Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elevated Liver Enzymes

DanieGurl

Recommended Posts

DanieGurl Rookie
DanieGurl
Posted

I have been investigating celiac for awhile and had blood tests a year ago and they came back negative but at the same time i was found to have quite high liver enzymes but nothing was found to be wrong my question is can this be related to celiac disease?

also my mum has thyroid problems (not sure if high or low) but she has been told her liver levels are high and my sister just had a general blood test and was told her liver enzymes were also high, could this just be normal for us or could it be that we all have celiac, i know it runs in families?

my mums got a drs appt. on friday so is going to ask about it

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Yes celiac can effect the liver enzymes. Don't know why but there are many that have that finding prediagnosis. For most the enzymes go back to normal after following the diet for a bit.

lovegrov Collaborator
lovegrov
Posted

I have no idea what enzymes had been affected but some of my liver tests were so far off they thought I had liver disease.

richard

busymomof5 Newbie
busymomof5
Posted

I was recently diagnosed with celiac, and went gluten free 5 weeks ago. Two weeks ago I went to the doctor for a follow up visit. My bloodwork came back with elevated liver enzymes (2-5 times the upper limit.) My doctor did more blood work and ruled some things out, didn't find a cause. My doctor wanted to send me for an ultrasound, but I talked her into waiting a month and retesting my liver enzyme levels to see if they are coming down (indicating that it is probably celiac related, and responding well to the gluten-free diet.) How elevated were your levels? I would be very interested to hear from others who had elevated liver enzymes - especially if they were elevated from celiac.

cahill Collaborator
cahill
Posted

I wonder about the connection between celiacs and liver issues.

I was recently diagnosed with Gilbert-meulengracht syndrome.

My daughter is convinced that my celiacs is connected to my gilberts .

The origin of gilberts is a genetic flaw in ones DNA

Cypressmyst Explorer
Cypressmyst
Posted

From what I understand there is a very direct link. If you watch the 2010 Celiac Forum DVD Dr. Thomas O'Bryan goes over this a bit. He also talks about it on this radio show:

Open Original Shared Link

Sometimes elevated liver enzymes are the ONLY sign of Celiac. :blink:

DanieGurl Rookie
DanieGurl
Posted
  • Author

thanks guys!

since I had blood tests a year ago that came back negative is it still possible for me to have celiac disease?

hopefully my mum made some progress at the dr today

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

thanks guys!

since I had blood tests a year ago that came back negative is it still possible for me to have celiac disease?

hopefully my mum made some progress at the dr today

Yes it is still quite possible for you to have celiac. If you want more testing don't go gluten free yet and have the blood tests rerun. Just because they were negative a year ago doesn't mean they will be now. Keep in mind though that the tests could still be a false negative so try the diet strictly after all testing you choose to do is done.

Cypressmyst Explorer
Cypressmyst
Posted

The absolute best test you can do is to cut it out for one month 100%. My advice is to save the time and money of another blood test and go the direct route. :)

  • 3 weeks later...
busymomof5 Newbie
busymomof5
Posted

I was recently diagnosed with celiac, and went gluten free 5 weeks ago. Two weeks ago I went to the doctor for a follow up visit. My bloodwork came back with elevated liver enzymes (2-5 times the upper limit.) My doctor did more blood work and ruled some things out, didn't find a cause. My doctor wanted to send me for an ultrasound, but I talked her into waiting a month and retesting my liver enzyme levels to see if they are coming down (indicating that it is probably celiac related, and responding well to the gluten-free diet.) How elevated were your levels? I would be very interested to hear from others who had elevated liver enzymes - especially if they were elevated from celiac.

I was just retested, and guess what? My liver enzymes have almost normalized on the gluten free diet. My ALT/AST was 118/232 (normal range is 0-40). It has come down to 41/56 in just a month. My elevated liver enzymes were definitely related to the celiac disease. I just thought I would share, since I'm sure others will be searching this board for answers at some future date.

ravenwoodglass Mentor
ravenwoodglass
Posted

I was just retested, and guess what? My liver enzymes have almost normalized on the gluten free diet. My ALT/AST was 118/232 (normal range is 0-40). It has come down to 41/56 in just a month. My liver enzymes were definitely related to the celiac disease. I just thought I would share, since I'm sure others will be searching this board for answers at some future date.

That's fantastic news and quite a relief I am sure for you. Thanks for posting the update.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Watch this space! 😊
    2. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but...
    3. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10). Since then it has gone up to 10. I am not happy with that. I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I...
    4. Mike Maurillo
      0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

      until
      Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit...
    5. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer. Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748
    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.