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Dvt

celiac-cindy75

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celiac-cindy75 Newbie
celiac-cindy75
Posted

Hi! I am new to this forum I just registered today! Here is my story I was diagnosed with Celiac as a baby back in the 70's. Dr's did a biopsy to diagnose me back then i am told. I was on strict diet then gradually introduced to gluten - PASTA and Bread- and was not getting as sick so my parents felt i had 'outgrown' it. So for 30 something yrs now I have been eating gluten regularly. Well I have had so many issues with my stomach, arthritis, strange rashes, constipation, weight gain, fatigue for years and doctors always told me it was anxiety and it was all in my head. I did always mention that i had celiac as a baby, so you think this would have been a red flag to them? ANyway back in 2007 I go to hospital thinking i had a stroke b/c i could not move my left leg - I had foot drop and they FOUND that i had Multiple DVT's in BOTH my legs ( I did not have symptoms of blood clots they found them 'accidently'. turns out it was not a STroke (MRI's showed no Stroke) and they were stumped for 2 yrs as to why I got these clots! trust me they did genetic testing, lupus, tons of tests and nothing came up. They did eventually give me Celiac blood test but it came back negative so they don't believe I was diagnosed with celiac back in the day. Well after reading a book on Celiac, I really think its possible DVT is related to Celiac. I am going to a GI dr on Wed for the first time in my adult yrs and i am hoping that does an Endoscopy to see for sure that I have Celiac and to see what damage I done to my body. I have been feeling AWFUL lately and i know it has to be because of Gluten. Has anyone else ever had blood clot issues that has Celiac? Thank you.

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Kelly777 Newbie
Kelly777
Posted

Yes, I was misdiagnosed by a lab test 39 years ago after having a DVT with a RARE blood disease called Anti Thrombin III. I went to a hematologist on March 9th. She repeated the newer tests for all coagulating diseases and I was negative. I stopped my "blood thinner" after 39 years and I just don't feel right. Something is going on. I see the hematologist on Wednesday next week and hopefully she will tell me if my coagulation problems could be related to this disease. Who knows?

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    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      The IGA TTG (aka, TTG-IGA) is the centerpiece of celiac disease blood antibody testing. A high value in this test indicates probable celiac disease, though there are other reasons (some other diseases, some medications and in some cases, even some non-gluten foods that can cause it to be elevated. And it is not unusual at all for other celiac antibody tests to be normal when the TTG-IGA is high. Normally, when the TTG-IGA is elevated, the physician will order an upper GI with biopsy of the small bowel lining to check for the damage characteristic of celiac disease. The biopsy is then sent out for microscopic analysis. This is to confirm the results of the blood testing and is considered the gold standard diagnostic test. You should not begin a gluten free diet until the endoscopy/biopsy is complete. This is very important because otherwise the results will be invalidated.  This article on celiac disease blood antibody tests might be helpful to you while you are waiting for feedback from the physician:  
    • xxnonamexx
      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      By xxnonamexx · Posted

      Thanks that's what I didn't know about soy hidden with wheat. I know it's autoimmune but want sure about sensitivity to corn or eggs. There's no tests for these which are non gluten is there? I have had gluten free tortillas pastas made with corn and have had eggs so I don't think it bothers me but I was curious if there was a test that does sure sensitivities to these non gluten items for gluten-free people. Thanks
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      And of course I get these results (the ttg iga marked high at 646 mg/dL) on a Friday in my portal, my doctor wasn't in, and now we are in the weekend—leaving me to have to try and figure things out on my own until sometime next week. None of the nurses at the office would talk to me. 
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      peptide iga, peptide igg, and ttg igg were all marked normal with limits noted as <15.0
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      Gliadin peptide iga was 0.7 U/mL Gliadin peptide igg was <0.4 U/mL IGA TTG was 646 mg/dL (marked high with limits noted as 40-350) IGG TTG was <0.8 UmL
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