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aking3028

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aking3028 Newbie
aking3028
Posted

Well, I've been gluten free for almost a month now and things are still pretty shaky. I get nauseous quite a bit but now I've been having horrible headaches. I've tried all kinds of pain relievers but nothing is taking it away. I called my dr and the receptionist said it has nothing to do with going gluten free, but it seems a little funny that they started after I went off of gluten. I've also noticed I've been really irritable also. Not sure if that has anything to do with the gluten or just because I have a constant headache. Has anyone else experienced any of these symptoms? Thank you

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eatmeat4good Enthusiast
eatmeat4good
Posted

I have and it was when I was experiencing severe headaches and took Ibuprofen on a regular basis. It lasted for years until I found out about salicylic acid intolerance or sensitivity. It can cause irritability and constant rebound headaches. If you are allergic to aspirin you will react to Ibuprofen.

You could have withdrawal headaches on eliminating gluten, but I would think those would have resolved by now unless you are getting cross contamination somewhere. That would certainly cause headaches too.

There are some threads on here about SA sensitivity.

Try googling Salicylic Acid sensitivity and see if any of the symptoms match yours. Fruits and vegetables also have salicylates...and if you are ingesting a lot more....could cause headaches in those who are sensitive.

I hardly ever get a headache now since I got rid of gluten and salicylates...and I no longer limit salicylates in fruits and vegetables but had to in the beginning.

Just something to think about, I'm sure you will get other answers.

domesticactivist Collaborator
domesticactivist
Posted

What kind of headaches are they?

When we went off gluten, and especially when we went totally grain free and added probiotic foods one of the symptoms of candida die off was a bad sinus headache - front of head, face, etc. I also got ear aches with it. My partner got eczema flare-ups as well. When the yeast dies off it's got to get out of your system somehow. We trudged through it to the other side and feel much better.

I've always had migraine auras before going gluten-free, and when we first went off gluten I had the worst migraine auras of my life, as well as flare-ups of every other health problem that's ever plagued me. Now that it's been a few months (and especially after starting the GAPS diet) all those symptoms are long gone. I can not believe how healthy I've been feeling!

I think for me the main thing that caused all the flare-up, headaches, auras, etc was the sugar withdrawal. Removing so much hidden sugar from our diet was hard at first because it was an addiction. But once I got through the withdrawal and through the die-off I've felt much, much better.

WinterSong Community Regular
WinterSong
Posted

I'm 2 1/2 weeks gluten-free, and last week I had my first ever migraine. It lasted for two days. It started again yesterday and I finally took something for it today when I almost passed out at work. My doctor agreed that it's probably from withdrawl and said that it should go away in time...I can't wait. Hope you feel better soon, too.

aking3028 Newbie
aking3028
Posted
  • Author

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

ravenwoodglass Mentor
ravenwoodglass
Posted

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

What are you typically eating? Have you deglutened your home? Have you checked all scripts and OTC drugs as well as supplements? Have you eliminated gluten from all your toiletries? I used to get horrible migraines when I was consuming gluten and thankfully they ended once I got rid of every possible source of gluten. They do return full force with even a small amount of CC which is why I asked the questions.

Junot Newbie
Junot
Posted

joint.webp

when im feeling my worst worst worst and the nausea is uncontrollable and the pain is to much and I think I just cant do this anymore, this is what saves me, no joke.

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WinterSong Community Regular
WinterSong
Posted

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

The first one went away after I took a dose of tylenol. Then I found out that Excedrin Migraine was on the Gluten Free Drug List, and that helped a lot with this last one.

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      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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