Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Weekend At Work


CruiseWriter

Recommended Posts

CruiseWriter Apprentice

I've been having a lot of swelling and pain over the weekend. I am working at the beach and worked a lot over the weekend, putting in 8-9 hour shifts on my feet with only a 20 minute break. I've been bloated and swollen for the past 3 years but it's gotten progressively worse. Last night my hands were filled with fluid as well as my legs and feet, and could barely walk when I went home. I had a hard time sleeping as the pain was so great, and this morning I was in a lot of pain but I went to work and I barely made it through the day. I could hardly stand the pain in my legs and feet and the swelling and pain was too much for me; I could hardly walk and I was crying in pain, so my manager is cutting my hours in half and she sent me home early tonight.

I started a gluten-free diet last weekend and when I weighed myself yesterday, the scale showed I'd lost 5 pounds by cutting out wheat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelindaLee Contributor

I've been having a lot of swelling and pain over the weekend. I am working at the beach and worked a lot over the weekend, putting in 8-9 hour shifts on my feet with only a 20 minute break. I've been bloated and swollen for the past 3 years but it's gotten progressively worse. Last night my hands were filled with fluid as well as my legs and feet, and could barely walk when I went home. I had a hard time sleeping as the pain was so great, and this morning I was in a lot of pain but I went to work and I barely made it through the day. I could hardly stand the pain in my legs and feet and the swelling and pain was too much for me; I could hardly walk and I was crying in pain, so my manager is cutting my hours in half and she sent me home early tonight.

I started a gluten-free diet last weekend and when I weighed myself yesterday, the scale showed I'd lost 5 pounds by cutting out wheat.

I hope you will find some relief with the gluten-free diet. My main symptom was an arthritis type of pain which was from joint inflammation. Once on the gluten-free diet, my inflammation has went away and I no longer have to take anti-inflammatories. I hope you will find the same relief!

eatmeat4good Enthusiast

I had the same feelings and experiences before going gluten free. You should get better and better. I will tell you that I didn't eliminate dairy and soy in the beginning since I thought gluten was bad enough to get rid of. Several months later I realized soy causes swelling inflammation and pain. Couple months after that I decided dairy had to go. It causes brain fogginess and lethargy and nausea...not necessarily the stomach or D problems others experience, but I noticed a definite feeling of well being returned on eliminating dairy and soy in addition to gluten.

wjp Newbie

Swelling of my ankles and legs was one of my main complaints before going gluten free. Then my stomach started to swell and I was always bloated after I ate. When the doctors diagnosed "celiac" and told me to go on a gluten free diet, I lost 6 pounds within 1 week and I know it was the fluid that I have been carrying around for probably 3 or more years. I lost over 20 and have been a constant weight (happy weight) for over a year. When my feet were swollen I had a hard time walking and would have to lie down alot. Went gluten free 1/10 and haven't looked back. Hope this helps you.

CruiseWriter Apprentice

What's the different between celiac and being intolerant? Confused. Feeling on the fence about GI....think he should have told me to go gluten-free instead of having me decide for myself. I see him next month and if I don't feel like he's helping, I'm not going back. I see PCP tomorrow to discuss current issues.

Takala Enthusiast

What's the different between celiac and being intolerant? Confused. Feeling on the fence about GI....think he should have told me to go gluten-free instead of having me decide for myself. I see him next month and if I don't feel like he's helping, I'm not going back. I see PCP tomorrow to discuss current issues.

Shortest answer: the status of official diagnosis.

All celiacs are gluten intolerant. But the current definition of celiac is that it is an auto immune disease. The current definition of gluten intolerant is undergoing massive confusion in the media, as the researchers attempt to split it off into another disease with another definition, since the official diagnostic criteria for the medical profession is that they want to see both a positive blood work test reaction and a positive result from a biopsy, showing certain amounts of damage.

Just get sick as a dog in various ways, but miss getting tests that show it ? Current medical profession still attempting to label this as something else.

Clear as mud ?

Just remember, many gluten intolerant people eat the exact same way celiacs do - gluten free, and ****ed carefully !

First off, welcome. I am one of those people who also tend to get a lot of swelling in my feet, I have been plagued with this, off and on, for much of my adult life. If I have to wear shoes, I am in either in heavy duty outdoors type sandals with adjustable velcro fronts, which can be instantly customized (which can be found at drugstore chains or discount stores, cheap ones just as good as $$$ pricy ones) or some sort of boot with thick soles, like a hiking boot or western boot, with plenty of extra width.

If I start to puff up, I try to drink a lot of water to flush out my kidneys and intestines, and I eat very carefully, sticking to as much fruit and vegetable type things as possible. I also will drink tea or coffee that I've put a little ginger, cinnamon, and tumeric in it, to bring down inflammation. It took me a while to figure out that not only does accidental glutening do this, (sometimes I never figure out exactly what the culprit was, but have narrowed it down to a list of suspects), but some ingredients in commercially made gluten free foods, when eaten generously, will do the same thing to me, so I will just avoid that brand or certain items, it may be okay for most people, but.... one example was the gluten free, flavored corn chips I pigged out on a few years ago for New Year's eve, (that was dinner, chips and sparkling water, yeah, big night at home <_< ) package is marked prominently Gluten Free. They really got me. There was a discussion thread on these, and even super sensitive people can eat these, but this is when I started suspecting that I might now be an oat reactor, which I've not tested. I also had a spectacular reaction to another flavored rice chip, of which I eat the same brand of rice cakes without a problem. I now stick to one brand of rice cracker. I know that I've had bad luck with imported garlic powder, out of a brand that is good for calling out gluten on the label, so I try to stay with fresh domestic garlic.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.