Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired And Irritable

Marie1976

Recommended Posts

Marie1976 Enthusiast
Marie1976
Posted

Had my endo last week and have been gluten free since then. I know it takes a while to get back to normal but how long??

I'm so tired, even when I get enough sleep. And I find myself snapping at everyone and then feeling bad about it.

It's difficult just to go about my normal day. I want to just lie down and do nothing. I hate this feeling. Anyone have any ideas? Maybe I should take up coffee-drinking or something ...?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

You are likely going through withdrawl. It will pass. Are you taking any vitamins? It is usually a good idea. Do make sure any meds or supplements you are taking are gluten free. Read the whole label on supplements as they can have wheat and barley grass and still have a gluten free label. If you can sleep then do so. If you have to be up and doing coffee might help a bit but you might want to limit it to the morning as you don't want to have it keep you up at night. I found Royal Jelly, from bees, to be a big help with energy. If you are not allergic to bees you may want to give it a try.

Hang in there and hopefully the tiredness and irritable feelings will be over soon.

reijnen Newbie
reijnen
Posted

I have felt the same way, I have been gluten free for 5 weeks and I still feel fatigued, muscle weakness, etc. it has improved a bit from before going gluten free but it has been slow. Two steps forward, one step back, some days are better than others. I have looked into dropping other foods besides gluten just to be on the safe side but I'm not sure that is the problem either. All I can say is I am in the same boat.

IrishHeart Veteran
IrishHeart
Posted

It is difficult at first. Gluten withdrawal, accepting what's happened, feeling out of sorts, feeling drained from being ill, depression from malnutrition...lots of reasons why you feel this way. If you need rest, it is because your body is telling you...it needs rest!!

Do not feel bad about resting. You've been ill.

Our bodies are really depleted from malnourishment. That is what this disease is all about!! It affects everything in the body--and the fatigue may also be from anemia. You will need to have your vitamin levels (B-12, folate, D3) tested to check for deficiencies caused by the malabsorption.

I was so sick and exhausted, yet I had insomnia and was "racy" and could NOT sleep very much. Like maybe 2-4 hours a night! For over 3 years!!

Once I went gluten-free, my nervous system started to relax....then, I was dragging myself around for a while...now, I am doing better. Everyone is different and heals at different rates.

This fatigue and irritability will pass. Your hormones will level off and you'll have more energy. Be good to yourself. Let the people you live with know you are having a rough time and you may need extra sleep and/or support.

Take warm baths before bed. Don't take up coffee if you don't already drink it--that will only stimulate you and then, you'll crash...it's just a gut irritant anyway. Drink water. Lots of water. You are--essentially-- detoxing your body from gluten.

You're gonna be okay, Marie. ((HUGS)) It takes time...and patience.

Vent away on here if you are feeling grouchy or frustrated or weepy...(we soooo "get it")and hang in there. It really does get easier! And your energy--and good mood-- will return.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,807
    • Most Online (within 30 mins)
      7,748
    MoonBear
    Newest Member
    MoonBear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.