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More Of A Rant Than Anything


browneyedgrl73

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browneyedgrl73 Rookie

I'm sorry of using this board as a rant, but I need to vent and my family is sick of listening to me. I have 2 days to go till I go to my Dr. to find out the result of my bloodtest. I'm miserable....I have no energy and no interest in anything. I've been sick for so long, I don't even remember what "normal" feels like. I just want to feel better. :( I pray my doctor diagnoses me with something... anything.... (although I am fully convinced I have celiac)

Once again- sorry for the rant, but this group is so supportive!


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mytummyhurts Contributor

Feel free to rant away. Most of us feel the need to do that every once in a while. I'm sorry that you are feeling so bad and I hope you find the answers when you go to the doctor. :)

julie5914 Contributor

uff, yeah, I remember how long that wait was for a diagnosis. I certainly hope you get some answers and that if isn't celiac it is treatable!

Carriefaith Enthusiast

Sorry to hear that you aren't feeling well. I know what it is like... feeling sick of being sick... I hope that the doctors find out what is wrong. Keep us posted.

jenvan Collaborator

We understand! Let us know how your tests go. I was diagnosed in Feb and know my husband gets tired of me talking about my celiac at times--and probably this board too ! :P

rmmadden Contributor

This board was made for ranting! I for one am thankful to have found this board because it provides the opportunity to get things off your chest and speak to others who know how you feel. I look at this forum as therapy and I can't begin to imagine how I would deal with this disease if it wasn't for the internet and this board.

Rant away all you want.......And I hope you get good news and feel better!

Cleveland Bob B)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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