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Hello, I Was Diagnosed With Celiac Last Month.

Runner86

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Runner86 Newbie
Runner86
Posted

Hi everyone, last month while in the hospital I was diagnosed with Celiac and Crones. We couldn't figure out what was wrong with me when it started up a week after Christmas. I lost a lot of weight due to the Celiac and I couldn't go out much. Now that I am aware of whats wrong I have been keeping to being gluten, wheat and dairy free. I am glad to know there is a site like this so I can discuss this. So far from what I have seen this site is my Wikipedia for Celiac Disease. Thank you.

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Lisa Mentor
Lisa
Posted

Hi everyone, last month while in the hospital I was diagnosed with Celiac and Crones. We couldn't figure out what was wrong with me when it started up a week after Christmas. I lost a lot of weight due to the Celiac and I couldn't go out much. Now that I am aware of whats wrong I have been keeping to being gluten, wheat and dairy free. I am glad to know there is a site like this so I can discuss this. So far from what I have seen this site is my Wikipedia for Celiac Disease. Thank you.

Welcome Runner! This is a great place to be and we welcome you! Please feel free to walk around this site and and join in and ask any questions you may have. We have all walked in your shoes and here to help. :)

I stayed home for two months, until my gluten free life took hold. B)

We are glad you're here and glad to be helpful!!!!

dmdavis Newbie
dmdavis
Posted

Hi everyone, last month while in the hospital I was diagnosed with Celiac and Crones. We couldn't figure out what was wrong with me when it started up a week after Christmas. I lost a lot of weight due to the Celiac and I couldn't go out much. Now that I am aware of whats wrong I have been keeping to being gluten, wheat and dairy free. I am glad to know there is a site like this so I can discuss this. So far from what I have seen this site is my Wikipedia for Celiac Disease. Thank you.

Hi, I am dmdavis. I was just diagnosed yesterday with Celiac eventhough I had a blood test on March 15 that showed a high count of anti-bodies. My Dr. insisted I have an endoscopy to confirm. I am 67 years old and as I look back at my medical life I realize I have probably had this for most of those 67 years. I have periphal neuropthy, osterporsisi, and a list of things I cannot even remember. I feel healthy and I still manage a 500 unit apartment community. I have taken all of my health issues in stride because when there is no obvious diagnose it becomes a stress related issue or so said all my Dr.'s. I am seeing a Dietician soon to help me through the new eating life I am about to embark on. I have read articles that says long term celiac can be fatal. Please help me find people like me who are older and may have be mis-diagnosed most of their lives.

Thank you!

eatmeat4good Enthusiast
eatmeat4good
Posted

Welcome Dmdavis,

I am glad you finally found out what is wrong. I try to educate everyone I can about Celiac young and old alike. I just try not to be obnoxious about it but I say, Check it out on Celiac.com...and see if you have it too!

Like the commercial Got Milk?

They have a T-shirt Got Celiac?

no kidding. Anyway, welcome to feeling better and getting healthy!

Cattknap Rookie
Cattknap
Posted

Hi Runner - welcome! You should be feeling better soon - the diet changes should eventually make a big difference in the way you feel. I too was recently diagnosed with celiac. It was a nurse practitioner who put my symptoms together and believed I might have celiac - finally I was tested - 2 blood tests and a biopsy and every test was positive.

I am 60 and believe that I, like you, have probably had undiagnosed celiac for a while - at least 12 years or longer. Each day I am finding it easier to cope with the dietary restrictions. I am anemic even after taking large does of iron complex for 2 years and I have recent thyroid issues - I have been on the lowest prescribed thyroid meds dose for years until a few months ago - my meds have been raised 3 times this year alone...all caused ultimately from celiac. I also began having shingles (twice in 8 months). I too consider myself healthy and active so this all has been difficult for me to understand what is going on with my body.

I have only been eating gluten free for a three weeks but it was made a positive difference in the way I feel. I'm surprised at all the choices there are for us gluten free people both at restaurants, on-line and at most grocery stores. Truly it is not that difficult to live with, well at least for me.

Good luck to you - do all that you can to live gluten free and your health and energy should improve.

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      By trents · Posted

      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
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      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
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      By trents · Posted

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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