Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Appetite


rgarton

Recommended Posts

rgarton Contributor

Sorry im new here and im sure there are hundreds of posts similar but i was diagnosed in January as Coeliac, and have been gluten free since, except the slip up of drinking diet coke which doesn't agree with me at all! I was just over 10st and now im 8st 3, i can't seem to put the weight back on yet, I'm 5,7" btw. I've only just started to notice the difference its making but my appetite is driving me insane! I don't have one! Then when i do eat i feel light headed so i eat then i get shaky... Seems i can't win! I'm still really tired from being severely anemic but i just want to be better! So envious of the people that seem to feel better nearly instantly! Any tips? Natural ways to increase appetite? Thanks guys.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I struggle with having no appetite at all. I never want to eat. I know it was really bad in the beginning and now it is still an effort to eat. If I did what I wanted I would only eat once a day. BUT my body needs to heal and needs energy to do that. So I started making myself eat a measured amount of nuts in the morning. A chicken breast for lunch and some kind of meat for supper. The increased protein has really made a difference. I try to finish all the meat first because protein builds new cells, then I flesh it out with some veg or fruit or more nuts. But to be honest with you my appetite isn't there at all...I just do it cause it is right. I think probiotics can help that. Reduced motility is what they call it medically...I'm not sure of the right way to handle it, but I noticed by day 3 that I felt a whole lot better and more clear mentally. Hope this helps some...at least you know you are not alone

  • 3 weeks later...
rgarton Contributor

I struggle with having no appetite at all. I never want to eat. I know it was really bad in the beginning and now it is still an effort to eat. If I did what I wanted I would only eat once a day. BUT my body needs to heal and needs energy to do that. So I started making myself eat a measured amount of nuts in the morning. A chicken breast for lunch and some kind of meat for supper. The increased protein has really made a difference. I try to finish all the meat first because protein builds new cells, then I flesh it out with some veg or fruit or more nuts. But to be honest with you my appetite isn't there at all...I just do it cause it is right. I think probiotics can help that. Reduced motility is what they call it medically...I'm not sure of the right way to handle it, but I noticed by day 3 that I felt a whole lot better and more clear mentally. Hope this helps some...at least you know you are not alone

Thank you, unfortunately i'm vegetarian, have been since i was 4, im now 21. I've never craved it or wanted meat so i listen to my body. But protein is the way to go! Will start eating more nuts and stuff... Really does suck not having an appetite... Thanks again.x

monika Newbie

Thank you, unfortunately i'm vegetarian, have been since i was 4, im now 21. I've never craved it or wanted meat so i listen to my body. But protein is the way to go! Will start eating more nuts and stuff... Really does suck not having an appetite... Thanks again.x

You might want to try Blue Diamonds Almonds. They are Great! and peanut free!!!

I live off of that... I've also noticed that my appetite has diminished to nothing. It's horrible.

Juliebove Rising Star

I don't have celiac but I do have gastroparesis. That means I digest my food more slowly than normal and this causes no appetite most of the time. I am also diabetic so to keep my blood sugar stable, I should eat on a schedule. However because I wasn't hungry I keep delaying my meal by an hour...then another hour... That did work for me so well!

I am also limited as to what I can eat. By the diabetes. By the gastroparesis. And then food allergies. So I take what is left and try to focus on what I like of those foods and then try to come up with balanced meals. Yes, I do take a lot of supplements because it is hard for me to get what I need.

I am overweght though. I need to lose but can't see to.

What seems to help me is to surround myself with food. I find if I watch cooking shows on TV, something will look good to me and I will eventually want it. Or the smell of food might make me want it. For instance, when I step into Target, I smell the popcorn and then I want it! I can't always finish the bag. Most of the time daughter and I will each get a bag (they are small) and eat half. We'll combine them into one bag, put the empty bag over the top as a cover and she will take it home to eat later.

Even posting here or reading the posts seems to help because I will read about things that sound good and that will tend to stimulate my appetite.

Dr. B Newbie

You might be taurine deficient and taurine plays a very important role in the body. You might also have systemic candidiasis, which causes weight loss, anemia and auto-immune diseases.

I have found that the body seeks it's ideal weight and so I wouldn't worry about it. Sometimes the "loose skin" that results from the weight loss, that results from going gluten free, is a little scary....but the skin will tighten up after 2-3 months.

I have also found that the "cleansing" process the body goes through when changing to a gluten free diet can cause the loss of appetite. I, personally, went down to 128 pounds, before going back up to 135-140 pounds (20 BMI). Before I was gluten free (and grain free), I weighed 155-160 pounds. People say I look thin, but they are just the ones that are used to seeing me with love handles and droopy jowls, etc... all now which are gone. :-) It takes many months for the

shadowicewolf Proficient

Same, however at the moment, i have just been 'grazing' by eating a little bit here and there. If i don't eat something i get light headed :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
order Newbie

I've been diagnosed as Wheat allergic 11 days ago, and since then, my appetite has diminished to nothing. I've removed wheat completely from my diet, which is most gluten products that celiacs also have to remove. I was also diagnosed peanut intolerant, so there are not many foods I can go by anymore. I have to force myself to eat 2 small gluten-free crackers in the morning, and live off half a carton of yogurt (fat free) with a bit of cucumber and some meat... but I force myself to eat, otherwise, I'd plan on not eating at all. I have to eat, otherwise I get weak, and my tummy rumbles at me like crazy.. I'm currently overweight, and I suspect I'll lose quite a bit during this process... My question is, will I ever regain my appetite?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.