Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help


aking3028

Recommended Posts

aking3028 Newbie

Well, I've been gluten free for almost a month now and things are still pretty shaky. I get nauseous quite a bit but now I've been having horrible headaches. I've tried all kinds of pain relievers but nothing is taking it away. I called my dr and the receptionist said it has nothing to do with going gluten free, but it seems a little funny that they started after I went off of gluten. I've also noticed I've been really irritable also. Not sure if that has anything to do with the gluten or just because I have a constant headache. Has anyone else experienced any of these symptoms? Thank you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I have and it was when I was experiencing severe headaches and took Ibuprofen on a regular basis. It lasted for years until I found out about salicylic acid intolerance or sensitivity. It can cause irritability and constant rebound headaches. If you are allergic to aspirin you will react to Ibuprofen.

You could have withdrawal headaches on eliminating gluten, but I would think those would have resolved by now unless you are getting cross contamination somewhere. That would certainly cause headaches too.

There are some threads on here about SA sensitivity.

Try googling Salicylic Acid sensitivity and see if any of the symptoms match yours. Fruits and vegetables also have salicylates...and if you are ingesting a lot more....could cause headaches in those who are sensitive.

I hardly ever get a headache now since I got rid of gluten and salicylates...and I no longer limit salicylates in fruits and vegetables but had to in the beginning.

Just something to think about, I'm sure you will get other answers.

domesticactivist Collaborator

What kind of headaches are they?

When we went off gluten, and especially when we went totally grain free and added probiotic foods one of the symptoms of candida die off was a bad sinus headache - front of head, face, etc. I also got ear aches with it. My partner got eczema flare-ups as well. When the yeast dies off it's got to get out of your system somehow. We trudged through it to the other side and feel much better.

I've always had migraine auras before going gluten-free, and when we first went off gluten I had the worst migraine auras of my life, as well as flare-ups of every other health problem that's ever plagued me. Now that it's been a few months (and especially after starting the GAPS diet) all those symptoms are long gone. I can not believe how healthy I've been feeling!

I think for me the main thing that caused all the flare-up, headaches, auras, etc was the sugar withdrawal. Removing so much hidden sugar from our diet was hard at first because it was an addiction. But once I got through the withdrawal and through the die-off I've felt much, much better.

WinterSong Community Regular

I'm 2 1/2 weeks gluten-free, and last week I had my first ever migraine. It lasted for two days. It started again yesterday and I finally took something for it today when I almost passed out at work. My doctor agreed that it's probably from withdrawl and said that it should go away in time...I can't wait. Hope you feel better soon, too.

aking3028 Newbie

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

ravenwoodglass Mentor

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

What are you typically eating? Have you deglutened your home? Have you checked all scripts and OTC drugs as well as supplements? Have you eliminated gluten from all your toiletries? I used to get horrible migraines when I was consuming gluten and thankfully they ended once I got rid of every possible source of gluten. They do return full force with even a small amount of CC which is why I asked the questions.

Junot Newbie

joint.webp

when im feeling my worst worst worst and the nausea is uncontrollable and the pain is to much and I think I just cant do this anymore, this is what saves me, no joke.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

The first one went away after I took a dose of tylenol. Then I found out that Excedrin Migraine was on the Gluten Free Drug List, and that helped a lot with this last one.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.