Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Could This Be?


strawberrygm

Recommended Posts

strawberrygm Enthusiast

my 12 year old daughter has been gluten free for almost 4 years.

starting last monday night, she has been having serious abdominal pain.

at first we thought she had pulled a muscle in jazz class that afternoon, so we tried ibuprofin, hot showers, heating pad. tuesday she went to school but was in pain. wednesday she was unable to go to school, i took her to a local fast pace clinic. they ran a urinalisis, bloodwork, and an xray. by thursday still no relief, i took her to her pediatrician, who ordered an ultrasound and told her to get on a low fat diet on top of her gluten free diet. friday was no school, that night she tried to go to a bday party for a classmate, made it 30 minutes and i had to go get her. saturday she and 2 friends went to eat with her bio father, she laid down in the vehicle most of the ride (45 min each way) and left the table a few times during the meal. sunday she made it though church and lunch but then had to lay down most of the afternoon. monday was also unable to go to school. today, tuesday, was finally the day for the ultrasound. it was completed by 9 am. it is 3:15pm right now. i have called the doc office at 1130 and the nurse said she would call the hospital to try to get results. i have not heard back so i called back at 3. if no one has called me by 4, i am going to the office to get them to get me some results, now. we made her go to school today after the ultrasound, took her in around 11am. let her wear a therma-care heat wrap to try to help with the pain. she made it till around 2pm and came home in tears. is now back in the bed.

the pain is constant, yet gets worse whenever she eats or drinks anything. this tells me its not an accidental glutening (as of course everyone wants to assume first, myself included) because the pain worsens after eating just an apple or just a drink of tea or sprite.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



strawberrygm Enthusiast

forgot to say, the bloodwork, urine test, and xray all came black clear.

AgainstTheGrainIdaho Rookie

Oh man! Poor girl!! Has she been constipated at all or is it the opposite? I'm sure they checked her appendix. I hope they figure it out soon!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,164
    • Most Online (within 30 mins)
      7,748

    VGL
    Newest Member
    VGL
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...