Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Appetite


rgarton

Recommended Posts

rgarton Contributor

Sorry im new here and im sure there are hundreds of posts similar but i was diagnosed in January as Coeliac, and have been gluten free since, except the slip up of drinking diet coke which doesn't agree with me at all! I was just over 10st and now im 8st 3, i can't seem to put the weight back on yet, I'm 5,7" btw. I've only just started to notice the difference its making but my appetite is driving me insane! I don't have one! Then when i do eat i feel light headed so i eat then i get shaky... Seems i can't win! I'm still really tired from being severely anemic but i just want to be better! So envious of the people that seem to feel better nearly instantly! Any tips? Natural ways to increase appetite? Thanks guys.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I struggle with having no appetite at all. I never want to eat. I know it was really bad in the beginning and now it is still an effort to eat. If I did what I wanted I would only eat once a day. BUT my body needs to heal and needs energy to do that. So I started making myself eat a measured amount of nuts in the morning. A chicken breast for lunch and some kind of meat for supper. The increased protein has really made a difference. I try to finish all the meat first because protein builds new cells, then I flesh it out with some veg or fruit or more nuts. But to be honest with you my appetite isn't there at all...I just do it cause it is right. I think probiotics can help that. Reduced motility is what they call it medically...I'm not sure of the right way to handle it, but I noticed by day 3 that I felt a whole lot better and more clear mentally. Hope this helps some...at least you know you are not alone

  • 3 weeks later...
rgarton Contributor

I struggle with having no appetite at all. I never want to eat. I know it was really bad in the beginning and now it is still an effort to eat. If I did what I wanted I would only eat once a day. BUT my body needs to heal and needs energy to do that. So I started making myself eat a measured amount of nuts in the morning. A chicken breast for lunch and some kind of meat for supper. The increased protein has really made a difference. I try to finish all the meat first because protein builds new cells, then I flesh it out with some veg or fruit or more nuts. But to be honest with you my appetite isn't there at all...I just do it cause it is right. I think probiotics can help that. Reduced motility is what they call it medically...I'm not sure of the right way to handle it, but I noticed by day 3 that I felt a whole lot better and more clear mentally. Hope this helps some...at least you know you are not alone

Thank you, unfortunately i'm vegetarian, have been since i was 4, im now 21. I've never craved it or wanted meat so i listen to my body. But protein is the way to go! Will start eating more nuts and stuff... Really does suck not having an appetite... Thanks again.x

monika Newbie

Thank you, unfortunately i'm vegetarian, have been since i was 4, im now 21. I've never craved it or wanted meat so i listen to my body. But protein is the way to go! Will start eating more nuts and stuff... Really does suck not having an appetite... Thanks again.x

You might want to try Blue Diamonds Almonds. They are Great! and peanut free!!!

I live off of that... I've also noticed that my appetite has diminished to nothing. It's horrible.

Juliebove Rising Star

I don't have celiac but I do have gastroparesis. That means I digest my food more slowly than normal and this causes no appetite most of the time. I am also diabetic so to keep my blood sugar stable, I should eat on a schedule. However because I wasn't hungry I keep delaying my meal by an hour...then another hour... That did work for me so well!

I am also limited as to what I can eat. By the diabetes. By the gastroparesis. And then food allergies. So I take what is left and try to focus on what I like of those foods and then try to come up with balanced meals. Yes, I do take a lot of supplements because it is hard for me to get what I need.

I am overweght though. I need to lose but can't see to.

What seems to help me is to surround myself with food. I find if I watch cooking shows on TV, something will look good to me and I will eventually want it. Or the smell of food might make me want it. For instance, when I step into Target, I smell the popcorn and then I want it! I can't always finish the bag. Most of the time daughter and I will each get a bag (they are small) and eat half. We'll combine them into one bag, put the empty bag over the top as a cover and she will take it home to eat later.

Even posting here or reading the posts seems to help because I will read about things that sound good and that will tend to stimulate my appetite.

Dr. B Newbie

You might be taurine deficient and taurine plays a very important role in the body. You might also have systemic candidiasis, which causes weight loss, anemia and auto-immune diseases.

I have found that the body seeks it's ideal weight and so I wouldn't worry about it. Sometimes the "loose skin" that results from the weight loss, that results from going gluten free, is a little scary....but the skin will tighten up after 2-3 months.

I have also found that the "cleansing" process the body goes through when changing to a gluten free diet can cause the loss of appetite. I, personally, went down to 128 pounds, before going back up to 135-140 pounds (20 BMI). Before I was gluten free (and grain free), I weighed 155-160 pounds. People say I look thin, but they are just the ones that are used to seeing me with love handles and droopy jowls, etc... all now which are gone. :-) It takes many months for the

shadowicewolf Proficient

Same, however at the moment, i have just been 'grazing' by eating a little bit here and there. If i don't eat something i get light headed :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
order Newbie

I've been diagnosed as Wheat allergic 11 days ago, and since then, my appetite has diminished to nothing. I've removed wheat completely from my diet, which is most gluten products that celiacs also have to remove. I was also diagnosed peanut intolerant, so there are not many foods I can go by anymore. I have to force myself to eat 2 small gluten-free crackers in the morning, and live off half a carton of yogurt (fat free) with a bit of cucumber and some meat... but I force myself to eat, otherwise, I'd plan on not eating at all. I have to eat, otherwise I get weak, and my tummy rumbles at me like crazy.. I'm currently overweight, and I suspect I'll lose quite a bit during this process... My question is, will I ever regain my appetite?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.