The development of other food intolerances is also common in the celiac community. Common offenders in addition to oats are dairy, eggs corn and soy. Dairy and oats are the most common, however. You might do well to keep a food diary and check for patterns.
    • sillyac58
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By sillyac58 · Posted

      I was diagnosed about 10 yrs ago with Celiac by presenting with dermatitis herpetiformis rash. I had no stomach or intestinal discomfort, but of course showed intestinal damage. The dermatitis herpetiformis eventually went away and I've been religiously gluten free ever since. About 3 years ago I was given a topical drug by a dermatologist for pre cancerous spot on my lip. The drug is called Imiquimod/Aldara, and works by stimulating your immune system. ? The package insert and many releable online sources warn to use caution using this drug if one has an auto immune disease, I hace since found out. One of the side effects is flu like symtoms, which I had at the 10 day mark as warned. But these symptoms have been recurring regularly ever since. Low grade nausea (no vomiting), extreme fatique (sleeping in daytime) and often a migraine headache on day one or two. The bouts last around 5 days or more, usually the nausea being the persistent symptom. My dermatologist, and another I went to for second opinion say this isn't a problem. I have been ill about a third of my life ever since. I have had extensive bloodwork, been to numerous specialists, but cannot figure out what is making me sick. I have become neurotic about gluten at home, using separate cutting boards, pans, sponges, dish towels, etc. I rarely eat out, and usually only because I am traveling. I have begun taking my own food to peoples homes for dinners etc. The only thing I haven't done, until now, is to eliminated oats, which I eat fairly regularly, and are known to sometimes be a trigger. And I have to say, in my defense, that it took me a very long time to suspect gluten because my only original symtom was rash/dermatitis herpetiformis. So I didn't associate the nausea/headache/fatique with gluten for a long time. Nor did any one of the many doctors I saw suspect it. I finally had a couple of dermatitis herpetiformis spots (and severe migraine) when traveling and probably eating cross contaminated food. I've never been on one of these sights but I am desperate. I'm praying it's as simple as eliminating oats. But I am angry that I was given this drug that I truly believe set this off to begin with. Anyone?
    • Wheatwacked
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Wheatwacked · Posted

      Just switching to gluten free diet will answer your question without involving anyone else.  Your sister was diagnosed, that puts you at 40% risk of having it also as a first degree relative.  If you improve on a trial gluten free diet, you either have Celiac Disease (autoimmune) or Non Celiac Gluten Sensitivity (not autoimmune).  In any case it is important to address nutritional deficiencies like vitamin D.  Gluten free processed foods are not required to fortify.  The reason gluten foods are fortified is our western diet is deficient in them to the point where the government had to step in and require fortification.   Once you start GFD you'll realize it was the gluten you were afraid of all along, but nobody told you.
    • trents
      Blood results

      By trents · Posted

      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
×
×
  • Create New...